Janet Stockley-Pollard
@JanetSP1968
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Mum of 5, 3 of my children have a diagnosis of Fetal AntiConvulsant Syndrome(inc Autism).
Bognor Regis, West Sussex
Joined June 2011
So proud#Cam#plz share#https://www.youtube.com/watch?v=ILwtcH6pVww# @WSCCNEWS @NetMums @jocuz1971 @AutismParentMag @AutismAwareUK
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Research valproate by finding the lost children who are now in their 40’s. We can learn a lot from them & providing government do the right thing they will get redress @OACSCharity @oacsireland @ValproateUK @karenbuck197150 @JanetSP1968 @facsaware @Emma4facs
Alongside our Founding Partners, @EpilepsyInst is capacity building the research ecosystem to enable researchers to address the questions most important to the #epilepsy community: https://t.co/YkKdGaSlk2 Today's announcement is an encouraging sign the government share our goal.
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Any redress, if it happens, needs to be managed by a completely independent trust, where no beneficiaries are involved in decisions around individual finance/support. #redressnow
@OACSCharity @emmafriedmann @facsaware @oacsireland @edwardjsault @CLapidge @karenbuck1234
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I came to a sad realisation today. I never thought my daughter having FVSD was my fault. I tend to be matter of fact about my epilepsy & my daughter’s FVSD. Today I realised I do blame myself. I have been in denial @OACSCharity @oacsireland @PSCommissioner
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Thank you @AndyFriedmann you were brilliant! Thankyou @JasonFarrellSky @therealSophieH @ChloeKeedyITV for your #RedressNow reports on @BBCNews @itvnews @SkyNews Great to catch up with @jocuz1971 @CLapidge @JanetSP1968 @ValproateUK @rebbromley @DIBBody
#valproate #facsaware
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@SkyNews @JasonFarrellSky At c£244,000 for an *able child in care, families with a child age 20 have saved the taxpayer £4.88 million A child with a disability in a care home could cost twice that. #dothemaths @Jeremy_Hunt @fosteringnet @Boz_law @DIBBody @MeshCampaign @OACSCharity @Factor8Campaign
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@LeoVaradkar @DonnellyStephen #oireachtas while Irish families continue to suffer. @RTE_PrimeTime Ministers must begin paying compensation to the families of children disabled by the epilepsy drug sodium valproate by next year, a report will say this week https://t.co/sb7NO4yITz
thetimes.com
With up to 20,000 babies harmed, Dr Henrietta Hughes says sodium valproate is a bigger scandal than thalidomide
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Well done @karenbuck1234 you were amazing. You made them listen. Watch here at 29.32 mins @PSCommissioner @edwardjsault @OACSCharity @oacs @wesstreeting @ValproateUK @ShaunLintern
https://t.co/V0kQ3SLHmb
bbc.co.uk
Stormont looks ready to assemble again after nearly two years, but what are the details?
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@DonnellyStephen @roinnslainte
@conwaywalsh, many thanks for your ongoing support throughout. It is an absolute #Scandal that a chair has not been found for the #Valproate #Inquiry
https://t.co/lZBryzb48K
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Families affected by foetal valproate spectrum disorder to meet DoH on ‘delayed’ inquiry https://t.co/Ik8jDQPJe9
#sodiumvalproate
@roinnslainte @DonnellyStephen @oacsireland
medicalindependent.ie
Sodium valproate. The Organisation for Anticonvulsant Syndrome (OACS) Ireland, which represents families affected by foetal valproate...
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Things need to change families have been fighting for over 3 decades, this just adds to an already difficult situation...@wesstreeting @OACSCharity @oacsireland
@CLapidge @edwardjsault @Jeremy_Hunt @PSCommissioner @ValproateUK
🚨 EXC: A generation of children left permanently disabled by epilepsy drug sodium valproate, are being hauled in front of degrading and barbaric DWP tribunals that has left some traumatised 1/8
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🚨 EXC: A generation of children left permanently disabled by epilepsy drug sodium valproate, are being hauled in front of degrading and barbaric DWP tribunals that has left some traumatised 1/8
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The scandal continues, not just in the UK..@ShaunLintern @PSCommissioner @edwardjsault @JaneFellner @OACSCharity
🔴 The Double #Victimisation of #Children #Affected by #Epilepsy #Drug Sodium #Valproate
https://t.co/a4Dq6j127y
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For UK patients only: #Medicines #regulators take action over risk of #autism for children whose #fathers took #valproate
https://t.co/eRuTwWdJiJ
hospitalhealthcare.com
The UK and European medicines regulators are considering new evidence linking paternal valproate use before conception to child autism risk.
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@PSCommissioner @JuliaCumberlege @BBCWorld @BBCNews
#Valproate #Redress Gov has everything they need from the IMMDS Review for Redress! Why should families be left to suffer. Give the families of Valproate the Dignity they deserve. #NoMoreWaiting
https://t.co/kEc1ttwS1M
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Finally, it has been acknowledged that harm can be done to an unborn baby when it is the man taking valproate. We have had father's coming to us for years...@OACSCharity @oacsireland @PSCommissioner
@ShaunLintern
@ValproateUK
@edwardjsault
@karenbuck1234
https://t.co/4VKNZnpuZ8.
gov.uk
The new safety measures being introduced in UK are for male and female patients
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I am seeking patient views on redress options for those harmed by sodium valproate and pelvic mesh to support our work - please complete our survey at https://t.co/o02LyUM9RM
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OACS are looking forward to seeing @bbcsouthtoday TV program in a few weeks. How #Valproate impacted 2 families.2 Young Men talk about the devastation of passing Transgenerational harm of Valproate to their Children @PSCommissioner @karenbuck197150 @ShaunLintern @Janeinthejam
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Sodium valproate is a drug mainly used to treat epilepsy. But taking the drug when pregnant can cause serious harm to unborn babies - and it's estimated to have harmed 20,000 children in the UK. Find out more on the File on 4 podcast on @BBCSounds. https://t.co/xyfZSSkryC
bbc.co.uk
File on 4 investigates the drug Sodium Valproate and its impact on thousands of children.
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