carol lapidge
@CLapidge
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married, mum of one beautiful daughter with FVSD, lives with epilepsy on the board of OACS works for a GP & loves life
Enfield, London
Joined August 2011
Even with a diagnosis they don’t get the right support because the funding isn’t there. It took me years get an increase in funding even though my daughters needs changed. It’s still not enough but we are lucky to have an amazing home and carers @VoyageCare
@ccwild79 @ChrisTuck_WWHF Many children with #Valproate syndrome #FACS #FVS #FVSD enter Care sector when their mother becomes unable to look after them due to ill health or die. Many children don't have a diagnosis so they don't get appropriate support. @PSCommissioner needs to be aware of this issue.
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We would like to thank @DonnellyStephen for his support If the timeline shows there were systematic failures, then my strong preference would be that families should not have to go to court and we should find a non-adversarial process of providing supports and #compensation
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Great thanks to @shaunabowerss @IrishTimes for their reporting on the launch of the inquiry into Sodium #Valproate in Ireland #Epilim
https://t.co/zxcTI483MU
irishtimes.com
All her children have been diagnosed with fetal valproate syndrome, a rare congenital disorder caused by their exposure to valproic acid
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#BMJ “Perhaps most striking was the testimony from hundreds of #patients reporting lack of informed #consent for their initial treatment, followed by years of dismissal by clinicians and #regulators who did not want to associate life altering symptoms or injured children with
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Primodos 2024: The Quest for Justice Continues @shartles1 "This highlights a disturbing trend where the interests of powerful elites eclipse the pursuit of truth and justice." @shartles1
#Primodos #Redress #Reform #Accountability
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In the light of the brilliant work by the @PostOffInquiry and the @bloodinquiry now is the time for a full judicial enquiry into the fifty year #Primodos scandal. Further details here https://t.co/TidjYE2Uyl
@Malriel @JasonFarrellSky @LizLaneSky
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Pleased to hear this. What about all the PRIMODOS families. Why are they being excluded.
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“It’s depressing to hear the parallels between the infected blood inquiry and the Primodos, Mesh and Valproate scandals’” @DianaJohnsonMP in todays All Party Parliamentary meeting on #firstdonoharm
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It was a “day of shame” yesterday - but a gathering of MPs today found there was plenty more to be ashamed of over #Mesh, #Valproate and #Primodos - with the Patient Safety Commissioner saying her pleas to govt. were “falling on deaf ears.”
news.sky.com
Dr Henrietta Hughes made the comments at a meeting in Westminster on Tuesday of MPs and campaigners of three health scandals.
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“NHS is fundamentally misogynistic. I’m concerned that after the blood scandal any other work on compensation will be smoked out - NOTHING has happened for financial redress for mesh injured women.” @AlecShelbrooke in todays APPG on #firstdonoharm
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@PSCommissioner Wow. Really. What happened to Primodos families being put front and centre. Unless my eyes deceive me they are way back in the cheap seats out of sight and certainly out of mind @NowHillsborough @acdhpt @hicksyalex @MeshCampaign @APPGHPTs
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there really can be no peace without justice. there can be no justice with truth. and there can be no truth, unless someone rises up to tell you the truth. @bloodinquiry @FdnhLtd @ValproateUK @accesstojustice
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@ValproateUK @facsaware @PSCommissioner my daughter is 21 and was damaged by valproate another scandal that was covered up brushed under the carpet, when will you listen to the victims and give justice to all.
Today in Parliament I paid tribute to my constituents & all who have fought for truth & justice re #InfectedBlood. I also asked how long must we wait for #HillsboroughLaw in full, so that we can begin to end the culture of cover-ups that is hardwired into our institutions.
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#Mesh Ireland stands in #solidarity with @Paula_Goss and the @RectopexyS members. @PSCommissioner report disappointingly did not include #RedressNow for this mesh victim group. I hope this flaw will be corrected.
Thank you @IndHealthPN for inviting our founder to present and give a true account of mesh complications at your conference, Patient voice so crucial in everything both NHS and private healthcare @Stanley468 @PSCommissioner @Paula_Goss @LukeHall @AlecShelbrooke @SharonHodgsonMP
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If the government is willing to commit to providing redress to those harmed by infected blood, then why not those by other medical scandals, Primodos, Valproate & mesh?
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Great news that High Court threw out the new protest laws. In 2013 we protested outside MHRA and they brought us in to discuss shortly after. Direct action was our last resort. Photo courtesy of Warwick Sweeney @CarolineLucas @DianaJohnsonMP
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Fascinating First Do No Harm APPG today chaired by @SharonHodgsonMP attended by @PSCommissioner and @DianaJohnsonMP as victims of #Valproate, #Mesh and #primodos seek to replicate the success of the Infected Blood campaign in gaining redress. Report here. https://t.co/npCNWYv2kZ
news.sky.com
Dr Henrietta Hughes made the comments at a meeting in Westminster on Tuesday of MPs and campaigners of three health scandals.
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Interim payment NOW @Jeremy_Hunt
https://t.co/dShdg8zFaE VICTIMS OF #EPILEPSY DRUG AND #MESH SHOULD GET COMPENSATION, MINISTERS TOLD #redressnow The fight isn’t over, government still has to agree to the payments
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Primodos 2024: The Quest for Justice Continues @shartles1 Thank you Marie @Malriel for providing me with a statement today via email which will form part of my latest publication due out this month. #Truth #Justice #Accountability #Primodos
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The Inquiry Report | Infected Blood Inquiry- lessons must be learned from this. Delays, obstruction and cover ups - and ruined lives. Victims suffering could have been eased, if government had acknowledged the injuries and paid compensation 30 years ago.
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