Together for Short Lives
@Tog4ShortLives
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National charity for children's palliative care. Making a lifetime of difference to seriously ill children and their families.
UK
Joined July 2009
There are many opportunities to improve children’s palliative care from the UK government’s new 10 Year Health Plan for England, but also many questions. Read our reaction here 👉🏼
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While we welcome the changes introduced to the Welfare Reform Bill, we're deeply concerned about its impact on families caring for seriously ill children, many of whom could see their benefits frozen. We urge MPs to seek further clarity and protections.
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🚨 Our new report reveals huge variation in local NHS spending on children’s hospice care. This postcode lottery must end. The UK Government must hold ICBs and councils to account for how they commission children’s palliative care. Read more 👉
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For thousands of seriously ill children, children's hospices are a lifeline. But unless vital NHS funding is maintained beyond 2025/26, essential services will be at risk. Urgent action is needed to confirm this funding and increase it. Read more 👉
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RT @radionewshub: Seriously ill children may be denied end-of-life care without further funding for hospices, a charity has warned. Togeth….
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For children like Archie, children’s hospices are a lifeline. But 89% in England say they’ll spend more than they bring in this year – just to stay open. Without more Government funding, essential services could be lost. Read our new report:
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🚨 New from @hospiceuk: Too many seriously ill children in rural areas face extra barriers to palliative care—just because of where they live. We need urgent action to ensure support is there, when and where it’s needed.
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Thank you to @DCPcampaign for organising this vital opportunity to highlight the barriers seriously ill children face in accessing joined-up education, health & social care. We look forward to working with Government to build a system that works for families.
The first objective of any reform to the SEND system is to improve outcomes for children who have been let down for far too long. We're listening and we're acting. We will build a support-first system where every child can achieve and thrive.
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RT @EACH_hospices: As #ChildrensHospiceWeek comes to a close, we’re thinking about what our care is really about: ensuring the best possibl….
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EHCPs are vital for many seriously ill children to access education. But following several reports, we’re concerned new government plans could limit them. That’s why we’re proud to support Hannah and @DCPCampaign’s fight to save EHCPs. 👉
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RT @HelenAndDouglas: A massive thank you to Francesca & Darren, who took on an incredible 24-hour cycling challenge, ‘Spin for the Stars’,….
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Her Royal Highness The Princess of Wales @KensingtonRoyal has written a personal and heartfelt message to mark #ChildrensHospiceWeek. In it she says, thanks to our children’s hospices, families will never face the future alone: @tyhafan @EACH_hospices
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RT @supportCHAS: It’s #ChildrensHospiceWeek, we’re proud to join @Tog4ShortLives & hospices across the UK in celebrating the care that fami….
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RT @HelenAndDouglas: This #ChildrensHospiceWeek we’re celebrating the magical moments that happen at Helen & Douglas House and our Stay & P….
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RT @DemelzaCharity: Extraordinary Children. Extraordinary Care. Demelza is here. This #ChildrensHospiceWeek we proudly stand with @Tog4Sho….
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We understand MPs’ decision to ban health professionals from raising assisted dying with under 18s. But families and palliative care services will still need guidance on holding conversations about this issue. Read our statement 👉
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To give all children, including those who are seriously ill, the opportunity to succeed, ministers must act now to fill the funding gaps they face. Read our full reaction to today’s #spendingreview here 👉🏼
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On Wednesday, the Chancellor will announce the outcome of Spending Review 2025. This is a vital moment for seriously ill children. We've broken down why it matters – and why it must deliver sustainable funding for children’s palliative care.
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We stand with @tyhafan & @HHTGhospices in asking Welsh political parties to pledge fair and sustainable funding for children’s hospices in their manifestos. Covering 25% of care costs by 2025 & 30% by 2030 would make a huge difference to seriously ill children & families.👇.
We've today joined with @HHTGhospices in calling on all Welsh political parties to include fair and sustainable funding for Wales' children’s hospices in their party manifestos. Please share: . #ChildrensHospiceWeek
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Freezing the Universal Credit health element—and delaying access until age 22—will push seriously ill young people further into hardship. We stand with @Scope in calling on the govt to scrap these cuts. Add your name to support here:
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