Paul Keeble ME/LC
@PaulRKeeble
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ME since 2016 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 - 2.1 (Severe) Discourteous behaviour = block.
UK
Joined March 2009
RT @Rick_Pescatore: This might be the most important biology paper of the decade. It confirms what some of us have been whispering for yea….
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Droplet dogma continues as measles outbreaks worry parents so of course we reach for the clean bottles. Problem is measles, like many other viruses is both high transmissable and airborne. Only thing that will actually work is cleaning the air.
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RT @MichaelLCrick: Unite are now surveying their union reps om whether they think the union should disaffiliate from the Labour Party. http….
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An article (🔽) in theguardian about a "champion" of doing nothing (for 90 minutes!) sparked this great comment from a broken battery and I think we should consider this as an attempted viral campaign.
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RT @MEResearchUK: Naturally, there is a lot of interest around ME/CFS and the brain, especially considering symptoms such as cognitive dysf….
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New GP survey. A decrease in Long Covid reports by increase in people unsure and those wth chronic conditions continues to climb, more than 10% since the pandemic started. Diagnosis being hard is still a big problem.
This year's NHS GPPS data is out. That's the GP-Patient Survey, the largest-scale health survey we have, covering over 700,000 people in England. I'll give you some headline points now, and post more in-depth analysis over the coming days. 1/9
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Thinking about this more if the MEAssociation is to become the official NHS response then it will require funding sufficient to create offices in all regions and to hire npand train medical teams. You can't refer into a charity unless it's funded and authorised to treat.
Patients will be connected to specialist charities as soon as they've been diagnosed with a long-term health condition, starting next year. This new service means expert advice, emotional support and practical help from day one, alongside NHS care. More:
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It's the same thing in all those coroners findings, no one in the NHS knows anything about ME, they treat the patients like it's psychological and there is no services and no research. Government continues to just waffle and do nothing. Preventable dears will continue.
TW: Suicide.Sarah Lewis had lived with ME for over a decade, and is believed to have died by suicide on 8 August 2024 — a day that was significant to her: Severe ME Awareness Day. A Prevention of Future Deaths report has been issued, highlighting four matters of concern.
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This court ruling is monumental. Is this the first time a court has been required to make the disability service and medical system accept and apply the existing science on a disease like #mecfs? I hope is repeated across many countries to force recognition.
Thanks to @AnilvanderZee on fb.Tide is turning
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The bacteria in the gut produces Imidazole propionate which interacts with immature white blood cells and triggers the arteries to accumulate cholesterol and fats. Seems implicated in T2 Diabetes too. Further research required to identify the bacteria.
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RT @atranscendedman: Northwestern University scientists show CD8+ T cells need mitochondrial respiration, but not ROS, for proliferation. Y….
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RT @ZdenekVrozina: This new Nature Immunology study is wild. Turns out, CD8+T cells can go into an exhausted-like state without any chronic….
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RT @vipintukur: Viral persistence has been postulated to be a cause of #LongCOVID, but it has been difficult to find SARS-CoV-2 virus or vi….
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I still think deterioration is a lot more common than they are acknowledging especially since we now have nearly 20 confirmed deaths from the disease. It's a potentially fatal disease and this still isn't saying it.
The ME Association have just updated our free literature booklet on Prognosis, Permanency & Quality of Life in ME/CFS . This is based on extensive evidence from people with ME/CFS, their partners or family members, a small number of research studies, and clinical opinion from.
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"Dr Charles Shepherd is in regular contact with Karen's family on behalf of the ME Association, and has also written to the hospital, and is doing all he can to help". MEAssociation has listened and started to try and help the abused severe patients.
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RT @DaniBeckman: If you think societal collapse is an exaggeration, I suggest you read the impact of #LongCovid calculated by an economist….
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Not sure what IMP means here, but the ERASE-LC is a Remdesivir multi centre open label trial.
This week our first participants at @UniofExeter are receiving their IMP!. Well done to @DocStrain and the team!! . @Pen_CTU @DerbyUni @LindsaySkipper @Prof_Ian_M
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