Rare Patient Voice
@rarepatientvoic
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We help clients find rare & non-rare disease patients & caregivers for research studies, & connect patients & caregivers with paid research opportunities.
Towson, MD, US, 21286
Joined November 2013
In a live Greenbook webinar on September 25, Rare Patient Voice President Wes Michael will share methods RPV has developed to reduce fraud in qual & quant research. Sign up now for what promises to be an enlightening program!.#MRX #HealthcareMarketing.
app.livestorm.co
Across the market research industry, 15% to 30% of responses are estimated to be fraudulent. This growing problem is costing the industry hundreds of millions of dollars and putting the reliability...
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As we celebrate this day dedicated to the contributions & achievements of workers, we want to acknowledge the invaluable input from our patient & caregiver community. We are grateful for your participation & dedication, which help bring about meaningful change.
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As we celebrate this day dedicated to the contributions & achievements of workers, we want to take a moment to acknowledge the invaluable input from our patient and caregiver community. #LaborDay #RareDisease #ChonicIllness
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Join us on 9.25, 1pm ET for a live webinar on fighting fraud in the market research world. RPV's Wes Michael will share practical methods RPV has developed over the last 13 years to reduce fraud in both qual and quant research. #MRX #HealthcareResearch.
app.livestorm.co
Across the market research industry, 15% to 30% of responses are estimated to be fraudulent. This growing problem is costing the industry hundreds of millions of dollars and putting the reliability...
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Register today for tomorrow's live webinar on patients & clinical trial co-design, presented by @RareRevolutionM & featuring RPV President Wes Michael. #ClinicalTrials #PatientEngagement
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RPV's Pam Cusick is interviewed on the latest episode of Story Conversations Podcast, discussing the power & importance of patient stories. #RareDisease #PatientVoices #ChronicIllness
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RT @rarepatientvoic: We surveyed past, current & potential clients to learn about satisfaction across recruiting companies. Here are some h….
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RPV's Wes Michael & Stacey Haines were guests on the Arachnoiditis Unfiltered podcast recently. The conversation included how connecting patients with researchers is changing the narrative in rare disease. The episode is live: #RareDisease #Patients
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We surveyed past, current & potential clients to learn about satisfaction across recruiting companies. Here are some highlights:. *We lead recruiters in overall satisfaction.*We top the list of recruiters customers are likely to recommend.*94% will consider using us again
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Meet our team! Laurie Cotumaccio joined RPV in 2023 as a Marketing Associate. Read more about Laurie: #TeamWork #marketing #ThoughtLeadership
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Did you know that we have thousands of non-rare disease patients in the RPV community who are living with more common conditions like asthma, cancers, & diabetes in our community? Learn more about RPV in our FAQ: #PatientRecruitment #ResearchRespondents.
rarepatientvoice.com
How is your pricing set up? Expand For all of our studies we have a fixed set up fee and the other fees are paid per complete. See our link ... READ MORE
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#ThoughtLeadership is important to us at @rarepatientvoic. Check out some recent podcast interviews featuring our President and SVP here. #PatientRecruitment #RareDisease #ChronicIllness.
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@rarepatientvoice has been named one of the 31 top qual research companies by @Quirk's! Read more: #QualResearch #PatientRecruitment
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Last month, RPV Marketing & Communications Director Laura Mullen took part in a LinkedIn Live discussion, presented by Idea Citizen, on community & connection. The live event is now available as an archived recording. #community #leadership #connection
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At @rarepatientvoic, we’re proud to stand with the disability community—and we’re committed to continuing the work. Let’s keep moving forward, together!.#DisabilityPride #InclusionInAction #PatientVoice
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ICYMI: Check out the recording of the RPV/Patients as Partners in Clinical Research June 10 webinar on patients and clinical trial co-design. #ClinicalResearch #PatientEngagement #ClinicalTrials.
theconferenceforum.org
Rare Patient Voice shares survey results from patients on their attitudes, concerns and feedback on clinical trial co-design.
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RPV's Wes Michael shared his post-conference follow-up strategy with Retail Tech Media Nexus recently.
linkedin.com
Conferences are more than who you meet—they're also about who you miss. Wes Michael shared a smart follow-up strategy that too many people overlook: ✅ After a conference, don’t just connect with the...
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Looking for a deeper dive into news and thought leadership from @rarepatientvoic? Follow us on LinkedIn:
linkedin.com
Rare Patient Voice | 9,208 followers on LinkedIn. Helping patients and family caregivers share their voices | Rare Patient Voice connects patients and family caregivers with all types of research...
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RPV's Wes Michael was recently interviewed on the MM+M Podcast. Listen now:
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Recently, Run Radio Podcast host Trina Wilcox & Pam Cusick, Senior VP of Rare Patient Voice discussed the importance of reshaping patient engagement, and inclusion and representation in healthcare research. The episode is live:. #wellness #PatientVoice.
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