Please share widely. The 'M.E-Friendly Hospital Charter' and all associated content can now be found in one place on our website!. Check it out! #NhS #Healthcare #pwME.

CPD accreditation isn’t a tick-box. It’s a journey of research, strategy, and high standards. Our blog (April) reveals what it really takes. #Learning #CPD 👉 [ #MEcfs.

Strategic Oversight with Purpose: Non-Executive Director Vacancy -

The DALY score exposes the true toll of ME/CFS: years lost to disability, suffering, and silence. Why is #UK research still underfunded? Find out in our reposted blog. #MEcfs #Health #Justice 👉

📢 Amplify the voices of those too ill to advocate for themselves Let’s turn pyjamas into a statement of solidarity. #BedForSevereME #PJsAndProtocol #SocialImpact #Inclusion #UK 2/2.

🛏️ Wear Pyjamas to Work: In Support of BED for Severe M.E. On Wednesday 29th October, join us in raising awareness for Severe M.E., a condition that leaves many bedbound and medically unsupported. 👚 Swap workwear for sleepwear .💷 Donate £2 per participant . 1/2 #Business.

🛏️ On 29th Oct, swap workwear for sleepwear. Stripy Lightbulb CIC invites #UK organisations to join in with #BedForSevereME, raising awareness & funds for those living with Severe M.E. 💷 £2 per participant.📢 Visibility. Compassion. Change. .#Business.

Read more - #Politics #WelfareReform #pwME 3/3.

1️⃣ Withdraw the flawed DWP training doc (MED-OVCFS~001). 2️⃣ Ensure all future guidance aligns with NICE NG206. 3️⃣ Launch a joint DHSC/DWP review of WCA for ME/CFS (WCA being scrapped but still 'live' for now).4️⃣ Reassess past WCA decisions based on outdated guidance. #UK 2/3.

📢 We've been waiting since 18 July for a response to our urgent letter/covering email @wesstreeting . The DWP's ME/CFS WCA training contradicts NICE NG206 and is causing harm. This demands immediate cross-departmental action. Lives are being impacted. #MEcfs 1/3.

RT @johnpringdns: For more than 16 years, Disability News Service has broken important stories about the discrimination disabled people fac….

More pressure needs to be applied to employers to employ chronically sick and disabled people. Suitable vacancies simply do not exist - at the moment. @leicesterliz . #Politics #Work.

Work in progress. #MEcfs #SocialEnterprise.

The UK Government's welfare 'reform' work is over, but the fight isn't. Stripy Lightbulb CIC has an M.E.-specific solution for fair #disability benefits. The Timms review is our chance. Get involved & help us show a better way! #DisabilityBenefits #MECFS .

It's Friday! Time for a lightbulb moment. 💡 We are on a mission to spark different ways of thinking in workplaces and communities. Follow us! Want more? Subscribe to our newsletter for exclusive news delivered straight to your inbox. ➡️ Subscribe here:

“When you get ME, you kind of realise that all of your skills, your knowledge, your qualifications don’t mean anything, because you can’t put them towards a full-time job anymore, your career’s gone.” (severity dependent)". @serenichron #pwME #SocEnt.

Our article on @LinkedInUK - 'Why Employers Must Step Up: Supporting ME/CFS in the Workplace Isn’t Just Ethical - It’s Essential'. #HR #Employment #Training.

RT @MECentraal: ❗️The Dutch ME community has been shaken by a very urgent situation.38-year-old Sanne is seriously ill due to ME, and has g….

In recent months, we have actively worked/pushed to be a contributor to the Timms Review. We now wait to see if either of our two possible avenues will lead to our inclusion. Keep everything crossed 🤞.

RT @TheCanaryUK: The DWP is now recruiting even more people to spy on benefit claimants. The Canary previously reported on one round of DWP….

With our DWP WCA work, we are so grateful to have been able to draw on the knowledge and experience of national charities (non-M.E), with whom we have collaborated with in a range of groups over the past 2+ yrs. Signposting and connections have proven invaluable. 🙏👊. #SocEnt.