Julie Sullivan
@CureLongCovid
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Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) 💕
Boston, MA
Joined March 2024
🧵Boston Area Long COVID Research. I want to highlight some of the research and clinical trials that are currently enrolling participants. Please consider participating!.In no particular order. 1/.
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It looks like CareEvolution serves as the platform to run the study enrollment, logistics and data. Hopefully more details are coming.
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Very interested in this- the drug is not mentioned. Is that intentional? Will participants know what treatment they are receiving? TIA for any info!. Remote Long COVID Trial to Evaluate Repurposed Drug Across US
contagionlive.com
Julia Moore Vogel, PhD, says the LoCITT study aims to expand access through a fully remote design using CareEvolution’s MyDataHelps platform.
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Leitner speculates that covid-19 may impair the immune system’s “memory” of past infections, potentially making even healthy people more vulnerable to future pathogens.He wonders whether the virus leaves lasting scars on the immune system’s T cell defences
bmj.com
“Immunity debt,” a theory to explain the global surge in non-covid infections since pandemic restrictions were lifted, is increasingly being challenged by emerging evidence. Nick Tsergas reports...
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RT @MattMcGorry: We are currently in a C😷VID surge. Follow @michael_hoerger to see the CDC’s wastewater data translated into numbers that….
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What are your throughts on Epipharyngeal Abrasive Therapy for a case like this? 🤔.
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Would antivirals be the preferred treatment? If so, which ones?.
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I'm thinking about underlying inflammatory responses causing things like periodontal fibrosis, recurrent sore throats, sinus infections, globus sensation.
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Hive mind: Viral reservoirs. Can we think out loud about this? If people present with suspected viral reservoirs causing ongoing issues in areas like the pharynx, GI tract, sinuses, tonsils, dental issues etc. Is there a way to confirm this? And are we looking for covid or an.
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what a time to be alive.
FDA warns public not to eat possibly radioactive shrimp sold at Walmart.
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I’m on a lake with what might be the greatest dog ever. Her name is Possum. She’s a rescue, surrendered by a sketch breeder after she had a uterine infection. 10/10. I’m obsessed with her
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RT @michael_hoerger: Sunday, Sunday, Sunday!. I'll talk about the CDC's decision Friday to dramatically reduce the quality of COVlD surveil….
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🧵🧵🧵.
It’s very frightening for many to even consider that #COVID infections are causing neurological damage but there are scans now. It’s impacting the frontal lobe. This is going to change society. The sooner we confront this the better or the damage will continue.🧵.
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RT @JackHadfield14: 🔬New study shows SARS-CoV-2 causes direct damage to heart cell mitochondria - even months after recovery - helping pote….
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RT @portna: Don't believe me. Read the science. Google Long COVID. COVID & heart disease (CVD). COVID & diabetes. COVID & cancer. COVID & i….
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RT @dysclinic: The amount of negativity I received here last year when we said the same thing in our paper on exercise in #POTS. Glad we….
mdpi.com
Exercise is a vital component of health and is commonly utilized as a non-pharmacologic therapy for many disorders, including postural orthostatic tachycardia syndrome (POTS). However, exercise...
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I have to turn my attention back to work, I’m not ignoring your comments. But, I also am not going to engage back and forth on it. I stand by my opinion that one sentence that CORE agreed may be ambiguous and agreed to be change does not warrant the accusations against them that.
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Here’s the link so you can read it 🩵.
1/ Millions are living with long-term illness after infection, often without answers. Today, we’re launching the USA's first clinical manual for treating Infection-Associated Chronic Illnesses (IACIs). #LongCOVID #MECFS #Lyme. 🔗 Read the announcement:
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I understand that you have mistrust of providers and have many bad experiences, believe me, I have talked to literally thousands of patients. But why project that onto your allies? The people who have skin in the game and have devoted their lives for the last 5 years to this.
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I see this time and time again on here and have been on the receiving end of it as well. Feedback, discussion, pointing out that maybe something could be re-worded- all of that is great. But I'm seeing "he's not on our side", "never send anyone to their program". ARE YOU SERIOUS.
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