Tarquin has been a strong supporter of Beacon since our beginning in 2012, adding his insights to showcases, Resources Hub guides and more!

Join us as we congratulate Tarquin Bennett-Coles on his 100th blood donation! Tarquin has saved OVER 300 lives with his donations ❤️ Thank you for every donation and touching the lives of others xxx

What if there were no more mass shootings... What if there were a cure...

The Manchester #RareShowcase25 is nearly here! This year’s event will be a vibrant celebration of collaboration and innovation across the rare disease community. ⏰ With only 18 days to go, it’s the perfect time to check out our programme! 🔗 https://t.co/DW7RndIGkJ

🎉 Beacon is turning 13 this Friday – and it’s lucky for some! 🍀 To celebrate our birthday, we’re giving you 10% off tickets to the Manchester Rare Disease Showcase. 🎈 🎟️ Use the code 'BeaconBday' when purchasing your tickets! 🔗 https://t.co/8rS6BUUpSd #RareShowcase25

Happy Halloween ghoulies! 👻 Want to know what's scary? 😬 The Manchester Rare Disease Showcase is 26 days away and you still haven't gotten your ticket! 😱 End the fright - get your ticket now! https://t.co/8yVfxs4y9t

PROBABLY THIS IS THE MOST UNDERVALUED COMPANY ON NASDAQ — ACCORDING TO WARREN BUFFETT-STYLE ANALYSIS When Warren Buffett said, “Price is what you pay, value is what you get,” he was describing companies exactly like NextNRG Inc ($NXXT). It’s a business producing real revenue,

Social media isn’t just a platform — it’s a lifeline for those navigating rare conditions. Read our article in @RareRevolutionM Autumn 2025 Edition to gain practical advice on focusing efforts where your audience is & embracing storytelling! https://t.co/bTHcW5dJOP

Thank you for sharing!!

Thank YOU and Andy for working with us to tell Andy's powerful story to help ensure that no one faces their rare journey alone 🧡 We're so proud of this partnership xx

We are thrilled to be collaborating with NIHR BioResource and the D-CYPHR team! Hannah Stark is speaking at the #RareShowcase25 about D-CYPHR: Working with families to create a world’s first children’s genetic health research programme, so get your tickets now to learn more

🇺🇸 Truflation US Employment (October): 143 million people employed We are excited to launch the Truflation Employment Index, providing real-time insights into the U.S. labor market while official data are not coming out amid the longest government shutdown in U.S. history.

🌍 Re-released! Hear from rare disease accessibility experts as they share insights and solutions for creating a more inclusive world! 👉 Learn more about #Accessibility from our experts here: https://t.co/wLjog78luP @AniridiaNetUK #RareDiseaseDay #Inclusion

What are European Reference Networks (ERNs) and what is their role in the rare disease ecosystem?💡In ERDERA, ERNs are central to our mission, acting as gateways to clinicians and patients across Europe 👀

The next phase of our MENTAL HEALTH project is here & WE NEED YOUR HELP PLEASE:   Could you spare a little time to fill out our survey:  https://t.co/nvEJuwn79u   Thank you so much for your help Mandy & the GoPI3Ks team. @CAR_UWE those tagged could u pls can you share, thanks ☺️

Luxembourg launched its Second National Plan for Rare Diseases (2025–2029)! It was developed with ALAN and national partners, & expands genetic screening, multidisciplinary support, training, research, digitalisation, creates a national registry & more🦓 https://t.co/F1xL6ROMLl

I believe I have achieved Nirvana 😌 I have found inner peace.

Happy 10th anniversary to the #Cambridge Patient Led Research Hub! Thank you for helping those living w/ rare diseases drive their own research ideas to investigate new treatments, manage symptoms, understand a disease pathway, improve diagnosis or capture the patient experience

📣 Parents of kids with rare/undiagnosed conditions — your experience can drive change! Tell us what helps & what’s missing. Your answers shape better support & policies. 👉Take the #RareBarometer survey: https://t.co/7bJTaPnAYu 🌍In 25 languages #RareDiseases #Advocacy

The countdown is on ⏳ #RAREsummit25 is just a month away (6 Nov)! Our agenda is packed: diverse voices, patient-driven insights & bold innovation. https://t.co/ea9RLoftWZ Join us + keep the conversations going over dinner! 💜 Grab your ticket + dinner spot now!

Join over 2,000 attendees, gain insights from 250+ industry leaders, and connect with over 130 exhibitors at World Orphan Drug Congress Europe! 📅 27th - 29th October 2025 📍 Amsterdam 🔗 Apply for your complimentary pass here: https://t.co/z6ipqEp8sa

And the Winner Is? Not You. Minnesotans, as the train cars continue to pile up on the Senate's self-induced Government Shutdown Trainwreck, ask yourself: What do I want in 2027? More of the same from the U.S. Senate? - or - A Senate to fix itself and do its job? (1 of 4)

Who might you meet at @camraredisease #RAREsummit25? 👋 Researchers, clinicians, biopharma, tech innovators, patient groups + those with lived experience. Lots of opportunities to network & connect across the rare disease community. Tickets: https://t.co/xsQGaTGqRy

As the sun sets on #RAREsummit25, @camraredisease invites you to close the day with a celebratory networking dinner. Raise a glass to CamRARE's decade of driving change, championing collaboration, and giving voice to the rare disease community. Tickets: https://t.co/xxI4BsN2ai

This October 6-10, join @PPTAEurope in celebrating International Plasma Awareness Week (IPAW) - a time to honour the donors whose generosity provides essential plasma-derived therapies. #PlasmaPowersPossibility #IPAW2025 https://t.co/xHeaTWqs1q