I AM ALS
@iamalsorg
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I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
Joined November 2018
We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ https://t.co/VhKhQrJx4S
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ICYMI: Last night, our founders Sandra and Brian shared the (virtual) stage with Eric Dane and his "Brilliant Minds" colleagues Michael Grassi and Dr. Daniela Lamas. Watch the compelling, honest conversation here: https://t.co/VnRNhy45mD
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November was National Family Caregivers Month, but we'll NEVER stop advocating for ways to lighten the load caregivers too often carry alone. EAPs have provided telehealth advancements in ALS treatment that will make life easier for people living with ALS AND their loved ones.
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Community, 2025 gave us hope. YOU gave us power. Thank you for bringing us closer than EVER to a cure. More details soon!
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TOMORROW—Our monthly support group for people processing the loss of a loved one who lived with ALS. The holidays can be isolating when filled with memories of a loved one you used to celebrate with. Find healing in a safe, collective setting TODAY @ https://t.co/hqCSnYBBQJ
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Guess what? This month, we're honoring YOUR hard work! We can't say how yet, but stay tuned—we'll have more details to share soon.
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Happy Giving Tuesday! DONATE $7 TODAY to help us hit our goal by midnight @ https://t.co/pp6SbG0UuG!
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A HUGE I AM ALS thank you to Carmen, Ashley, @veronica_freund, Lily, Denise, Mike, Allie, Kendra, Will, and @sabrevaya for sharing their stories last month to spotlight the incredibly difficult yet unseen work caregivers do. Drop a "thank you caregivers" in the comments!
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Sign up for our newsletter TODAY for a special GivingTuesday surprise! Hint: @realericdane will be there. Don't miss out! 👀 SIGN UP @ https://t.co/xKgvj19iym
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Anyone whose life has been touched by ALS knows that the grief comes in stages, each new wave triggered by another loss—mobility, speech, and eventually everything else. Caregivers are at the front lines working through EVERY stage, and we can't thank or honor them enough.
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Sandra knows firsthand the pain of seeing a loved one suffer. Caregivers—we see you, and we're honoring YOUR journey. The panic-filled late nights, the anxiety when you hear something fall, we see it all, and you are not alone.
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Sandra is a tireless ALS advocate, wife, and caregiver. Her ALS story began with our other co-founder, her spouse Brian Wallach, being diagnosed in 2017 on the day she brought home their second daughter from the hospital. We can't wait to share their story with you!
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Will's story highlights the highs and lows family caregivers face when their loved one has been diagnosed with ALS. Moments of joy are often followed with a heartbreaking reminders of what this disease takes from you. #ProgressisPersonal
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Will Plews-Ogan is a loving son and husband and was caregiver to his father, Jim, after Jim's ALS diagnosis. Jim built an online ALS advocacy community through Jim's blog and their whole family fought HARD for progress. Stay tuned for his story! #ProgressisPersonal
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Community, you may already know Kendra Womack. She is co-chair of Many Shades of ALS, a team that works to make the ALS community more representative a dedicated volunteer, and a caregiver to her mother, Elaine. Watch this space for her story! #ProgressisPersonal
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Community, you may already know Kendra Womack. She is co-chair of Many Shades of ALS, a team that works to make the ALS community more representative. She's a dedicated volunteer and was a caregiver to her mother, Elaine, who had ALS. Watch this space for her story!
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We're partnering with @brothagency to bring awareness and find answers to two major questions: why are Veterans more than two times as likely to be diagnosed with ALS, and how can we change that? This is Operation: END ALS. JOIN US TODAY @ https://t.co/Rk8eCV1B0Y
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Community, Happy Thanksgiving! What's your favorite Thanksgiving dish? Tell us in the comments below! 👇
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Introducing OPERATION: END ALS. We're working with @brothagency to raise awareness about the elevated ALS risk among Veterans and push for answers. JOIN US NOW @ https://t.co/vnHHtYaHzD
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Eric Dane received a 10-minute standing ovation from the "Brilliant Minds" crew when he showed on set amid his ALS diagnosis to film a guest role. “I have never seen this happen in my entire career, but he essentially got a 10-minute standing ovation after shooting that scene,
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