Rob Faulstich
@RobFaulstich
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Dad, husband, and retired pharma guy advocating for everyone impacted by ALS. There is hope but we need urgent action to make it real.
Joined November 2011
Being a caregiver can feel like an expression of love while also feeling lonely and isolating. Come to I AM ALS’ primary caregiver support group – you’ll be welcomed with open arms by people who know exactly what you’re going through. #CallingAllCaregivers
iamals.org
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with oth ...
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The Artistry of ALS is back! We got lots of amazing art submissions, and we've put them all in a virtual gallery for your viewing pleasure. We'll also have a panel discussion with the artists, just like last year! Join us on November 14th at 7pm ET:
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We're so excited to "pitch in" with @GuaranteedRate for this fundraiser! Rate is matching all donations 1:1 through tomorrow (Nov. 8). Give at https://t.co/CeWQVi8LJ1 to double your impact to end ALS. Thanks to I AM ALS' very own Hope Feuling for this video! #RateALS #GrowforGood
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The generosity of our donors is something we’re grateful for every day. As we approach giving season and the season of gratitude, we hope you’ll consider making your end-of-year gift today to help us meet our goals and set us up for success in 2025.
iamals.org
Join I AM ALS, a patient-led movement by the ALS Organization in Washington, DC, to end ALS. Get support, fund research, and advocate for change!
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Only a few days left to register for our special screening of LUKi and the Lights! This animated short film is designed to help children understand ALS. Join us for a screening and a Q&A with the film's creators on November 12th at 7pm ET!
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Want to see the lab at ALS TDI but can't make it to Boston? Schedule a lab tour to walk through our lab virtually! https://t.co/jxafxp5XRD
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Any plans for your Friday night? How about a movie night? For Love and Life: No Ordinary Campaign tells the inspiring story of I AM ALS’ co-founders as they turn their pain into purpose by founding I AM ALS. Stream the film on Amazon Prime! https://t.co/gRtOHX47hb
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As part of our #CallingAllCaregivers campaign, we created a Kudoboard where you can send shoutouts to the amazing caregivers in your life! Think of it as a big communal thank you card. Write a note to a caregiver and read what others have written:
iamals.kudoboard.com
Kudoboard empowers users to celebrate the moments that matter.
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Reminder: this month's Social Hour is coming up this Friday! Join us on May 24th at 4pm ET for a no-agenda, no responsibilities video chat with your fellow ALS advocates.
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Who will be in DC next week? We’ll be there repping @R1_Crew / The Mappers, The ALS Problem Solvers and IAA’s Clinical Trials Team. Can’t wait to connect with others.
Okay, it's starting to feel real... we're so excited!! Reminder: all of the Summit panels have a virtual attendance portion, and it's not too late to sign up. https://t.co/sHumHgSilb
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Okay, it's starting to feel real... we're so excited!! Reminder: all of the Summit panels have a virtual attendance portion, and it's not too late to sign up. https://t.co/sHumHgSilb
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Hope you can join the team for Clinical Trials 101. Thursday, May 9, 6 pm ET https://t.co/CpYhiLKNHK
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Don't forget: our Clinical Trials 101 webinar is TONIGHT at 6pm ET! You won't want to miss this thorough overview of the basics of clinical trials. Sign up to attend:
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We’re just 1 week out from the third annual #MusicHeals benefit concert for Hop On A Cure! Don’t miss this year’s great lineup for an even better cause. There’s still time to get $50 off your ticket using code “ZAM50” at checkout: https://t.co/LZeBhZ9Mg9
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I'm looking forward to presenting this webinar alongside the amazing Jill Brattain! Thanks to I AM ALS for hosting this event.
Don't forget, our Clinical Trials 101 webinar is coming up on May 9th! If you're looking for a basic overview of the clinical trial landscape in ALS, this is the webinar for you.
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Don't forget, our Clinical Trials 101 webinar is coming up on May 9th! If you're looking for a basic overview of the clinical trial landscape in ALS, this is the webinar for you.
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May is ALS Awareness Month, and we can't think of a better way to recognize it than with our annual flag display. But this year we will have even more to do in DC! We hope you'll join us. Learn more:
iamals.org
This page has everything you need to know about the I AM ALS 2024 Community Summit and related ALS Awareness Month events in Washington, DC from May 29th – ...
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"Good Morning, Believers!” performed by John Driskell Hopkins & Emily Saliers, is a song of hope & community. It's our fight song: the lyrics inspire us to keep going until we #cureALS. What song motivates you? Written by @johndhopkins, @EmilySaliers, @BrianBisky, #SeanMcIntyre
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We are proud to support Dr. Stanley H. Appel's work at #HoustonMethodist, pioneering the search for new ALS treatments. Last weekend, @johndhopkins & our team visited the Houston Methodist. Hop met other research supporters while at @RODEOHOUSTON performing with @zacbrownband.
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In collaboration with @DNAstack and @Verily, Target ALS has launched a first-of-its-kind data portal that will provide no-strings-attached access to comprehensive datasets and analysis tools to fuel the discovery of treatments and biomarkers for #ALS. https://t.co/KZdvaJKSu6
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