Hangtooth
@Squijibo
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he/him, will typo and make errors continuously due to nerve damage in hands and neurological issues in general
Burnaby. BC
Joined December 2011
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Also includes Sjogren’s
What I am getting at is via Dr Oaklander, Dr Farhad, and Dr Goodman's work, Sjogren’s, FM, ME/CFS and even LC may be forms of SFN that may not pass the usual diagnostic testing for SFN, and may not show the typical glove and boot pattern.
@arianek
@elle_carnitine
@Dysautonomia
TLDR it may all be small fiber neuropathy, all of it, with different symptoms.
If only 10% of SFN cases are being diagnosed as SFN and the rest are left as FM and ME/CFS, because they don't give a positive result on a skin biopsy, I would not be surprised in the least.
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@LauraGee77
This makes me physically ill. The fact that nobody came to your aid, but in fact joined in with the mob makes me ashamed to be Canadian.
Maybe they were together from the start, maybe they were all randoms. Whatever this mob scene was, they all need to be charged.
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@genderlessflesh
Ingenious and very sweet all around. I am sorry the relationship is strained like that.
You are a very good person.
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Grocery shopping today, I pick the only masked cashier. Wyt couple ahead of me 'How come you're still wearing a mask? to cashier.
I piped up from behind them with "I guess she hates brain damage".
'Oh wow, he's wearing one too, what's going on?'
LOL
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@DiaryofaSickGrl
I really hate that people still think "oh he's just exaggerating - he won't even notice if I put some pepper in".
Hoping your Dad feels better soon and his thanksgiving wasn't totally ruined, though I imagine it was =(
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Oct 2022, wife's coworker said masks 'make her hot' and took her off for the rest of her shift. She tested positive within a week. She brought it home to her husband, her 2 kids, and her extended family.
Kids have been sick ever since, in and out of ER.
Today she was unmasked
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So, I've mentioned my wife's coworker who stopped masking in Oct '22 as masks make her hot.
She finally admitted to my wife yesterday "I'm forgetting things, all kinds of things", as she stood there maskless trying to function at work.
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None of us could afford to go sick, but we did, to protect others - and also to avoid being called a variety of names and being hated by our friends and coworkers.
I think workplaces need some brutal honesty like this today.
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Go sick, you bastard! Stay home when you're sick!
Calls from across the huge space 'Yeah, go sick! Don't b here!
Back then, we'd come to work drunk, we'd smoke on the floor, people would sneak off and sleep on bags of letters.
But we knew not to infect others. We all agreed.
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Picked up my wife after work tofay. She works in a grocery store. as a supervisor so she's on and off the floor.
All managers currently sick, coughing sneezing all over everybody, and only my wife is masked.
Then one manager said 'some people get off on wearing masks'...
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Today's thought. I was a Postman in London in the 80s. I worked night shift for a few years, so we'd all be in the sorting office sorting and running machines.
If someone came to work sick, do you know what happened?
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Jun 22, 2023 we received notices that all portable a/cs were now banned in our apt building, and we had been refused permission to install window ones, which is why we all used portable a/cs.
Today, the CBC published a story about similar bans close by. 1/2
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At least they immediately stopped asking the cashier stupid questions.
When they left she said "thanks, I have had covid three times already, and I can't afford to get sick any more".
She looked to be mid-20s and still hopefully in good health, and wise beyond her years.
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My heart hurts. Walking outside past Walmart and I come across a woman using a walker weeping loudly as people push past her.
She either dropped her groceries or got jostled, but was unable to pick them up, and nobody cared.
I picked them up, helped her pack them securely.
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She's good friends with my wife, so we gently tried to offer her a mask. "I don't want one", "It's safer now".
She did look shocked when I asked if she knew that next time she takes her kids to the ER there might be nobody wearing a mask.
Then she tuned out, and said no thanks
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So property manager just came round to give everyone notice that portable air conditioning units are not allowed in our units...
It was over 40 C in here last heat event, the one that literally killed 619 people locally.
That was *with* a portable a/c running...
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@NicoReznick
I have always wondered if we can claim self defense when this happens and we react.
Good on you for reacting!
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TLDR people suck, nobody cares, we deserve to die in a pandemic that could be controlled and avoided.
Screw these people.
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So they are all sick, nobody testing for anything, all spreading it.
On top of that, she made a pride display for the LGBTQ2S coworkers.
Someone vandalized it, and threw out the cupcakes, since they were for 'gay people'.
She complained to office mgr who said it was catholics
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But I get home 10 minutes later and feel like an asshole. I should have made sure she was going to get home safely, that someone hadn't just stolen her bag or something.
I feel like even I am losing my capacity to help others.
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It almost seems as if they got wind of the BC government plan to give people in need free air conditioners, *with their landlords approval*
That news was broken by the BC Govt June 28...
