I AM ALS
@iamalsorg
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I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
Joined November 2018
We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ https://t.co/VhKhQrJx4S
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Want to learn more about the ALS Congressional Caucus and get involved? JOIN OUR WEBINAR tonight! RSVP NOW @ https://t.co/0mArwXjdrv
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Thank you for recognizing Hispanic Heritage Month with us! We hope you'll share all of our newly translated pages and help them reach Spanish speakers who need them, including this one; we have several peer mentors who speak Spanish on the roster! https://t.co/obc7zI7Vre
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Miguel was diagnosed with ALS at the age of 42. His family was split between the US and Aruba and at 9 & 13, his younger kids became his part-time caregivers until he passed. ALS is cruel, but we’re DETERMINED to find real treatments & keep families like Miguel’s together.
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Our current policy unintentionally excludes the spouses of Veterans who die from ALS from receiving compensation benefits. Justice for ALS Veterans would change that, providing relief to thousands of families nationwide! SUPPORT Justice for Vets TODAY @ https://t.co/uE0PCPZXac
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Happy Indigenous Peoples’ Day! Indigenous Peoples are underrepresented in the ALS community and face unique barriers to receiving care. That’s why we’re pushing to change that through the Natural History Studies funded by ACT for ALS!
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Thanks to you, our #PushforProgress campaign has brought a HUGE new wave of community members pushing for a cure! DONATE $4 TODAY to keep this momentum going → https://t.co/OeIFrrnh7g
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ALS clinical trials are a critical source of hope and promise for people living with ALS, and not speaking English shouldn't be a barrier to participation. Check out our Treatments and Trials page, now in Spanish: https://t.co/NGx7Fj0Gnx
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Progress means something different to each of us. So caregivers, we’d like to hear from you— what does progress look like to you?
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Meet the newest member of the ALS Caucus: @RepRileyNY! Huge thank you to Scott Daly & Mary Kusior for making this happen. YOU can be the one to make a difference in your district; see if your elected officials are on the Caucus (and ask them to join) here: https://t.co/VMQkkbPwYG
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Looking to build community and connect with others impacted by ALS? Join a support group TODAY @ https://t.co/hqCSnYBBQJ
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Osiel Mendoza is a community member currently living with ALS. Through telling the story of his progression, Osiel is pushing for a future without ALS.
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October is National Disability Employment Awareness Month! After being diagnosed with ALS in 1963 at 21 years old, Stephen Hawking made HUGE contributions to black hole radiation theory and transformed the field of physics.
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📣Explore Medicare Open Enrollment for 2026 with @CMAorg @iamalsorg and the Cures Collective This newly recorded webinar covers Enrollment basics with a focus on considerations for people with neurodegenerative disorders and other chronic conditions. https://t.co/FMFeeCknaW
medicareadvocacy.org
__________ ___________ Description The Center for Medicare Advocacy’s popular yearly webinar is for anyone dealing with Medicare enrollment. Experts cover the basics surrounding Medicare’s Open...
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Several of our most popular ALS resources are now available in Spanish! Check out our resource with everything you need to know about Social Security Disability Insurance (SSDI), now en español: https://t.co/3UROCBMyyb
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ACT for ALS has made a HUGE impact, bringing us closer than ever to a cure for ALS. But we need to push for fully funded reauthorization to keep this critical funding—and collaborative work—in place next year. JOIN US TODAY @ https://t.co/mr09LldAKa
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Day 3 kicks off with Uniting for Impact: Updates from the NEALS ALS Organizations Forum. Collaboration across advocacy and research in action. #NEALS2025 #ALSCommunity @alsassociation @iamalsorg @alsunitedorg
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HAPPY WORLD MENTAL HEALTH DAY! If you’re impacted by ALS, don’t forget to take care of yourself. Today and always. Find a support group TODAY @ https://t.co/hqCSnYBBQJ
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ALS can be incredibly isolating. Share your hard-earned knowledge with someone who needs it. Get that first-hand knowledge from someone who knows exactly what you're going through. All as part of our Peer Support Initiative! Learn more: https://t.co/UEy9TTsRRM
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HAPPY BIRTHDAY to our wonderful friend, co-founder, changemaker, and leader, Brian! We're so grateful for you. Drop your birthday wishes for Brian in the comments 👇
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Since we launched our #PushforProgress campaign on September 1, we’ve helped support over 100 people impacted by ALS. And we couldn’t have done it without you. THANK YOU for all your hard work, community! 💙🧡
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