April GQG
@GpGQueen
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Founder: https://t.co/zmth30vWHG In love you find truth; through truth you find freedom! #patientadvocate #asdmom #domvsurvivor
Florida, USA
Joined June 2016
@melissarvh @paygeben @chronicallysass @unitedadvocacy @freederya @hesaonlineinfo @GpGQueen @AntiNMDA_Inc @savvy_coop @Mark2Cure @aneinternationa @MyGene2 @iPainOfficial @PTENFoundation @RareDiseaseGh @AutonomicRN @camraredisease @RareShareOrg @RareRevolutionM @Ring20UK @AKUSociety @FibroFlutters @RSDSA @buttahflyk @lisadbudzinski @bbhomebody @EpilepsySparks @alexTLCsupport @rarepatientvoic @Polandsyndromep @RareBeacon @Sarcoid_Network @ncbrsfoundation Can get to kn orgs & share posts with their communities that could save a life or at least help end someone's dx odyssey. Knowing is not only half the battle but the path to better care & self-compassion for patients. Thx @GoPI3Ks @cure_mito @RareQoL & others for being here.
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Gastroparesis, also called delayed gastric emptying, is a disorder that slows or stops the movement of food from your stomach to your small intestine, even though there is no blockage in the stomach or intestines. - @NIDDKgov @melissarvh @GpGQueen @iamokaynow
#Dazzle4Rare2023
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National Chocolate Cupcake Day – October 18 https://t.co/r7XGKiDfMN via @natltoday
nationaltoday.com
Gearing up for National Chocolate Cupcake Day on October 18? We’ve got all the recipes and celebration tips you’ll need to celebrate.
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Time is ticking to register for the 2021 World Encephalitis Day Conference! Don’t miss presentations from global Encephalitis experts and stories from inspiring Encephalitis survivors. Visit https://t.co/LBeEdLVams to register today. Registration closes February 18th.#wedconf2021
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It’s a good thing I didn’t have to bend any rules to keep @TarynPapa and @wtw_music on Team Blake! #VoiceBattles #TeamBlake
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1 week from from today! Networking, Learning, Poster Session, Exhibitors, Hero of Hope awards & more! - Reg for 2020 International Pain Summit #iPainSummit - ONLINE - Nov 14, 2020 - Dont miss out on this amazing event! - https://t.co/GutgC5DL7z
#Pain #NERVEmber #FreezingFire #CPP
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SEPT IS CHRONIC PAIN AWARENESS MONTH - International Pain Foundation recognizes the value of every person who makes up the community. We are guided by our commitment to excellence, leadership & patient empowerment. https://t.co/9Aa0xkiOPK
#iGiveACare #iPain #ChronicAwareness
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It's free to attend #2020GGSummit as a patient or advocate. Register today and discover topics like the nuances of global advocacy landscapes, how to map patient inclusion in #drugdevelopment, and more.
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#MondayMotivation when #Twitter goals are reached #early! That's #motivation right there. @dazzle4rare @rare_disorders @iPainFoundation @WhItscomplex @hesaonlineinfo @wegohealth #Dazzle4Rare @DanteLabs @iamokaynow
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International Pain Foundation supports #Dazzle4Rare 2020! Did you know that there are more than 7,000 rare diseases and less than 5% (350) have a treatment?
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When Facebook reminds you the #patientexperience hasn’t meaningfully improved in 7 years... #askpatients
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