
Flutters and Strutters (Formerly FibroFlutters)
@FibroFlutters
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Non Profit for chronic (FibroFlutters) & rare illnesses (ZebraStrutters) Patient Advocacy Organisation Reg. No. 14065901
UK
Joined April 2014
🟪 In a few weeks' time, I will be speaking and co-facilitating a 'Hackathon' at Pharma 2025. 🔶️ Key Points of Focus What does true partnership between pharma and patients look like in the EU? ▪️Data and Tech for enhanced Patient Engagement Attendees will be exploring the
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The NHS has given 4.3 million flu vaccines so far this autumn — nearly a million more than last year. Flu rates are increasing as NHS teams continue work to protect those most at risk. Read more ➡️ https://t.co/FbQBcz5EtW
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🙌 A huge thank you to all our members who invited their local MPs to see us at Labour Conference! 🗣️ Because of you, we’ve signed up more than a dozen MPs ready to speak up for physiotherapy in Parliament. 💪 Together, we’re making sure physiotherapy stays at the heart of
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A 10-Year Health Plan is only as strong as its actions. If we want prevention, digital innovation, and care closer to home MSK must be front and centre of implementation. Let’s make the Plan real for the 20 million people living with MSK. #BoneAndJointWeek
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We are supporting #CTWeek25 #MoreThanAMiniBus with an #Ataxia is NOT a Foreign cab /#Taxi display at the official opening of #GreenDragonBus new office #CommunityTransport
@CTA_uk
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Who might you meet at #RAREsummit25? 👋 Researchers, clinicians, biopharma, tech innovators, patient groups + those with lived experience. Lots of opportunities to network & connect across the rare disease community. Be part of the conversation. Tickets: https://t.co/JEhhoHmMZK
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A massive thank you to our #RAREsummit25 media partners @PatientWorthy Use MY data, @HinxtonHall & Cambridge Network for your support in spreading the word about #RAREsummit on 6 Nov 25! For what's on, and to get your tickets to join us, visit our website: https://t.co/gS99ctOnof
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The #RAREsummit25 agenda is now live! Packed with diverse voices, patient-driven insights & bold innovation. https://t.co/3QhgDpn4xU The countdown is on - grab your ticket to join us on 6 Nov to be part of the conversation. And don't forget to book your dinner spot!
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‼️ @WHO warns: hospitals worldwide are seeing more antibiotic-resistant infections & AMR deaths could rise 70% by 2050. It’s real threat for people with #lungcancer. Treatment weakens immunity & infections are already a leading cause of death: ⚠️ 1 in 10 cancer deaths are from
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Regular breast screening can find breast cancer before you notice any signs or symptoms. If you have been invited for breast screening but missed or did not book your appointment, you can arrange one here ➡️ https://t.co/xncgsW3gBp
#BreastCancerAwarenessMonth
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A smorgasbord for the Badgers, apples, plums cheese and nuts! Just watch Bramble’s nose pick out the posh nuts then he’s off with his cheese 😂🦡🐾🐾❤️
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Don't dismiss the early signs of a heart attack. A squeezing across the chest. A feeling of unease. It’s never too early to call 999 and describe your symptoms: https://t.co/gtJCOA1A55
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MSK conditions like arthritis don’t just cause pain. They limit mobility, take people out of work, and reduce independence. On World Arthritis Day it’s time we treated them like the national priority they are. #BoneAndJointWeek
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Happy Birthday to our wonderful ambassador and great supporter of unpaid carers Angela Rippon 🎉
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"#MastCells act like meat tenderizer on #ConnectiveTissue. They don’t destroy your tissue all at once. They quietly soften, weaken, and loosen it." (The #hEDS #Immune Connection: What New Research Means for Your Health): https://t.co/g2RIZyCoJ5
#EhlersDanlosSyndrome
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NHS 111 can help if your child has a medical problem and you don't know what to do. You can go to https://t.co/TNCvjHiKEu for advice. If your child is under 5, you should call 111.
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Quitting smoking is the best thing you can do for your health. When you stop, you’ll experience health benefits almost immediately! It’s never too late to quit. 💪
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For #WorldMentalHealthDay we’re sharing early findings from the largest-ever survey on mental health in #lungcancer. 🔹 46% say emotional struggles interfere with daily life 🔹 Many say they were never even asked 📢 Full report launches next week during #ESMO25 🎟️ Free event -
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If you’re a registered nurse, midwife, nursing associate or student, we need your help to develop a professional strategy for nursing and midwifery in England. 💙 Complete this survey by 13 October to share your experiences, aspirations and ideas. https://t.co/4fSp3XDQjc
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#Anxiety is something many of us experience, it can affect how we live, work, and enjoy the things that matter most. Understanding your anxiety is the first step in learning how to manage it.💜 Download our free guide here: https://t.co/L6H9oGqjSU
#WorldMentalHealthDay #WMHD
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When a child is unwell, it can be worrying. Use Alder Hey Hospital’s online symptom checker tool to find information on the most common symptoms in children https://t.co/ccFMs2YZxJ
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