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Your ALS Guide Profile
Your ALS Guide

@YourALSguide

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A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...

Joined September 2022
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@YourALSguide
Your ALS Guide
2 years
After a year of collaboration with families and professionals across the #ALS community, our new ALS Home and Daily Living Guide is now live! A special thank you to @ALSHF for their guidance and support. Visit
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@YourALSguide
Your ALS Guide
4 days
If moving from place to place is challenging, transfer devices like gait belts, transfer boards, and patient lifts can help improve mobility and safety. Learn more at #ALS
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@YourALSguide
Your ALS Guide
12 days
Learn more at #als
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@YourALSguide
Your ALS Guide
19 days
When living with ALS, it is important to learn to conserve your energy so you can continue to do the things that matter most. Find helpful tips at #als
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@YourALSguide
Your ALS Guide
23 days
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@YourALSguide
Your ALS Guide
1 month
We just expanded our Communication page into a longer section with new information about voice banking and cloning, lite-tech options, device access, speech-generating devices, and more. Visit #ALS
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@YourALSguide
Your ALS Guide
1 month
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@YourALSguide
Your ALS Guide
2 months
An ALS diagnosis does not have to stop you from traveling. If you want to visit friends or embark on a new adventure, you can find tips and information at #ALS #ENDALS
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@YourALSguide
Your ALS Guide
2 months
RT @ALSClinicSurvey: Today on Lou Gehrig Day, GeoALS & #MLB commemorate #ALS warriors. 86 years after Lou gave his famous speech, ALS vict….
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@YourALSguide
Your ALS Guide
2 months
This in-depth educational guide includes information on ALS respiratory challenges, support, intervention, and equipment. Learn more at #ALS #ENDALS
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@YourALSguide
Your ALS Guide
2 months
RT @bsw5020: Thank you for your leadership on ALS, @SenatorDurbin, and for sharing our story with @SecKennedy. ALS is urgent and we don't h….
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@YourALSguide
Your ALS Guide
2 months
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@YourALSguide
Your ALS Guide
3 months
RT @iamalsorg: Don't forget about Lou Gehrig Day! Almost all the MLB teams have announced dates for their Lou Gehrig Day games; check out o….
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iamals.org
Learn more about Lou Gehrig Day and all the events that I AM ALS is hosting in partnership with Major League Baseball (MLB) teams around the country.
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@YourALSguide
Your ALS Guide
3 months
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@YourALSguide
Your ALS Guide
3 months
Join us this month to help bring awareness and support to people and families impacted by ALS. #ALS
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@YourALSguide
Your ALS Guide
3 months
Twice a month, we share helpful tips, resources, and information to help you navigate the road ahead. Sign up for our free newsletter at to stay up-to-date on new #ALS content, equipment, and more. #ENDALS
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@YourALSguide
Your ALS Guide
3 months
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@YourALSguide
Your ALS Guide
3 months
None of the drugs approved for ALS are as effective at extending life and improving quality of life as established interventions like noninvasive ventilation and best nutrition practices. Learn more at #als #endals
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@YourALSguide
Your ALS Guide
4 months
Caregivers sometimes feel guilty for taking care of their own needs. But the better you care for yourself, the better caregiver you will be. Read more at #als #alscaregivers #SelfCareMatters
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@YourALSguide
Your ALS Guide
4 months
As ALS progresses, you may notice changes in your ability to chew, swallow, or feed yourself. Learn about devices and techniques that can help you continue to eat safely and more independently: #als #alsnutrition
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@YourALSguide
Your ALS Guide
4 months
If you are a Veteran living with ALS, you should be eligible for significant service-connected benefits. Learn more at #ALS #ALSveterans
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