1/ 11🧵 Covid is a vascular disease 🩸. We need to stop thinking of it primarily as a lung 🫁 disease. I hear lung Doctors says ‘we don’t see much on the chest X-rays in #longcovid’. The rheumatologists say ‘we don’t see raised inflammation on the blood tests in #LongCovid’

Injustice anywhere is a threat to justice everywhere

@drclairetaylor I just thought "surely that happens in adults, too"

And AANS rather than AAND. Or Taylor’s syndrome 🤷🏻‍♀️ since no one else is talking about these things.

There is no similar diagnosis for adults but I have seen the same thing happen. Perhaps we should call it AAND… It’s all inflammation affecting the brain

These are not ‘naughty’ children. They have not developed depression overnight. Parents-keep an eye out for how your child is after an infection. Teachers- such a good course to do so you can identify it Diagnosis means better management. There are some treatments.

Free training *teachers* PANS Paediatric acute neuropsychiatric syndrome - sudden appearance of OCD, mood changes, food restriction, tics and more Often caused by a pathogen. Aberrant immune response. Covid-19 cause cause PANS PANDAS- due to strep throat

If you know someone with ME/CFS or Long Covid -read the blog. Read it for Bridget. -empathize She didn’t give up. She spoke out. We will keep pushing for truth, for care, for change. Rest in peace You wrote beautifully. #MEAwareness #MillionsMissing

‘ME is not a mental disorder. Those of us who live with it mourn every day for our former lives that have been dismantled by this illness. We dream of a cure that can give us our lives back.’ https://t.co/8DCEPuakfb

I felt sorry for myself today- with Covid-19 again. But really I’m scared. With luck I will return back to my normal in a few weeks. If not- I join the ranks. The descriptions scare me. Everyone tells a similar story. A hell that no one is helping them to escape.

She was fierce, clever and FURIOUS, with good reason. Her blogs called out the nonsense that passes for care. It called out the decades of systemic neglect I could feel her pain in the words 📖 She asked friends to read about her illness They didn’t…

The subject being? Leaving people for years feeling like they’re dying. Then telling them it’s their fault. Telling them to try harder. Bio-psycho-social Rewarding those who call them hysterical. Ignoring the science. Celebrating the mediocre. She deserved better You all do

These are Bridget’s words. I am so sad to hear of her passing, and several other #MECFS and #LongCovid people this week😢 I hope she is at peace, out of pain🙏🏻 Her words are some of the best written about the subject.

RIP @Bridget_OShea ‘think of the time you had flu, think about how it would impact yr life if you felt that way every day for months on end -empathize The smallest morsel of sympathy can make 🌎 of difference for someone suffering misunderstood illness https://t.co/tSqeKqm6Zc

Thread on therapeutics for neuroinflammation in ME/CFS and long Covid Both existing&wish list. Kindly reordered from a messy reply into saveable slides. *always consult a doctor about medication ** I hope this helps someone. Thanks @RorPreston for the question.

This is pretty amazing. Rent out air purifiers for free in Edinburgh. For prevention of Covid-19 but also good for pollution too. What’s not to like 🤷🏻‍♀️ Great effort.

And not one word about Covid, repeated infections, Long Covid, all its multi system disabling effects in the debate about Welfare Bill! And consequently nothing about urgent need for major preventative measures in hospitals, schools and all workplaces. Complete incompetence.

Neuroinflammation. Brains on fire. 🔥 I see the consequences of Covid-19 infection every day. How many studies do we need before we say it’s unethical to pretend Covid-19 is no longer an issue? Scans help us to ‘see’ the damage. In real life to ‘see’ this is heartbreaking.

A lot of news from Covid inquiry blaming lockdown for people not being able to see relatives. The truth is; airborne transmission was covered up & Gov't hadn't properly prepared for an airborne pandemic. People could have done this entirely safely with the right mitigations. 1/2

Early this year my MP sent questions to DfE on air quality in schools and its effects on attendance. Q4 I asked if UKHSA guidance to schools should be updated in light of the high levels of illness in schools (during an ongoing pandemic) /1

Don’t get me wrong. Work,Eating healthy&Exercise is good for people. IF healthy enough. Nearly all my patients did the above. Got a virus. Exertion now makes Them sicker. They rely on the social contract not to starve. This is being broken. End.