
Chelsea Roff
@ChelseaRoff
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Executive Director of Eat Breathe Thrive, a nonprofit serving people with eating disorders. Engaged in research & policy on risks AD laws pose to our community
Joined March 2012
"My session was interrupted by Leadbeater explaining to the committee that I and other witnesses didn't understand the nature of suicide in life-limiting physical illness.". â Prof @AllanOHouse, in letter to the @guardian
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1/ Today in Parliament, I referenced Court of Protection cases where young women's eating disorders were described as âterminal," "end-stage," and ânot treatable." . Here are the receipts. đ§ľđ #AssistedDying.
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This is already happening. Our study included a woman in her 30s with anorexia and depression who was euthanised in the Netherlands. Before her death, she said she was âhappy to improve anotherâs life by donating her organs.â. People who feel they are unworthy of life are at.
Organ donation after assisted dying is likely if @kimleadbeater's bill is passed. Nearly 1/3rd of Dutch donors after assisted deaths had mental health issues. The current bill allows co-existing mental illness.= bias in both patients and doctors.
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How much collateral damage are MPs willing to accept to pass this #AssistedDyingBill?. Yesterday, a witness inaccurately dismissed the deaths of 60+ women with anorexia as âjust one or two cases.â. I wonder, if it were her daughter, would she still call it a minor issue?.
It appears we are preparing to accept the idea that a few âwrongâ deaths is worth it for this scheme. We wouldnât make this argument about the death penalty. âTerminal anorexiaâ is highly contested. Many women simply do not get the support they need to live. Very worrying.
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1/ Women are dying under assisted dying laws at rates that should alarm us allâbut few are paying attention. Why are women disproportionately affected? What does it say about our views on illness, disability, and care?. We've started a podcast to talk about it âŹď¸ đ§ľ.
"All the cases we identified were women". NEW: Assisted Death and Women podcast đ§ . For a change this momentous, we need debate on how this could affect us all.
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The Netherlands is reporting a sixfold increase in deaths by euthanasia among adults under 30 since 2020. Euthanasia deaths for psychological suffering alone have surged 60% â after years of 1â2% annual increases. Heartbreaking, and not dissimilar from the cases in our study.
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Today, hundreds of MPs walked past those absurd ads of women dancing in their pajamas, past disabled people protesting in the cold for their right to liveâand voted for the #AssistedDyingBill anyway. Watch @thelizcarr brilliantly explain what they overlooked.
âIâm shocked a Labour government would do thisâŚand make this one of the first things they do.â . âDo you blame the Prime Minister for that?â. âOf courseâŚâ. Christian Fraser speaks to actor and campaigner Liz Carr in the moments after MPs backed proposals to legalise assisted
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The question before MPs now is: how many deaths are they willing to accept as collateral damage?. My letter to the editor in todayâs @Telegraph
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The committee cannot make informed decisions based on false information. I respectfully request @kimleadbeater and the committee formally correct the record to reflect the facts.
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A striking exchange with @KimLeadbeater, who once again brushed aside concerns that young people with eating disorders could die as a result of her bill. The committee has seen the evidence. They know the risks. Yet they chose to leave these loopholes wide open for exploitation.
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Congrats to the one and only @thelizcarr, whose brilliant documentary sparked a national conversation about the insidious prejudice disabled people still face everday â and the danger of laws that enable the ending of lives deemed less worth living.
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1/ In todayâs committee, @kitmalthouse confidently told @NazShahBfd she was wrong about anorexia and the courtsâwhen in fact, she was correct. He suggested courts have almost always ordered force-feeding in anorexia cases. The truth? They has almost never done so. Receipts
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Today, every single amendment backed by eating disorder experts and charities was rejected by the committee. Grateful to @NazShahBfd, @danny__kruger & others who spoke powerfully about the realities our community faces in the NHS. Ironically, an MP speaking against the
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âItâs not a choice at all.â. Baroness @Tanni_GT warns that #AssistedDying could leave disabled women in abusive relationships more vulnerable â especially in a system that often dismisses abuse by carers and family members.
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1/ This bill is said to have the strongest safeguards in the world. Does it?. Unlike Oregon & California, it only requires that a person has mental capacityâ it does not ask whether mental distress or social factors are driving their wish to die. @AllanOHouse was brilliant.
5. Pro-Bill MPs very hostile to the idea that mental state might be relevant. Also continuing their hostility towards psychiatrists (remember they blocked Royal College of Psychiatrists initially). They want things to be black and white. Grey cannot be tolerated.
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Brilliant column from @HadleyFreeman, capturing the complacency of a committee that failed to pass a single safeguard to stop those with anorexia from qualifying for âdeath by state.â. âOffering an anorexic assisted death is like offering her liposuctionâher desire for it is a
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The Impact Assessments are out. Not a single mention of eating disorders or anorexia. Our study documented 60+ assisted deaths of women with eating disorders abroad â including in three jurisdictions cited as comparable to this bill. Why the silence?.
