Son has continuous cough since early Nov. Can't get to sleep. Barely tolerated in classroom on few days he's there. GPs at wits end, referred to #paediatricrespiratory @OUHospitals. Appointment end July! #NHS that's way too long to wait for a young person missing school.

Are you a family carer of someone with a severe learning disability? You can connect with others who understand through our various peer support options provided at the CBF: https://t.co/j13mE4laAm

Challenges of parenting children born before 24 weeks of gestation https://t.co/NLNGBA2AEJ Good articles, challenges for children & families. Generalisability of this Swedish study for 🇬🇧/🇺🇸 tho? Family and social support was good, support economically & at school widespread

So happy to have run my second half marathon this morning in 1h53. Much more importantly, raising over £4000 for MND Association Oxford Care Centre, in memory of our dear Mum. Thank you so much to all who sponsored us, you can still donate at https://t.co/Ym1gX3LZzg

Up at 6:30am to beat the heat on last long training run (22km) for half marathon on 7 July. Fund-raising with family for the outstanding Oxford #MND Care Centre who supported my Mum and us with such kindness. Thank you for any support you can offer. https://t.co/kGRnSyV2qv

We are running a half marathon on 7 July in memory of my amazing mother. Please help us to raise funds for the Oxford MND Care Centre who supported her and our family with incredible kindness through our long, painful journey with #MND. Thank you. https://t.co/kGRnSyV2qv

Lockdown habit that kept going. German and now Mandarin (much harder).

Please have your voice heard and comment on the NEW Framework for Palliative Care. It’s vital you have your say #PerinatalPalliativeCare #ManagingUncertainty #SupportingFamilies #SupportingPerinatalTeams @NeoPallCare @NNAUK1 @Blisscharity @Tog4ShortLives @TheAPPMuk

Spare 90 seconds to watch & share this great little video with a very important message, from children and young people missing out on school due to unmet special needs.

Congratulations to @samthesparrow for receiving this prestigious award. She is such a powerful champion of children in care and care leavers ⬇️

Please take a look at our new Enhanced e-learningcourse, complementing the ‘Introduction to Neonatal Palliative Care’ course. Adapted from our textbook ‘Neonatal Palliative Care for Nurses’ @duncan_CNSE @gso_jones @KathEvans2 @MckeonCarter @louisewlowe @petty_julia @EmilyHarrop9

3 x ⬆️ in babies born 22 weeks cared for in UK NNUs 3/10 admitted survive to discharge Implications for resources to deliver best care & support parents and staff. @ImperialPaeCH @ImperialSPH @Imperial_PCPH Read @imperialcollege news coverage ⬇️ https://t.co/628wmZzc8i

Impact of revised ⁦@BAPM_Official⁩ extreme preterm framework: risk based approach to provision of survival focused care for babies born at 22 weeks’ gestation in England and Wales 2018-2019 vs 2020-2021. Published ⁦@BMJMedicine⁩ today ⬇️

NEW: Risk factors of secondary school exclusion In our latest post, we identify three variables associated with exclusion in secondary: history of exclusion/suspension at primary, involvement with Social Care, and economic disadvantage. Read more ➡️

My recent report has highlighted some of the distinct challenges that children with SEND face in their daily lives. Ahead of the Government's Disability Action Plan, I have made a series of recommendations with key changes that I would like to see. https://t.co/1HWAPGCrG6

Wise words @Rachel_deSouza: I want to see an overhaul of how we think and talk about disabled children’s experiences: it is not the job of one department, or one funding pot.We must consider what every child needs to fulfil their potential and feel pride in what they can achieve.

Been working hard on these data challenges for several years with @CDC_tweets @TrueColoursTrus @BlogSenco @KarenHorridge. Great to see @ChildrensComm highlighting importance of better data to improve services for disabled children, young people and their families.

Recommendation 3: Central and local government should introduce a consistent, unique identifier for children, to facilitate better data matching between health, education and social care, to ensure disabled children do not fall through the cracks between information systems.

#Data:'The number of children in England who are disabled is not known. There are different definitions and understandings of disability, resulting in a lack of consistent, centralised data' ... 'commissioners do not have a clear picture of the prevalence and type of need.'

Great report from @ChildrensComm with much evidence from YP themselves. Clear recommendations on need for early ID, better data, access to advocacy, ICB focus on school attendance, more school nurses, mental health nurses, LD nurses, health visitors ...