F.A.C.T
@facsaware
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Preventing suffering and improving lives . #FACSaware is a project to raise awareness of teratogens
Joined June 2013
#FACSaware would like to thank @boz_LD @LeighDay_Law for working with us and representing families affected by #Valproate.
#FirstDoNoHarm Report: Sodium Valproate patient groups, represented by@boz_LD expressed their relief that after almost 30 years of lobbying, their voices have been heard #ValproateCrisis
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@Claresm81267911 @JuliaCumberlege @NadineDorries @facsaware Fee for my daughter to go residential college which the local authority will refuse because they don't care
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Redress needed compensation needed. My daughter is 18 she is getting charged £118.79 per day for day centre thats £19.79 a hour for six hours for a day centre i get £57 a week in carers allowance for 10 times the work they do. @JuliaCumberlege @NadineDorries @facsaware
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@_MarineMartin @SanofiFR @OACSCharity @oacsireland @facsaware @facsnzawareness @Emma4facs @emmafriedmann #Depakine #Valproate #Epilim
#togetherwearestronger Outrage As France Limits Compensation For Kids With Autism Caused By Dangerous Drug:
thewestsidegazette.com
POLLESTRES, France — After the French authorities limited the compensation for pregnant moms who were given a dangerous epilepsy drug, a French victims’ association said Europe should be “ashamed.”...
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We are proud to be part of the Safer Medicines in Pregnancy and Breastfeeding Consortium – a partnership of 16 leading organisations working together to improve the health information available to pregnant and breastfeeding women. Find out more at https://t.co/fcMStKnsT6
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See the #MHRAYellowCard campaign toolkit and resources to help you inform people that they can report suspected side effects from any #CovidVaccine to the Yellow Card scheme: https://t.co/9phxnclCpM
@msonetwork @MHRAgovuk #everyreportcounts
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@UKHouseofLords @LordPhilofBrum @jamesosh If you have been affected by #valproate please register with @LeighDay_Law who submitted evidence on behalf of victims to @JuliaCumberlege #FirstDoNoHarm report. Support available on #facsaware Facebook group. https://t.co/S1TUvA076E
facebook.com
Please feel free to post anything relating to FACS within this page, be it photos, articles whatever you feel relevant. FACT was set up in 2011 to...
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#Valproate discussed briefly in @UKHouseofLords today. Excellent point made by @JuliaCumberlege about @NICEComms Preconception counselling QOF & general recognition that action is too slow. Still only the tip of the iceberg of corruption & deceit in medicine & law making. ⚖️🩺💰
Does anybody care? #InformedConsent Denied #AccessToJustice Denied #AdequateEducation Denied #CoordinatedHealthcare Denied #EducatedProfessionals Denied #FinancialSecurity Denied #AppropriateHousing Denied #Compensation Denied #TribunalAppeal Denied #Respite Denied #facsaware
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Bloody Universal Credit.... Won't discuss sons claim with me, he's an adult and has to discuss it with them. They don't understand what autism is OR what we do for our children.
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#LordsQs live: @jamesosh presses government on a redress scheme for women and families harmed by #sodiumvalproate. Watch #HouseofLords raise #FirstDoNoHarm report https://t.co/TM15U1SJXh
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Does anybody care? #InformedConsent Denied #AccessToJustice Denied #AdequateEducation Denied #CoordinatedHealthcare Denied #EducatedProfessionals Denied #FinancialSecurity Denied #AppropriateHousing Denied #Compensation Denied #TribunalAppeal Denied #Respite Denied #facsaware
My daughter turned 18 a few days ago, 18 years ago I was told that sodium valproate epilim was responsible for my daughters disabilities. 18 years on still fighting for justice, still no accountability, the government still doing a rubbish job. @JuliaCumberlege @facsaware
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We are looking for new experts by experience to join the national paediatric #epilepsy board. Deadline is Feb 25th, contact and_us@rcpch.ac.uk for more info ⬇️ #voicematters #EpilepsyAwareness
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Healthcare professionals are asked to report any important inconsistencies in UK advice on use of individual or classes of medicines to the Safer Medicines in Pregnancy and Breastfeeding Consortium: https://t.co/GG6X5XlbcW
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My gp has just closed its doors on my 18 year old disabled daughter because she doesn't have mental capacity and they won't allow me mum to take her or make appointments for her anymore. Or repeat prescriptions @JuliaCumberlege , @facsaware
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OPPORTUNITY in England. Patient reference group for #FirstDoNoHarm. Closing date 8th February 2021
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Not everyone thinks about #physicaldisabilities as invisible @fvsdlife talks about managing these whilst managing her #complexdisabilities ://youtu.be/9SGUAx30yek @facsaware @ConnateSupport #valproate #RareDisease #fvsd
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No redress no compensation, where is the justice for our children. All you want to do is make Services better thats not justice what about the victims. How little does parliament care about us and our children to think so little of us.@facsaware @JuliaCumberlege @NadineDorries
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@rbcca_blaylock @R_Arkell @facsjustice @Dr_Ronx @bpas1968 @MHRAgovuk Have you any idea how hard we @facsaware @ConnateSupport @OACSCharity @facsjustice as patient groups have had to argue for no exceptions because some charities & the Neurology professionals involved in #valproate reviews want to continue prescribing in pregnancy. #FirstDoNoHarm
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T/u @epilepsysociety for asking me to do a blog re latest evidence based information #epilepsy medicine when taken in #pregnancy
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A new review has highlighted the risks linked to many epilepsy drugs during pregnancy. Epilepsy specialist midwife, Kim Morley, explains all that you need to know and the importance of discussing your medication with your doctor before planning a family. https://t.co/FZDilYTIrh
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