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Janet Stockley-Pollard Profile
Janet Stockley-Pollard

@JanetSP1968

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Mum of 5, 3 of my children have a diagnosis of Fetal AntiConvulsant Syndrome(inc Autism).

Bognor Regis, West Sussex
Joined June 2011
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@JanetSP1968
Janet Stockley-Pollard
11 years
So proud#Cam#plz share#https://www.youtube.com/watch?v=ILwtcH6pVww# @WSCCNEWS @NetMums @jocuz1971 @AutismParentMag @AutismAwareUK
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@CLapidge
carol lapidge
2 years
Research valproate by finding the lost children who are now in their 40’s. We can learn a lot from them & providing government do the right thing they will get redress @OACSCharity @oacsireland @ValproateUK @karenbuck197150 @JanetSP1968 @facsaware @Emma4facs
@EpilepsyInst
Epilepsy Research Institute
2 years
Alongside our Founding Partners, @EpilepsyInst is capacity building the research ecosystem to enable researchers to address the questions most important to the #epilepsy community: https://t.co/YkKdGaSlk2 Today's announcement is an encouraging sign the government share our goal.
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@JanetSP1968
Janet Stockley-Pollard
2 years
Any redress, if it happens, needs to be managed by a completely independent trust, where no beneficiaries are involved in decisions around individual finance/support. #redressnow @OACSCharity @emmafriedmann @facsaware @oacsireland @edwardjsault @CLapidge @karenbuck1234
@ValproateUK
ValproateSurvivors 🤰 #Valproate caremongerer
2 years
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@CLapidge
carol lapidge
2 years
I came to a sad realisation today. I never thought my daughter having FVSD was my fault. I tend to be matter of fact about my epilepsy & my daughter’s FVSD. Today I realised I do blame myself. I have been in denial @OACSCharity @oacsireland @PSCommissioner
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@ValproateUK
ValproateSurvivors 🤰 #Valproate caremongerer
2 years
@SkyNews @JasonFarrellSky At c£244,000 for an *able child in care, families with a child age 20 have saved the taxpayer £4.88 million A child with a disability in a care home could cost twice that. #dothemaths @Jeremy_Hunt @fosteringnet @Boz_law @DIBBody @MeshCampaign @OACSCharity @Factor8Campaign
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@oacsireland
OACS IRELAND
2 years
@LeoVaradkar @DonnellyStephen #oireachtas while Irish families continue to suffer. @RTE_PrimeTime Ministers must begin paying compensation to the families of children disabled by the epilepsy drug sodium valproate by next year, a report will say this week https://t.co/sb7NO4yITz
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thetimes.com
With up to 20,000 babies harmed, Dr Henrietta Hughes says sodium valproate is a bigger scandal than thalidomide
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@oacsireland
OACS IRELAND
2 years
@DonnellyStephen @roinnslainte @conwaywalsh, many thanks for your ongoing support throughout. It is an absolute #Scandal that a chair has not been found for the #Valproate #Inquiry https://t.co/lZBryzb48K
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@JanetSP1968
Janet Stockley-Pollard
2 years
Things need to change families have been fighting for over 3 decades, this just adds to an already difficult situation...@wesstreeting @OACSCharity @oacsireland @CLapidge @edwardjsault @Jeremy_Hunt @PSCommissioner @ValproateUK
@ShaunLintern
Shaun Lintern
2 years
🚨 EXC: A generation of children left permanently disabled by epilepsy drug sodium valproate, are being hauled in front of degrading and barbaric DWP tribunals that has left some traumatised 1/8
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@ShaunLintern
Shaun Lintern
2 years
🚨 EXC: A generation of children left permanently disabled by epilepsy drug sodium valproate, are being hauled in front of degrading and barbaric DWP tribunals that has left some traumatised 1/8
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@JanetSP1968
Janet Stockley-Pollard
2 years
The scandal continues, not just in the UK..@ShaunLintern @PSCommissioner @edwardjsault @JaneFellner @OACSCharity
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@OACSCharity
OACS Charity
2 years
@PSCommissioner @JuliaCumberlege @BBCWorld @BBCNews #Valproate #Redress Gov has everything they need from the IMMDS Review for Redress! Why should families be left to suffer. Give the families of Valproate the Dignity they deserve. #NoMoreWaiting https://t.co/kEc1ttwS1M
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@JanetSP1968
Janet Stockley-Pollard
2 years
Finally, it has been acknowledged that harm can be done to an unborn baby when it is the man taking valproate. We have had father's coming to us for years...@OACSCharity @oacsireland @PSCommissioner @ShaunLintern @ValproateUK @edwardjsault @karenbuck1234 https://t.co/4VKNZnpuZ8.
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gov.uk
The new safety measures being introduced in UK are for male and female patients
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@PSCommissioner
Patient Safety Commissioner
2 years
I am seeking patient views on redress options for those harmed by sodium valproate and pelvic mesh to support our work - please complete our survey at https://t.co/o02LyUM9RM
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@JanetSP1968
Janet Stockley-Pollard
2 years
@OACSCharity
OACS Charity
2 years
OACS are looking forward to seeing @bbcsouthtoday TV program in a few weeks. How #Valproate impacted 2 families.2 Young Men talk about the devastation of passing Transgenerational harm of Valproate to their Children @PSCommissioner @karenbuck197150 @ShaunLintern @Janeinthejam
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@BBC_CurrAff
BBC Current Affairs
3 years
Sodium valproate is a drug mainly used to treat epilepsy. But taking the drug when pregnant can cause serious harm to unborn babies - and it's estimated to have harmed 20,000 children in the UK. Find out more on the File on 4 podcast on @BBCSounds. https://t.co/xyfZSSkryC
bbc.co.uk
File on 4 investigates the drug Sodium Valproate and its impact on thousands of children.
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