Were BC Landlords give a week advance heads up, so that they could issue bans in advance?!
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While we had been approached by the media, we were reluctant to authorize a story listing names tenants, so I am glad that Ryan Le Neal in New West took on this risk himself on behalf of other tenants in a similar situation.
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@masksplaining
Similar thing happened at my wife's workplace (grocery store yesterday).
Everyone is calling in sick or coming to work sick, and her boss, unmasked finally said "um, do we sell masks still"?
Of course the answer was no. He had to take a break to go out to buy himself a mask.
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"Renters in British Columbia have received notices from landlords warning them against installing air conditioning units in their suites, or risk jeopardizing their tenancies." 2/2
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@anniwithoutane
My wife has worked in a different grocery store for more than 3 decades now. It's where I met her.
I'm fiercely protective of front line workers because I have heard 30+ years of awful customer stories.
Too often I have to intervene when they are being subjected to racism =(
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It seems that the Landlords of BC may be acting in concert. As the wording in our notice is quite similar (but different):
"if a tenant chooses to breach this material term of the tenancy and it creates damages the tenant will be liable for rectifying these damages."
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@bigskybabs
I love this! The man is a hero, and so is your daughter, and all the staff involved.
The male dater is probably SO relieved he dodged that bullet.
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@ExpatRepeat
Memory issues can also happen with constant trauma/chronic stress, like for example living through a pandemic where nobody else is doing their part to keep others safe.
That just compounds the problem for folks w/ many infections, but probably plays a role in covid zeroes too.
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Official release from June 28, 2023:
“We are committed to providing assistance through new funding for free air-conditioning units for vulnerable and low-income customers as well as a new rebate offer for all residential customers.”
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Oh yes, since people may live where it is easy to just move, this is what a rental crisis looks like.
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Last week, wife's friend/coworker who stopped masking summer of 2022, was jokingly telling us we'd catch cold from walking home in the rain without umbrellas.
This was said as she stood, maskless, in a busy grocery store inside a busy shopping mall.
She just called in sick.
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Just got an update. People who worked with that coworker told my wife today that the coworker in question seemed confused and kept forgetting everything throughout her shift last night.
Nope, nothing to see here =(
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If you're waiting to mask in Vancouver, now or never.
Wife just finished her shift at the grocery store and it was massive sick calls as well as many workers now masking at work because they are ill.
I keep warning folks, but they keep going in maskless, employees & customers.
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@santabarba62480
Yes! Pubs closed at 11 pm, shift started at 11, posties roll in - not all drunk of course, but almost everybody smoked. Couldn't smoke on the day shift, but from 11 pm-7:47 am everybody was smoking on the job.
NO idea how we never had a fire.
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PSA put a mask on. Employees at my wife's busy grocery store in Burnaby are all sick for a week already and the fun begins now. 39C fevers, loss of smell.
Either refusing to test or still testing negative but it's covid.
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@genderlessflesh
I hope you can reconcile one day.
My mother suffered from serious bipolar disease and walked out on our family when I was 11 - she thought we'd be better off without her.
Did not have much contact, but we reconciled perfectly right before she died. Such a gift she gave me.
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Took wife to grab a few items and hit the library. Street blocked off for 2 separate accidents, both single cars that have decided to drive up on the sidewalk and hit buildings/gates, 6 blocks apart.
Arrive library underground parking, see patient being revived beside their car
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@JasonM98282978
And if she's this bad, what has she done to her two young children who have been sick nonstop for 7 months now =(
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@ElizaEmTM
Now you've got it =) These last few winters I have waltzed into the mall and grocery store wearing a brokeback mountain type jacket with wooly collar, shorts, socks & shoes on.
It offends people so much they don't even see the mask.
Like Uncle Buck's hat.
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Sharing just because. Oh, Oscar, how I wish I could give you one of my kidneys.
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@amandalhu
Asked an ICU nurse I know today and she said that yes, masks are no longer required in the ICU, boss sent them a letter.
She says her whole team will still be wearing masks, voluntarily, but now she has to deal with unmasked visitors and non-icu staff around her ICU patients.
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Just a quick happy birthday to my boy, Oscar.
15 today. Diagnosed with stage 3 (0f 4) CKD at age 12 I never though he'd see 13.
Thank you for hanging in there for me and happiest of birthdays to him.
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Finally asked my father yesterday why his mother never once mentioned the 1918 pandemic, despite being 14 yrs old in 1918.
Was not prepared to hear 'because she had already been sent to die in a sanitarium as she had TB'.
I had never heard about the TB either. Respect to her.
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Wonderful. YOLO neighbour across the hall (that we share a cat with) just texted us that he's covid pos again.
His door is 5 feet from ours, so air is swapped everytime we open or close our door or he uses his door.
Due to cold windows are only open a crack.. ugh.
