Jill Brattain
@MommaJillB
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Love my family, love my life, but most of all, Love God. Victim of the ALS beast. Miss my best friend.
Indiana, USA
Joined August 2009
New year, new author photo! This will be in B&W on the last page of my forthcoming book, Last Nerve: A Memoir of Illness and the Endurance of Family. And I'll be on a book tour in June, so stay tuned for dates. @End_The_Legacy
@GreenleafBookGr
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Dear Indy hcps, medical students, ... https://t.co/l3flNqh7qo
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Drs. Bedlack and Li providing the latest in Clinical Trials:
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ALS diagnosis and survival linked to metals in blood, urine https://t.co/O1gq0uljpe via @medical_xpress
medicalxpress.com
People with higher levels of metals found in their blood and urine may be more likely to be diagnosed with—and die from—amyotrophic lateral sclerosis, or ALS, a University of Michigan-led study...
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Yelp for ALS? Welcome to @ALSClinicSurvey! PALS and CALS please share your first-hand experience with your ALS Clinic to help others understand what clinics offer as they look for care. It takes 8-10 mins & is eye-gaze friendly. https://t.co/E9zQQZiQqt
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Calling all PALS and caregivers: Help us get to 1,500 @ALSClinicSurvey surveys this week. A record 31 surveys were recorded on Monday, let's keep it going! Take the survey, tell a friend: https://t.co/E9zQQZiiAV
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Hello friends , please check out the ALS Clinic Survey and help your clinic and the ALS community know how your experience was
“Jump in there & do it," with @johndhopkins! Hop On A Cure is partnering with @ALSClinicSurvey to ask PALS & caregivers to take the Clinic Survey. Help people understand what clinics offer as they look for care. It takes 8-10 mins & is eye-gaze friendly. https://t.co/E9zQQZiiAV
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I’m very pleased with the maturation and utility of the #ALS clinic assessment project from @Team_Thriving and The Mappers. And delighted to see this collab with @YourALSguide. Make this tool even better by adding feedback on your ALS clinic today.
The Mappers, a group of ALS advocates and GIS professionals, are asking families to review their clinics for the ALS Clinic Advisor tool. By taking a few minutes, you can help other families find the care that's right for them. Visit https://t.co/ks7BSr4q0c.
@ALSClinicSurvey
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The Mappers, a group of ALS advocates and GIS professionals, are asking families to review their clinics for the ALS Clinic Advisor tool. By taking a few minutes, you can help other families find the care that's right for them. Visit https://t.co/ks7BSr4q0c.
@ALSClinicSurvey
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Hello ALS friends, please take this short survey about your ALS clinic to give important information to fellow pALS and cALS #ALS, #endals, @iamalsorg , @HopOnACure , @alsassociation
The Mappers, a group of ALS advocates and GIS professionals, are asking families to review their clinics for the ALS Clinic Advisor tool. By taking a few minutes, you can help other families find the care that's right for them. Visit https://t.co/ks7BSr4q0c.
@ALSClinicSurvey
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One week left to apply!
Only one week left to apply for the NEALS ALS CRLI in October. An amazing opportunity for anyone impacted by ALS- see flyer for details. Application deadline is July 15th! #ALS #ALSResearchAmbassador. Apply here ➡️ https://t.co/ywNx2X9Eky
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Important piece outlining exactly where EAPs in #ALS are failing the patient population, from my friend, @BrielmaierL. ALS drugs: FDA expanded access program slow in helping patients
statnews.com
An engineer's story: Not being eligible for clinical trials of experimental ALS therapies, I turned to the FDA's expanded access program. That hasn't worked out so well.
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NEALS (Northeast Amyotrophic Lateral Sclerosis Consortium) is seeking self-nominations for the 2024 ALS Clinical Research Learning Institute® (CRLI). The ALS CRLI is a two-day program that empowers attendees to be strong advocates in the field of ALS. https://t.co/37CiRJBrt0
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The Authentic Life Drives Change by Katrina Byrd, is a part of the 2024 Annual Gathering of the Henry David Thoreau Society conference in Concord, MA. Consider making a donation to defray costs of travel. #EndALS
https://t.co/DLQwKF6UAR.+¤cy_code=USD
paypal.com
Help support katrina byrd by donating or sharing with your friends.
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Saw this posted by a super smart woman in one of my favorite FB groups and felt it was too good to keep to myself.
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It’s gonna be fun, thanks Rob! Excited to do this with you!
I'm looking forward to presenting this webinar alongside the amazing Jill Brattain! Thanks to I AM ALS for hosting this event.
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Join Rob and I for a great introduction to clinical trials. Hope to see you there!!
Don't forget, our Clinical Trials 101 webinar is coming up on May 9th! If you're looking for a basic overview of the clinical trial landscape in ALS, this is the webinar for you.
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Don't forget, our Clinical Trials 101 webinar is coming up on May 9th! If you're looking for a basic overview of the clinical trial landscape in ALS, this is the webinar for you.
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