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NEALS Consortium Profile
NEALS Consortium

@NEALSConsortium

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The NEALS Consortium is an international, independent, non-profit group of researchers who collaboratively conduct clinical research in ALS

Joined March 2012
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@NEALSConsortium
NEALS Consortium
5 days
What a week! Thank you to everyone — in person and online — who made the Annual NEALS Meeting unforgettable. Here’s to another 30 years of collaboration and discovery! #NEALS2025 #ALSResearch #CollaborationInAction
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@NEALSConsortium
NEALS Consortium
5 days
It’s incredible to see how much the NEALS Annual Meeting has grown! Each year the room gets bigger, the conversations richer, and collaboration stronger! Dinner, generously sponsored by @alsassociation was a perfect reminder of how far we’ve come together. Thank you! #NEALS2025
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@NEALSConsortium
NEALS Consortium
5 days
🧬 Harnessing Genetics to Understand and Treat ALS Claire Clelland, MD, PhD (University of California, San Francisco) shares cutting-edge advances in gene therapy and CRISPR approaches shaping the future of ALS treatment. #NEALS2025 #ALSResearch
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@NEALSConsortium
NEALS Consortium
5 days
Day 3 kicks off with Uniting for Impact: Updates from the NEALS ALS Organizations Forum. Collaboration across advocacy and research in action. #NEALS2025 #ALSCommunity @alsassociation @iamalsorg @alsunitedorg
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@NEALSConsortium
NEALS Consortium
6 days
NEALS ANNUAL MEETING DAY 2! 2:15 PM – 🔥🔥Hot Topic Session: Gene Therapies 🧬 Don’t miss today’s Hot Topic Session on Gene Therapies — Drs. Glass, Brown, Ahrens-Nicklas & Crooke discuss the future of ALS treatment. #NEALS2025 #ALSResearch
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@NEALSConsortium
NEALS Consortium
6 days
The Scientific Symposium is underway at the NEALS Annual Meeting — Dr. Jeffrey Rothstein (Johns Hopkins) introduces Project Genesis. #NEALS2025 #ALSResearch
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@NEALSConsortium
NEALS Consortium
6 days
🎉 Welcome Back to Day 2! 💡Exciting sessions ahead on clinical trials, innovative care, and the inspiring people shaping the future of ALS research. 🔬 Scientific Symposium: Innovative Approaches and Future Directions for Treating Sporadic ALS starts at 10:20 AM!#NEALS2025
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@NEALSConsortium
NEALS Consortium
6 days
Happening Now! Research Ambassador Panel-
@NEALSConsortium
NEALS Consortium
7 days
🦸‍♂️🦸‍♀️Day 2 Highlight: Research Ambassador Panel! Join us for this inspiring session (8:30am)- Partners in Discovery — Research Ambassadors Driving Change. Dr. Bedlack and the RA's share how lived experience is shaping the future of ALS research. #NEALS2025
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@NEALSConsortium
NEALS Consortium
7 days
🦸‍♂️🦸‍♀️Day 2 Highlight: Research Ambassador Panel! Join us for this inspiring session (8:30am)- Partners in Discovery — Research Ambassadors Driving Change. Dr. Bedlack and the RA's share how lived experience is shaping the future of ALS research. #NEALS2025
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@MGHNeurology
MGH Neurology
7 days
It's the 2nd day of the @NEALSConsortium Meeting! At 7:15am, Drs. Babu and @PaganoniMDPhD will present, “Learnings from EAPs in ALS” and at 3:20pm, Drs. Chibnik, Macklin, and Quintana will present, “Stats Corner: Small Trials, Big Decisions in Early Phase ALS Research” #NEALSMtg
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@NEALSConsortium
NEALS Consortium
7 days
2025 NEALS ANNUAL MEETING! Join us virtually as we spotlight the people and partnerships driving ALS research forward — from EAP updates to Research Ambassadors and hot topics in gene therapy. ➡️ https://t.co/NflDQLvSYU #NEALS2025 #ALSCommunity
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@NEALSConsortium
NEALS Consortium
7 days
🌞Good Morning! Day 2 of the 2025 NEALS Annual Meeting begins! Today’s sessions spotlight clinical trials, care innovation, and the people driving ALS research forward. Kicking off at 8:25am!
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@YourALSguide
Your ALS Guide
7 days
We have created an in-depth page on genetic ALS, counseling, and testing. Learn who may be at risk, how counseling might be helpful, what to consider, how testing works, and where you can get tested. Learn more at https://t.co/rgy3aCoPjk #ALS #ALSGENETICS
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@PaganoniMDPhD
Sabrina Paganoni, MD, PhD
7 days
Tomorrow, October 9, at the ⁦@NEALSConsortium⁩ annual meeting I will share an update on the trehalose EAP at 7:15am. My presentation will outline study results and biomarker plans. #NEALSmtg
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@AndreaBackman05
Andrea Pauls Backman (she/her)
7 days
Nice rebrand for ⁦@NEALSConsortium⁩!
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@NEALSConsortium
NEALS Consortium
7 days
Closing out today’s Day 1 sessions with Industry Roundtable! Dr. Nicholas Maragakis (Johns Hopkins) leading a candid, solutions-focused discussion with industry partners. #NEALS2025 #ALSResearch
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@JinsyMd
Jinsy Andrews, MD
7 days
What an amazing class of 2025 Research Ambassadors! Deeply grateful for their time, dedication, and commitment to collaboration!
@NEALSConsortium
NEALS Consortium
8 days
Wrapping up an amazing two days at the NEALS ALS Clinical Research Learning Institute®! What an incredible group of newly certified ALS Research Ambassadors — committed, insightful, and ready to make an impact in ALS research and advocacy! #ALS #CRLI #NEALS2025
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@NEALSConsortium
NEALS Consortium
7 days
📑🌟4:30 PM – Poster Session 1 Poster Session 1 is live! Explore new ALS research and meet investigators from across the NEALS network — in person and online ➡️ https://t.co/NflDQLwqOs #NEALS2025 #ALSCommunity
meeting.neals.org
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@NEALSConsortium
NEALS Consortium
7 days
3:30 PM – Industry Roundtable 💬 💭 Up next: Industry Roundtable — leaders from academia and industry discuss innovation, collaboration, and the future of ALS therapeutics. #NEALS2025 #ALSCollaboration
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@NEALSConsortium
NEALS Consortium
7 days
⚡ Dr. Timothy Miller (Washington University in St. Louis) and Dr. Jeffrey Rothstein (Johns Hopkins University) lead the Lightning Science Talks session at #NEALS2025
@NEALSConsortium
NEALS Consortium
7 days
⚡ Lightning Science Talks are happening now at the #NEALS2025 Annual Meeting! Quick, powerful presentations highlighting cutting-edge ALS research💡 #ALSResearch
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