Rich Collins
@Rich_Collins
Followers
474
Following
6K
Media
542
Statuses
4K
This account is dormant awaiting the day that Twitter becomes free once more
Lincolnshire, UK
Joined July 2009
A big thank you to @CHazelgroveMP @JimBethell @NavPMishra + @BambosMP for joining us in Parliament today to discuss how we can develop a world-class plasma for medicine service. Thanks also to our charity partners @gaincharity + @ImmunoUK, as well as colleagues from @NHSEngland.
0
5
7
The focus was on Ross who is likely to have his recovery curtailed before he is ready. This is happening a lot at the moment and is a big worry for folk with complex recoveries from conditions such as Guillain-Barré Syndrome
0
0
0
Did some TV the other day. It was on last night but I only featured very briefly. It was about time restrictions on Neuro rehab services in the North-East of England which are really impacting people.
1
0
2
Haven’t been on here for a while. Just popping on to say I write a thing ⬇️
What did our Rich think about the #Budget24, its impact on people, an what it means for GAIN and the community sector? Have a read at https://t.co/ZPhidjoP63
0
0
0
Really pleased to hear @TheSHCA talking about accessing data from the NHS. I have been shouting about this since I joined @gaincharity and we could do with raw (anonymous) data as well as dashboards. You never know we may actually be able to do some good work with it
0
0
0
Well that’s gone cold… again. A call out to fellow community sector CEOs, when was the last time you actually got to finish, or even start a cup of tea? #CharityCEO
0
0
1
Down in London today at the British Peripheral Nerve Society Autumn Meeting. Hoping to learn a lot and meet the best minds in #GuillainBarreSyndrome and #CIDP
0
0
0
On my way back to the UK after an incredible 2 days with my most excellent colleagues from GBS|CIDP Foundation International. Good times, good people 👊
0
0
1
First day at the @gbscidp European Workshop and we are starting off by highlighting issues across all countries and regions. Lots of similarities and themes cropping up around diagnosis, ongoing support, and lack of knowledge amongst physicians
0
0
0
Left London this morning for a trip over to Amsterdam to spend a few days with the good folk from @gbscidp . I expect it will be proper enlightening
0
0
1
Stopped the night in Bolton before on to visit the @gaincharity Lancashire and Cumbria group. I must say I do like this stadium
0
0
0
I wrote a thing about why it’s good to talk to people
Our Chief Executive @Rich_Collins has been on his own in the office for two weeks. He has spent the vast majority of time on the phone, answering emails, and returning messages and WhatsApp's. So what did he learn? Find out by reading his blog at https://t.co/YAAHSDkeCr
0
0
0
I’d certainly listen to what this guy is talking about #MyNeuroSurvey
Here is our @Rich_Collins with a little reminder about why he is completing #MyNeuroSurvey. To complete it go to - https://t.co/KkUdTCcZZY
@NeuroAlliance @NeuroAlScotland @WalesAlliance @naiireland
0
0
0
Cracking opportunity to come work with me at @gaincharity. If you are a #Marketing 💫 in a #Charity role then have a look or drop me a DM. And please share and lets reach as many people as possible. People with lived experience of inequality more than welcome
GAIN are hiring. We support people impacted by Guillain-Barré Syndrome and other related conditions. We are in a period of development and are looking for a bright and bold #MarketingExecutive to support our #communication and #engagement.
0
0
0
Sounds promising
New Multiple Sclerosis Drug Regenerates Myelin, Improves Movement Researchers have developed a new drug, PIPE-307, that targets nerve damage caused by multiple sclerosis (MS) by promoting the regeneration of myelin, the protective insulation around nerve fibers. This drug
0
0
0
Ngama has been in the UK since she was 11. She can't return to Cameroon where homosexuality is illegal. GB Boxing backed her visa application, to no avail. Heartwarming that the Refugee team has won a medal, heartbreaking how her story reveals the cruelty of the UK refugee system
Cindy Ngamba's name gets etched in the Olympic record books. @CindyNgamba beat French Davina Michel to reach the 75kg boxing semi-finals, becoming the first ever athlete from the IOC @RefugeesOlympic Team to secure an Olympic medal. Read more: https://t.co/hMZuBIZlof (Photo
48
2K
15K
I've completed this (through my lived experience of MS) & suggest that anyone else with a neurological condition should complete it as well. The more of us that do, the better levels of data and information (and evidence) that we have to work with @NeuroAlliance #GBS #CIDP
1 in 6 people have a neurological condition, including #GuillainBarreSyndrome.That’s why we’re supporting @NeuroAlliance #MyNeuroSurvey. Share your experiences & improve care for people affected by neurological conditions. https://t.co/u4oAcV6SeC
#GBS #CIDP #MFS
0
0
4
