Flutters and Strutters (Formerly FibroFlutters)
@FibroFlutters
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Non Profit for chronic (FibroFlutters) & rare illnesses (ZebraStrutters) Patient Advocacy Organisation Reg. No. 14065901
UK
Joined April 2014
🟪 In a few weeks' time, I will be speaking and co-facilitating a 'Hackathon' at Pharma 2025. 🔶️ Key Points of Focus. What does true partnership between pharma and patients look like in the EU?. ▪️Data and Tech for enhanced Patient Engagement. Attendees will be exploring the
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RT @IASPpain: This #EditorsPick “Discovery and development of an oral analgesic targeting the a2B adrenoceptor” reports a surprising result….
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RT @AChVoice: "This is the comfortable lie that most people tell themselves so that they can move thru life without having to think about t….
disabledginger.com
And what would happen if we stopped hiding and showed the world the depths of our suffering?
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RT @DaleRockell: A post about being aware of the signs, & understanding your traits, to research and make changes for coping with #Fibro li….
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RT @NHSNW: NHS 111 online provides quick medical advice, is easy to use and will direct you to the right service. for your needs. When you….
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RT @PlainLangSumm: DELIVER study results reveal important findings on a quarterly infusion therapy for migraine prevention. Research shows….
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RT @LumpyandFriends: More Adorable Cushion Designs Released…. Golden Heart Badger Cushion 🦡🦡.These cozy accessories are perfect for your s….
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RT @LumpyandFriends: Happy Bank Holiday Monday you Lovely People ❤️.The most perfect picture of one of our four Fox cubs, Honey, thank you….
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RT @Ataxia_and_Me: its #BankHoliday .Its also 1 month to go !. International Ataxia Awareness Day.25th September.#Ataxia #RareDisease.#IAAD….
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RT @NHSEngland: Thank you to everyone working across the NHS this bank holiday weekend💙 . If you need medical help, please use 111, or for….
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RT @Ataxia_and_Me: Sign up to raise free funds for us with @giveasyoulive before 31st August and you'll earn us a £1 bonus donation > https….
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RT @NHSNW: Some GP services will be available over the bank holiday. If you have a health concern, contact your GP practice or use NHS 111….
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RT @NHSNW: You can call NHS 111 and select the mental health option to get help 24/7 from a mental health professional in the North West.….
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RT @AChVoice: “We want to strive to have #normal lives. And it Costs us, in pain, in fatigue, in #stress, in worsening health, in #MentalHe….
brainlessblogger.ca
Denial is the first stage of chronic illness. Don’t you believe for one second it doesn’t rear its head again and again. Coping is a process, not an end game, so it can crop up at any time. Denial,…
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RT @AChVoice: “Find people who #understand #ChronicIllness, like other #patients – It can be so exhausting to try & talk to #healthy people….
katethealmostgreat.com
Living with a chronic Illness can be tough on you physically and emotionally. Let's talk about mental health and chronic disease management.
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RT @LungCancerEu: Could POCUS-guided lung biopsies speed up diagnosis & improve pathways?. A Canadian team tested using handheld ultrasound….
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RT @NHSuk: Some GP services will be available over the bank holiday weekend. If you have a health concern, contact your GP practice or u….
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RT @moversand6: ✨Our Paul Mayhew-Archer will be performing his show – Incurable Optimist – at the Hastings Centre on August 30th. Proceeds….
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RT @ResearchWales: Are you making a difference through research? The Health and Social Care Impact Award is now open for nominations #Rese….
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