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@NoreenS60453986
People seem to be getting worse.
Gay bashing and disruption of pride events never happened before.
I think it's another sign that society/civilization is literally unraveling before our eyes.
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@wendellmom
Hope she does not have to participate.
My wife had a stalker that would watch her at work, and if he had known her last name, he probably would have tracked her down.
This is not safe.
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@indehisce
My wife is at the same point with her coworkers.
The sad part is these people are taking their kids along for the thrillride too.
We still feel sorry for their always-sick children.
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Know what the hardest part of keeping up to date with what is going on via twitter re: covid?
The constant drama and block chains making it dangerous to like, retweet or participate in almost any post these days as that may offend somebody else I follow.
Just so tired.
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Wife's coworker just called in sick today but says it's okay, only a fever and a cough and runny nose.....
Said "I'll come in tomorrow but I'llw ear two masks and be careful"
No you effing won't said my wife LOL. We'll be dropping off some RATs for him at his door tomorrow.
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@elizavetaka
@danaparish
Agreed, local pharmacy chain provided n95s to all their workers through covid. Nothing but love from customers, and people would specifically go there to shop.
The we have my wife's grocery store, who won't even provide surgical masks - staff or customers.
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What the owners could do instead is work with tenants to install efficient in-wall a/c / ventilation, ventilate through the now solid roof so everyone would not require a portable a/c to breathe.
After the heat deaths of 2021 and likely more this year. laws will change.
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"The 2021 heat dome, British Columbia’s deadliest environmental disaster to date, killed 619 of our friends and neighbours. Two years later, B.C.’s tenants are still unprotected in the face of extreme weather."
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@jimzawiya
Agreed. Civilians are civilians. It's not just women and children. It's non-combatant civilians.
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@ChrisAlvino
That's how my wife knows one of her managers/coworkers is sick. They suddenly start wearing a surgical mask.
They take if off again within a week usually.
OTH, I am seeing more minimum wage workers wearing masks that KNOW they are in danger, at places like KFC, Tim Horton's.
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@calirunnerdoc
It took 3 years to happen in the court system, but a woman here in BC was found guilty of assault for doing this in April of 2020:
"At one point, Poulton says Woolman suddenly stopped, turned around, leaned towards her and coughed at her face twice."
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And totally not related, it just took me 4 calls and a month to find out when out vet wanted a urine sample from our cat. he apparently wanted it 2 weeks ago, 2 weeks after I started asking when the sample was to be collected...
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@Riseandshine_2
People will also tell your spouse to leave you... people you thought were mutual friends.
Don't find out if they will listen or tell these people to GF themselves the hard way.
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@salvagingyouth
I'd honestly book a hotel room and let them arrive at an empty house.
I know, I am a monster.
It sounds like they are NOT giving you the chance to say NO.
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@talulahshARC
My personal half informed guess is that with a suppressed immune system from prior covid infections, you simply stop getting almost ANY symptomatic infections.
Folks go from infection to infection without a clue it's even happening.
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@apmalong
My wife is actually quite upset when she gets almost daily messages about how sick her friend's children are, or that they are having to rush the kids to ER, or the husband (when they all got norovirus together post covid).
1 day all are 'fine' next day she's off to the ER again
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@MalakaGharib
"And for me, that might mean thanking my husband for overcoming some of his COVID fears so we could go on vacation with our son."
So many red flags in this piece.
I am sorry for your husband.
2019 is gone, forever. He is not the problem here =(
I am sorry.
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@1goodtern
@beansprouts_mom
Yes! My first thought was we should replace 'cats' with 'children' in the infographic to help kids too.
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@haziethompson
Thank you for helping these women. I am very sorry people walked on by and did not help all 3 of you with this man =(
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@kingofqueensla1
GJ for the cashier, and if cashier was not masked already, maybe this is the push they need to go back to masking.
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@BrandonLBradfor
I love this. (A) That she was brave enough to reach out and (B) That you were into it without a second thought =)
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@CovidSolidarit1
The 1930s and how people were treated is a good indicator of things to come. It also culminated in WW2.
"The country’s most vulnerable populations, such as children, the elderly, and those subject to discrimination, like Black Americans, were the hardest hit. Most White..." 1/2
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I found this which gives me some hope if push comes to shove:
"Strata residents, co-op members, and tenants with medical conditions that are impacted by heat have a right to accommodation under the BC Human Rights Code."
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@genderlessflesh
I am so sorry =( I wish I had advice, but all I could do was love my mom from a distance and wait =(
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@greensnail_
Exactly, at a certain point, with no active cooling, the temperature will just continue to rise and take forever to vent and cool.
@JasonM98282978
in north Vancouver will likely pet his cats in a tent inside his living room and run the ac directly into the tent for them over 30C
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@StephTaitWrites
Wife works at a busy grocery store, and folks would get their groceries delivered if they knew how many of them are knowingly coming to work sick. Not testing, not wanting to know if it's covid, and definitely not masking.
