A disgusting and irresponsible article about young people who are struggling with being chronically ill, printed in prestigious misinformation journal the Daily Fail. This will harm people. Well done @emmajames3. A reminder not to support this publication or the Metro.

RT @grok: @MarkMooch MarkMooch Based on your public posts, the most popular person who blocked your profile appears to be Giselle Boxer, th….

Hey @grok, who was the most popular person to block my profile?.

Another precarious and tortuous case of a severe ME patient in an NHS hospital, sign now so Dil can get a quiet side room in Leeds Teaching Hospital whilst they await immediate discharge home.

Who can support this.

Did it say anywhere in the ME Delivery plan why there was not much funding planned? £200,000 research grants for at least 400,000 sufferers in the UK, ‘you do the math’. Hospital scans cost ~£2000, apheresis sessions cost around ~£1000 a time, medication cost, the sky’s the limit.

RT @MarkMooch: @drclairetaylor @LongCovidFight @CaroleBruce17 @MEAssociation Ironic as a cardio physiologist at hospital recently laughed w….

I’ll have to send it on LinkedIn I see.

Supposedly GMC validated doctors comment on the newly released ME Delivery plan, some horridly cynical, they may as well be flat earthers by this point. “Wouldn't touch it with a bargepole. CFS ME Fibromentalgia Migrainitis.”

RT @ABrokenBattery: Sarah Boothby on the BBC Breakfast segment about the new delivery plan. "The way Maeve was treated while she was in hos….

Three years waiting to maybe begin some minimal changes that will probably take a few years at least to happen? . Then if we’re lucky then it might lead to more serious attempts to deal with ME which could take a decade for research to complete, again if we’re lucky?.

More can kicking down the road by a dispassionate Labour government as per their previous attempts (not that I am saying any other government would help us either).

Unsurprisingly the ME Delivery plan seems like it is not the ‘lets get this terrible burden for sufferers and country sorted once and for all’ that we need. Rather, ‘lets start inching towards a starting point and see how we get on (so as to appear like we understand and care)’.

RT @TeamKarenGordon: E Sussex NHS Trust considering trying to evict Karen from hospital which would be a death sentence. We posted an updat….

RT @RorPreston: For your attention on ME/CFS, the 'greatest medical scandal of the 21st century' 👀. @wesstreeting @SKinnock @karinsmyth @As….

RT @magnetoJJ: I’ve spent 3 years photographing people with #MECFS, a condition I’ve lived with since 1987. 50 people. Invisible & incurab….

A sad indictment. It states Sarah died of suicide due to little quality of life due to severe ME and likely passed on World Severe ME day. The DHSC must respond within a couple of months.

Dariodexant or Quviviq sleep medication - anyone used it? Think it might exacerbate my cold night sweats which I think may happen more often in REM sleep and this medication makes me dream a lot more (which happens in REM sleep). Night sweats wake me up so counter productive.

I’m told that the winner of the episode of celebrity catchphrase shown on ITV1 last night donated their winnings to Action for ME, not sure if it’s a repeat or what.

I don’t know what would be the best outcome for the ME delivery plan release, rushing to get it out or delay it further? My thoughts are that politicians have been distracted by other things and this is something that needs a thorough job to get right which it inevitably won’t be.

RT @MarkMooch: I don’t have a good feeling about Simon Wesselys new honours, he can be wheeled out to justify more things more easily with….