ANE International
@aneinternationa
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We aim to raise awareness, provide information & support families with #AcuteNecrotizingEncephalopathy ANE is typically triggered by #Influenza & other viruses.
Joined October 2017
For information on #acutenecrotizingencephalopathy or to contact us at ANE International, please refer to our website. https://t.co/4vrNJgCfh6
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Brilliant work ! Acute necrotizing encephalopathy associated with COVID-19 in a pediatric patient and a systematic review
rupress.org
Hemorrhage detected on imaging may predict poor outcomes in acute necrotizing encephalopathy associated with COVID-19. RANBP2 mutations have been identifie
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The worst form - acute necrotizing encephalopathy (ANE) - inflammatory and hemorrhagic destruction of deep brain structures. Children with ANE had 44× higher odds of death or severe disability. ANE isn’t a mild complication - it’s a neuroinflammatory catastrophe.
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Běijīng, Zhōngguó *By Day 28, acute necrotizing encephalopathy had killed 45.9% of our kids *Among severe kids with ANE-SS ≥5, 65.7% died *Death rates were 38.9% (2022), 36.8% (2023), but only 16.7% (2024) *We could afford Actemra only for our severe kids https://t.co/DkZPQmaa5C
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15-year-old boy 4 days of fever → seizures → unconscious CT scan: bilateral thalamic hypodensities. Not your routine viral encephalitis. This is where you must think of Acute Necrotizing Encephalopathy (ANE) — a para-infectious cytokine storm that needs early steroids &
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"Acute necrotizing encephalopathy" is a rare flu complication in kids, causing brain swelling and immune reactions. This serves as a harsh reminder of the importance of the flu vaccine, as most of the affected kids had not received it. Read more here:
ivaccinate.org
A rare but deadly flu complication in children may be survivable with fast, targeted hospital care, according to a Stanford Medicine-led study.
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Influenza-associated acute necrotizing encephalopathy (IA-ANE), is a rare and severe neurologic complication, that causes high morbidity and mortality that presents with encephalitis, fever, seizures, thrombocytopenia, elevated liver enzymes, and elevated protein in the
#Influenza-associated acute necrotizing encephalopathy in US children during the 2023-2024 and 2024-2025 influenza seasons showed high morbidity and mortality. 🧵 https://t.co/cXfXdqqev5
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Influenza and acute necrotizing encephalopathy – the genetic dimension | Beyond the Ion Channel ...we just published our blog post on Acute Necrotizing Encephalopathy (ANE) and RANBP2 from the recent study in JAMA. https://t.co/dk8KMZLxc5
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WFN highlights the latest Neuroinfectious Disease Update [August '25], covering critical developments in influenza-associated encephalopathy (IAE) and acute necrotizing encephalopathy (ANE), H5N1-related encephalitis, and the recent Nipah virus outbreak in Kerala, India. The
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Stanford Medicine researchers hope to raise awareness about a condition called influenza-associated acute necrotizing encephalopathy, to inform parents and physicians about its prevention and treatment.
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⚡️ANE can strike without warning—in anyone, at any age. Follow the link in our bio for the full story. 👨👩👧👧Together, we can raise awareness. 👨👩👦👦Together, we can save lives. #influenza #ANEawareness
#AcuteNecrotizingEncephalopathy
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Symptoms to be aware of if your child has #influenza. Check our website for more information. https://t.co/4vrNJgBHry
#acutenecrotizingencephalopathy
#acutenecrotizingencephalitis
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Seasonal influenza A-associated acute necrotizing encephalopathy in children https://t.co/blZKZa8ifN
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🚨New Research Alert!🚨 Child Neurology: Remarkable Recovery From Severe Acute Necrotizing Encephalopathy. #Research #Pediatrics #StanfordMed
https://t.co/Mb5EBOyDUw
pubmed.ncbi.nlm.nih.gov
A previously healthy 6-year-old girl presented with several days of fever before a generalized seizure. Laboratory investigation revealed elevated liver enzymes, normal ammonia, and positive influe...
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Neuro infection pearl RANBP2 mutations predispose patients to acute necrotizing encephalitis due to influenza A. Characteristic MRI involving thalami / brain stem/ cerebellum with lack of pleocyotsis is seen. Steroid responsive. https://t.co/kLEUy27g3Q.
@AANmember @TheNewANA1
pmc.ncbi.nlm.nih.gov
Acute necrotizing encephalopathy (ANEC) is a rare entity characterized by encephalopathy following a febrile illness. Most patients are sporadic; however, recurrent and familial cases have been...
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#AcuteNecrotizingEncephalopathy (ANE) is a devastating neurologic condition that can arise following a variety of systemic infections, including influenza & SARS-CoV-2. Most commonly reported in previously healthy children. #influenza #braininjury #raredisease #genetic #ranbp2
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Can you help? We are collaborating with Montpellier University Hospital in an event for ANE families & crucial research. Together with clinicians & researchers we also hope to raise awareness for this devastating disease. #ranbp2 #flu @CHU_Montpellier
https://t.co/nIKd0waNwV
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#Covid19 associated #AcuteNecrotizingEncephalopathy "...it was like everything just went away... all the happiness, all the innocence... " https://t.co/vIisVJlxkh
#raredisease
#ANEawareness
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Each month the Neurology Resident & Fellow Section editorial board selects their favorite article for the month. Read their current pick, "Child Neurology: Acute Necrotizing Encephalopathy of Childhood Associated With Dengue": https://t.co/PXkgNW6gG1
#NeurologyRF #NeuroTwitter
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Child Neurology: Acute Necrotizing Encephalopathy of Childhood Associated With Dengue—Good Neurologic Outcome Despite a Fulminant Presentation https://t.co/o95oc0lclQ
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