I'm sure this is happening in all retail/service atm.
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Still around, just taking care of our cat that has been swiftly declining, trying to get him to pull out of it.
Sorry if I am not around for anybody who needs me, he needs me more.
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PSA
Any medical conditions?
Just went to have my driver's license renewed and I don't recall them ever asking this before.
Just a cautionary note that they may be realizing there's a lot of damaged people out there now.
This was in BC, Canada.
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@JasonM98282978
Oh that is so very nice of you, I hope he gets to come home soon and be reunited with Homer =(
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@tincanfire
My wife has a grocery store job where she's exposed at work, all day, every day full-time.
I often get so angry that almost nobody masks to protect her. I'd be the biggest hypocrite if I did not mask to protect others.
I'm doing what I *wish* others would do for my wife.
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@SleepyJim0
Agreed. tired of fighting people who say 'put on an n95 and you are invulnerable in a room full of unmasked people'.
There are limits to the protection.
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@Riseandshine_2
This is why I refer to this as the social contract being broken.
It's hard to be a member of society where the majority of the members have shown they don't care about you, your health, or even if you die.
I'm so sorry for marginalized groups who always knew this was the case.
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Just realized we've circled back to March of 2020 with the removal of universal masking in healthcare:
"They’re asking it of your grandparents, and of your neighbor with cancer; they ask it of me and of you, too, if your body is flawed or simply unlucky."
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@JessicaLexicus
Especially if you killed a family member.
ICU nurse I know said that was pretty common, and most of them were in total denial.
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@HighnessOphelia
@Ezrigen
Yes. It's why I staunchly support medical assistance in dying here in Canada.
People just don't understand how bad things can get and still not be curable/treatable.
Thanks to the pandemic, more people are learning that this sort of thing is a mercy.
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@kristinaEBP
Wow! I have to drop my wife off at work at her grocery store in 30 minutes.. but based on every single other day I'm expecting 99% unmasked customers and 80-90% unmasked coworkers.
This is BC, Greater Vancouver though. I blame Dr Henry.
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Just noticed another mystery block from someone with a lot of mutuals.
I'm sorry, I (and anyone else) will like, retweet and comment on posts you don't like.
We can't agree on everything.
Blocking people who support masking and clean air for petty reasons only hastens the end
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@Lindsae509
Same. We met in 1991 and were both pleased that the other was not really interested in having children because we both thought the world was going to hell.
Actual photos of our first date:
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@CovidSolidarit1
@laurieallee
Yes, some overzealous self-proclaimed disability activists went after her last night, and when she blocked them for peace, they went after her via her personal email that they dug up.
It was ugly and unwarranted, and GFY armchair disability advocates who went after her.
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@MeetJess
MAID is a hot topic for me for a couple of reasons.
1) At 17, I had to watch my brother who no hope and only suffering beg to die for 9 months. No MAID then.
2) My own grievous and irremediable medical condition may one day make me ask for MAID.
That said... 1/2
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@TrentDumas1
Yes, we had been using one for the last 15 years, as the top floor where we live is roasting year round.
Over the years almost all 17 units in her have added portable a/cs to stay livable.
So 2 year anniv of 619 deaths we get notices banning them =(
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@karamcnair
I am also finally seeing more masking locally in the grocery store/mall. Only Asian Canadians, of course, 'cept for me and my wife.
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@mat_schmaltz
@awudrick
For those who can't even google:
“Yes, there is a small fringe element in this country that is angry, that doesn’t believe in science, that is lashing out with racist, misogynistic attacks,” Trudeau said.
“But Canadians, the vast majority of Canadians..." 1/2
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@birgitomo
I am deeply sorry you have to experience this. I'm white and grew up here, but my friends have always been immigrants like my father's family.
I have witnessed how they have been treated.
Those who think Canada does not have a racism problem are in denial.
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@NoLore
@MikeMcPickles
You're right, it's not like 2020 or 2021. It's WORSE because people are choosing to play make believe that all is well, while record numbers of patients flood and overwhelm emergency rooms.
The long term damage accumulating will end society as we know it.
The danger is worse.
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Oscar and his new best friend, box of peppermint tea bags...
Also reacts this way to catnip and.. bleach.
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Did not attend a celebration of life today for someone my wife and I really cared for.
Too far & ceremony too long, my chronic illness is limiting.
Also, fucking C*VID. Not going to circulate and schmooze in the middle of a pandemic.
I think the deceased would approve.
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Public Service Announcement:
If you rely on medications to keep going, make sure you order a month in advance.
Tried to refill just now with 1 day's left and was told out of stock until mid to late July.
Just had to walk form pharm to pharm 'til I found one with stock.
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