Neither the IA nor Equality IA reflect on the impact of enabling those with eating disorders to access assisted dying. 75% of people with eating disorders are women.
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Itâs remarkable that this is being framed as if a social worker, psychiatrist, and lawyer will assess the person requesting assisted death. In reality, no one on the assisted death panel even has to meet the patient, and the judge isnât directly involved at all.
The amendment states that the panel doesnât have to meet the patient. Not even online. So how exactly is the psychiatrist going to verify capacity? And how exactly is the social worker going to verify absence of coercion? Are the 50 signatories aware of this?.
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Some of the most respected experts in eating disordersâ including senior doctors and professors from Johns Hopkins and RCPsych â wrote this letter. Their concerns were ignored.
Kim Leadbeater and the eating disorders experts: a timeline. 1. Nov 14: 18 experts, including the leadership of the Royal College of Psychiatristsâ ED Faculty, warn that the billâs definitionâdespite appearancesâcould apply to eating disorders. âIt fails the public safety test.â
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2/ @DrNaomiRichards, an anthropologist and researcher in 'end of life studies', told the committee: . âThe numbers are really tiny. youâre talking one or two people in the history of assisted dying⌠itâs a very minor issue.â. This is false.
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The bill has not yet passed, and we are already seeing efforts to walk back the six-month prognosis "safeguard.". This paired with the option for âa person in good standing in the communityâ to act as a proxy and sign off on a person's assisted death is very concerning.
We said the assisted dying bill would be a slippery slope - that it wouldnât stay at 6mo to live, and a terminal illness. Now members of the bill committee are putting forward an amendment to make it 12mo to live where there is a neurodegenerative condition
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I was in this meeting and noticed halfway through that there was a staffer in the corner, furiously taking notes. The sensitivity of the discussion was clear. If Kim was truly âkeen to engage with and listen to colleagues,â her team should have made their presence known or
In todayâs @times, @sarahditum reveals how a private, invitation only, sensitive discussion - dealing with womenâs experiences of coercion and abuse and risks of the Leadbeater bill - was monitored without participantsâ knowledge by Kimâs staff. @JamillaHussain1 was present.
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At some point, failing to engage with evidence stops being oversight and becomes a deliberate choice. Anorexia isnât treated in a utopiaâitâs treated in the NHS. As @danny__kruger points out, we've already seen doctors opine that young women with anorexia have irreversible and.
âItâs very important that this committee doesnât get too hung up on anorexiaâŚâ. Said by an MP on the assisted suicide/dying bill committee this afternoon to @NazShahBfd who tried with @danny__kruger to get an amendment agreed to protect patients with eating disorders
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1/ Powerful segment on @BBCWomansHour this morning. In May 2023, a young woman with anorexia was described in the Court of Protection as "untreatable" and in the "pre-death stage" of her illness.
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âOur view is that the bill is irredeemably flawed and not fit to become law.â. A group of Labour MPs are sounding the alarm after the committee failed to strengthen safeguards and address major risks to public safety.
Along with other Labour colleagues I have written to MPs today following the conclusion of the Assisted Dying Bill's Committee Stage to outline why this Bill remains irredeemably flawed and unfit to become law.
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Canada promised #assisteddying would be rare and only for the terminally ill. Now itâs the 5th leading cause of deathâand soon, lethal injections will be offered to those with âtreatment-resistantâ mental disorders. To say this could never happen in the UK is naive.
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Lest we forget, we are talking about a bill that would allow for the provision of lethal drugs to end a personâs life. And the sponsor of the bill thinks the âsafeguardsâ in the codes of practice should be optional? đł.
Listen to @danny__krugerâs speech imploring members of the committee to AT LEAST make compliance with the codes of practice obligatory - for the sake of PUBLIC SAFETY. No, says Kim Leadbeater, I trust all doctors to behave appropriately and want them to have âflexibilityâ. đł
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Yesterday, the committee rejected every amendment that could have stopped people with eating disorders from qualifying for assisted death â ignoring all expert evidence submitted on this topic. One MP stated he reviewed the evidence over his lunch break. Despite calls from.
đ¨NEW: Anorexia patients could access assisted dying after MPs reject bid to close loophole, charities warn. @beatED @ChelseaRoff @HopeVirgo âextremely disappointedâ Leadbeaterâs committee voted down @NazShahBfdâs amendment aimed to exclude sufferers. đ
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I can already see how this would play out in eating disorder services. A 17-year-old is told they have a âsevere and enduringâ eating disorder, âtreatment is futile,â and their âprognosis is poor.â If they donât increase calories, their death is âlikely within six months.â.
