Rebecca O'Connor
@rebeccaoco
Followers
5K
Following
18K
Media
199
Statuses
10K
public affairs @PensionBee | cofounder @goodmoneygirl | Pensions Doctor @Telegraph | #money journalist | author #ESG | lately, #longcovid #longcovidkids
South East, England
Joined December 2008
Happy New Year! And so excited to kick things off with some personal news. I start today as director of public affairs at @pensionbee. Couldn't be happier and just can't wait to get going 🥳
23
3
105
Christmas won’t be kind to children with acute neuropsychiatric onset Professional #PansPandasHour ignorance is not neutral — it harms @WillPsyc
@greenwooda1
@CornwallEPS
@DoncasterEduca1
@SandwellEdPsych
@laurendawkins
@DrFreyaEP
@amannkdhaliwal
@MinousheEdPsych
@DrSarahCassidy
Our new podcast episode shares educational insights and practical resources for Educational Psychologists working with young people with PANS or PANDAS. Find the podcast and complementary article here: https://t.co/u3cOOQsHQh
0
5
7
This Christmas, children will suffer sudden, severe neuropsychiatric collapse. NHS staff must stop dismissing this and follow NHS guidance. #PansPandasHour
@anne_delaney @ShaunLintern @alisonacton @branwenjeffreys @PhilipSimeITV @Georgia_Gould @BeccaBarry @claudiahammond
“PANS and PANDAS are recognised as clinical syndromes. [...] We welcome the collaborative work that the PANS PANDAS Steering Group is undertaking with professional bodies and those with lived experience to increase the evidence base in this area." https://t.co/OwYdouFCBi
0
6
6
@Georgia_Gould Please consider reaching out to @PANSPANDASUK. It is disheartening for PANs parents to continue to feel left out of SEND rhetoric. Children with acute onset SEND need from neuropsychiatric illness face extraordinary challenges. There is a charity youth board @Jane_Harris77
1
2
4
With Group A Strep cases surging and incidents of RSV, influenza, and COVID on the rise – all infections that can trigger PANDAS and PANS – it is more important than ever that parents, physicians, and mental health professionals are aware of these neuroimmune disorders. 💚💚💚💚
0
10
14
Schools reward kids for: 🚩 Not being sick 🚩 Not being injured 🚩 Not being disabled 🚩 Not grieving a loved one 🚩 Not going through a crisis 🚩 Not being a child carer 🚩 Not coming from an abusive home 100% attendance awards - what a ridiculous and cruel concept.
67
289
1K
How can an illness that came from an infection be psychological? It literally makes no sense
35
47
504
https://t.co/ODD10ngvRb A woman died of complications of #EhlerDanlos syndrome she had previously had a doctor accused her of faking her illness and wrongly diagnosed her with factitious disorder (#FII) a mental health condition similar to #Munchausensyndrome. She was even
independent.co.uk
After being misdiagnosed and committed to a psychiatric ward, Steph became a tireless advocate for Ehlers-Danlos Syndrome patients before her death at the age of 33, Bevan Hurley writes
15
87
293
Whether it's autoimmune encephalitis, PANS/PANDAS, Hashimoto encephalopathy or limbic encephalitis, doctors seem to have immense difficulty understanding that dramatic changes in behaviour come from very real physical pathology.
1
6
6
My child has missed 3 days of school since Sept. 1x injury 2x illness He’s now exempt from all end of term rewards despite having enough house points, no sanctions and glowing reports from all teachers. If this happened in a workplace, adults could sue for discrimination.
276
694
17K
@tombennett71 What about a child with immune mediated neuropsychiatric syndromes. Recognised by @NHSEngland but seemingly ignored by all @educationgovuk narrative.
panspandasuk.org
Welcome to PANS PANDAS' news blog. This post is titled: NHS England welcomes work of PANS PANDAS Steering Group
0
4
5
@SteveChalke Just shows you how bad the rates of illness are right now. Have you seen the work of @CleanAir4KidsUK for campaign for HEPA filtration in schools which is shown to dramatically improve wellbeing plus the added benefit of decreasing sickness rates. @erbrooker
2
13
55
@JamesTitcombe In light of this week’s statement from @NHSEngland, I’m hoping that Patient Safety in 2026 includes a thought to children with @PANSPANDASUK. Many of which will be languishing in psych wards this Christmas receiving incorrect treatment.
panspandasuk.org
Welcome to PANS PANDAS' news blog. This post is titled: NHS England welcomes work of PANS PANDAS Steering Group
0
5
5
Last yr our dd was dx with FND. She used a wheelchair for 8 months. We had to go private for a 2nd opinion. She was dx with B12 deficiency & started injections in Aug 24. In Nov she was able to walk. This is her handmade tutu for a 🎄show. FND is a thief that can steal dreams
2
8
21
How fantastic is this! @PANSPANDASUK nearly at target for the @BigGive Our little community packs a big ol’ punch! We won’t stop fighting for kids with neuropsychiatric conditions. Thank you so much to everyone who shared/donated. Life. Savers. @RealDeniseWelch @DrNighatArif
In the past few hours our tree has gained not one, not two, but THREE more baubles! We are so grateful and proud of our supportive community. Every £1 you give will be matched, thanks to the @biggiveorg and @candismagazine Get involved here: https://t.co/JRcc70AeWF
0
3
6
🔔Vital press release from Long Covid Physio The government needs to take action
Please see the attached images and alt text descriptions for a press release from @lc_physio @LongCOVIDPhysio urging immediate action on the U.K. Covid-19 Public Inquiry findings from Module 2.
2
12
28
I’m just begging you, begging you to make people aware, educate the doctors, and make sure that we finally understand that this is the time. It’s been 30 years since PANDAS was first discovered as an outgrowth of research on Sydenham Chorea—30 years
1
16
22
https://t.co/mDOUASUjEb Please share @BigGive . Kids with neuroinflammatory conditions should’nt have to rely on the sacrifices of parents and charity for essential care—but right now, that’s the reality. @MichaelRosenYes @RealDeniseWelch @frankcottrell_b @DrNighatArif
0
3
3