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PANS PANDAS UK Profile
PANS PANDAS UK

@PANSPANDASUK

Followers
4K
Following
19K
Media
992
Statuses
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UK charity raising awareness and understanding of post-infectious neuropsychiatric disorders. We support families and campaign for better care.

United Kingdom
Joined November 2016
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@PANSPANDASUK
PANS PANDAS UK
2 days
A reminder for young people across Scotland who received their exam results today. We know PANS or PANDAS may have affected your educational experience. We are here for you. #NoWrongPath #PANSPANDASSupport
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@PANSPANDASUK
PANS PANDAS UK
2 days
Join our Challenge of collectively conquering the longest distance in the UK, 874 miles, and demonstrate how families across the length (and breadth!) of the UK are affected by PANS and PANDAS. Get involved at
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@PANSPANDASUK
PANS PANDAS UK
2 days
Young people with PANS or PANDAS. We see you. #NoWrongPath #PansPandas #PansPandasSupport
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@PANSPANDASUK
PANS PANDAS UK
3 days
Our new leaflet contains essential, concise information about PANS and PANDAS, including diagnostic criteria and treatment options. Scan the QR code or click here to print a copy:
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@PANSPANDASUK
PANS PANDAS UK
6 days
Layla is an incredible 5-year-old using her endless energy to make a difference. Support Layla at #panspandasuk #challengeforpanspandasuk
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@PANSPANDASUK
PANS PANDAS UK
6 days
Three new opportunities for families affected by PANS or PANDAS to contribute to vital research. Find out more at
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@PANSPANDASUK
PANS PANDAS UK
8 days
Get hands-on for Challenge for PANS PANDAS UK! Offer a helping hand in return for donations. Every penny raised will help us to support more families facing the challenge of PANS or PANDAS.
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@PANSPANDASUK
PANS PANDAS UK
9 days
If you are a young person with questions about PANS or PANDAS, you're not alone! Visit
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@PANSPANDASUK
PANS PANDAS UK
9 days
Discover our resources for families, healthcare and education professionals, and individuals affected by PANS or PANDAS. Visit to learn more.
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@PANSPANDASUK
PANS PANDAS UK
10 days
Thank you @SEND_Network for collaborating with us on our new resources for educators! .Download today:
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@PANSPANDASUK
PANS PANDAS UK
15 days
Take part in UK guideline development. As part of the PANS Clinical Guideline Development process, we are looking for people directly affected by PANS or PANDAS to participate in a Delphi Process. Find out more about this opportunity here:
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@PANSPANDASUK
PANS PANDAS UK
16 days
Are you a caregiver for a young person with PANS or PANDAS? Share your experience of current treatment methods with the Patient and Public Involvement Team @uniofexeter
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@PANSPANDASUK
PANS PANDAS UK
20 days
Thank you to @sos_sen for this webinar, highlighting EHCP barriers faced by families affected by PANS or PANDAS. For advice and vital information, watch here:.
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@PANSPANDASUK
PANS PANDAS UK
20 days
The next edition of our community newsletter will be sent soon! Sign up today to receive the latest news and important updates about PANS and PANDAS.
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@PANSPANDASUK
PANS PANDAS UK
21 days
PANS and PANDAS are neuropsychiatric conditions with sudden emotional and behavioural symptoms. Learn more about PANS and PANDAS, and access support resources, at
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@PANSPANDASUK
PANS PANDAS UK
22 days
A HUGE thank you to The James Tudor Foundation for their generous funding, enabling us to provide information and raise awareness of PANS and PANDAS amongst healthcare and education professionals❤️.
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@PANSPANDASUK
PANS PANDAS UK
23 days
How will you conquer our Summer Challenge? From dog walking to work breaks, treadmills to city strolls, set your goal and get involved today:
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@PANSPANDASUK
PANS PANDAS UK
24 days
Does your child experience restricted eating or unusual patterns of eating? Take part in this significant research project, supported by PANS PANDAS UK. Find out more:
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@PANSPANDASUK
PANS PANDAS UK
24 days
Becoming a Friend is the easy way to support us. Together, we can advocate for change for everyone living with PANS and PANDAS. Get involved:.
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@PANSPANDASUK
PANS PANDAS UK
28 days
Sign up for #ChallengeForPANSPANDASUK to get active this summer and raise vital funds for families across the UK living with PANS and PANDAS: .
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