Isobel Knight
@IsobelKnight2
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Internationally published author on hypermobile Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Narrative Medicine & Bowen Technique.
London, England
Joined September 2009
Here is a new paper that I have written about having a #colostomy with #Ehlers-#Danlos Syndrome #EDS and #bowel problems
academia.edu
After years of suffering from severe gastrointestinal problems GI, including acid reflux with a hiatus hernia [ongoing], not unusual in a patient who also suffers from hypermobile Ehlers-Danlos...
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A new paper that I have written about #abdominal #surgery #proctocology #stomas and #colostomy and having #EDS and writing #narrative #medicine.
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This is heartbreaking. More people are being admitted to #hospital for devastating reason | The Independent
independent.co.uk
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Quite.
Before you demonise disabled people for receiving "free money", take a moment to remind yourself that you pay your able bodied MP's rent, bills, travel costs, parking costs...without complaint every year. Let that sink in and then point your anger in the right direction!
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What a piece of work. I'm not impressed with my own MP either. I'll never vote #Labour again.
On today’s Hall of Shame, we have @KemiBadenoch, who has spent the last few days spreading misinformation and rage bait against disabled people who claim benefits. She is also trying to cast doubt on the level of disability in this country and said: “We now live in a country
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No Labour MP should be voting for the benefits bill
inews.co.uk
Despite Starmer's U-turn on the terms, it is still the morally wrong choice
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Not surprised really. Ministers are secretly considering means-testing #PIP, #DWP admits, despite pledge in green paper https://t.co/LSGONuDV25 via @johnpringdns
disabilitynewsservice.com
Labour ministers are considering whether to start means-testing personal independence payment, which is likely to cut billions of pounds a year more from benefits spending, new information secured …
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Today, we handed in over 100,000 petition signatures to 10 Downing Street 📋 It’s a clear message to the government: the cost of cuts is catastrophic ✂️
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Absolutely
When talking about incapacitated losing disability benefits... Keir Starmer at Liaison Committee... spoke of the OBR - presuming 0 (zero claimants) would "CHANGE THEIR BEHAVIOUR"... You what? !!!! It is not a behaviour when someone has an incurable disease or disability!
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This is absolutely paramount. So important, and so true.
“Your body will never forget how someone made your nervous system feel.” Anon This quote hits deep for so many of us with EDS & chronic illness. Our bodies remember the fear, the dismissals, the years without answers. But they also remember safety. Validation. Those rare
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Labour, I'm sick of this repetitive, divisive phrase, "Working People"! We've all worked at some time, inc disabled, vulnerable citizens, OAP's, and, as a civilised country, we must provide for our chronically ill to ensure they have the best life possible. @UKLabour
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I’m off to the #SoapAwards with my #TakingThePIP badge made by my friend out of a piece of cardboard, physio tape and a safety pin. Let’s see how many photos I can get it in!!! Please head to https://t.co/o9KsqWPtIa for more info
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Do Social Media Trends Glamorize Chronic Illness? | Psychology Today United Kingdom
psychologytoday.com
Social media is obsessed with bed rotting — but is it self-care or something more serious? Explore how this viral trend may be glamorizing chronic illness and why it matters.
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Many #POTS patients exhibit significant hypermobility, whether officially diagnosed with #EDS or not. Overextension of joints, subluxations, and dislocations can damage connective tissue, cause pain and decrease quality of life. #SUTP #dysautonomia #potsawareness
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Many conditions are now linked to #hypermobility
Joint hypermobility and hypermobile #EDS are common comorbidities with #POTS and can be a significant source of pain sources that should be investigated. We are so proud that Medical Advisory Board Member Dr. Linda Bluestein did this work! DOI: 10.1097/01.TPM.0000924780.91929.b3
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