Shockingly, the Westminster bill allows doctors to *suggest* assisted dying to under 18s. Listen to this extraordinary @nmdacosta interview on the rushed bill before MPs
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The concept of âterminal anorexiaâ was developed to enable people with eating disorders to die by assisted death. Framing the symptoms of a treatable mental illness as an informed choice to die reflects a profound misunderstanding of anorexia. As @ProfLAppleby notes, respect
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I am hearing a lot of âfor it in principle, but not this billâ this week. Turns out, drafting laws that give the state power to help people end their lives is harder than it seems.
i am, philosophically and personally, pro-euthanasia. i had to watch my father die slowly over the course of 14 hours after he asked for (and was, of course refused) a quick death. this bill, however, is shaping up to be a complete travesty, and i cannot support it.
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There is currently no safeguard in the #AssistedDyingBill to prevent this from happening here. MPs must look closely at what is written in the bill and the international evidence. Laws expand through interpretation, not just amendment.
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Oh, it's only just a few deaths. just a few people with eating disorders, nothing to worry about. Is it though?.
Are only a tiny number of anorexic women given assisted death in models like the one proposed in the UK? And does it matter? . After @NazShahBfds question (and the response) in Assisted Dying Bill Committee, we give this issue some of the time it needs in upcoming Ep 2 of
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This is what happens when safeguards are dismissed as barriers. In the Netherlands, young people aged 16+ do not even need parental consent to die by euthanasia.
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âPolitical language is designed to make lies sound truthful and murder respectable, and to give an appearance of solidity to pure wind" â George Orwell.
Excellent point by @Rebecca_SPaul: MPs should not be squeamish about using the term #suicide when they are dealing with the #Leadbeaterbill. #assisteddying=#assistedsuicide
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Alicia Duncanâs mother died by assisted death just four hours after she was released from a psychiatric hospital, where she was hospitalised after attempting to take her own life. She has submitted written evidence to the committee. It has not yet been posted.
We think MPs should listen to what's gone wrong in Canada's assisted dying. Donna Duncan's story must be heard - told by her brave daughter Alicia. It's one of somersaulting horror - and state and professional failure of a fiercely independent woman.
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Whatâs the point of line-by-line scrutiny if the only people with the votes to amend the bill think itâs fine as it is? . Legislative theatre at its finest.
If you want a quick read-out on how line-by-line scrutiny of the Assisted Dying Bill is going:. 1) All amendments not brought by Bill supporters are getting voted down 8-15 (I'm no mathematician but that's not exactly reflective of the 55% vote in favour at 2nd reading), (1/3).
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1/ Yesterday in Parliament, we from bereaved families, lawyers, clinicians, and people in recovery about how the #AssistedDyingBill could endanger people with eating disorders. Huge thanks to all the MPs, peers, and stakeholders who joined us. Hereâs what we heard đ§ľđ
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đ¨: Leading charities and advocates have written to MPs urging them to close dangerous loopholes in the #AssistedDying bill that put people with eating disorders at risk. Anorexia is not a terminal condition. Yet under this bill, a person with anorexia could be given lethal
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The assisted dying bill has been sold as having the strongest safeguards in the world. Yet, unlike Oregon, it does not contain any provisions for a mental health assessment â not even if there are indications of a mental disorder. Was this merely an oversight or a choice?.
The Assisted Billâs default presumption is that thoughts to end oneâs life in the context of terminal illness is not due or linked to mental illness. This is another example of stigma faced by people with mental illness. The Bill must include a mandatory psychiatric assessment.
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Many warn that legalising assisted death will undermine suicide preventionâespecially for those with life-limiting conditions. But sometimes, it doesnât hit home until you hear a real story. Prof. @LeonieHerx shares how a psychiatry referral was turned into a MAiD assessment.
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"Is the patientâs request a kneejerk reaction to a new diagnosis that terrifies them? Have they been plunged into a suicidal depression that may swiftly pass? Might a desire to die be replaced by one to live, once they have received proper, patient-centred palliative care?".
âA âjudge plusâ panel is not an MDT, nor does it come close to being one, because no one on the panel knows the patient. Moreover, the panelâs scrutiny comes only at the end of the process, not at the beginningâ
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Suicide prevention is part our healthcare system. So where do we draw the line between AD & AS? If someone is âdying already,â do they no longer deserve suicide prevention?. The wording of this bill will set that boundary â and if thereâs room for interpretation, it will expand.
âThis is going to change our approach to suicide preventionâ - Prof Allan House, Emeritus Professor of Liaison Psychiatry
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Earlier this week, witnesses in Parliament dismissed concerns that women with eating disorders have died by assisted deathâcalling it âa minor issue.â. The reality? At least 60 women have died this way. In our latest Assisted episode, Dr. Catherine Cook-Cottone and I break down.
"I've watched people mortgage their house 3 times while they lose their kid". "Then to think there's a dr out there somewhere that says "come here, I'll give you this, listen to this story". Why assisted death of anorexic young women is not a minor issue. Listen to experts
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Our study found that 95% of people with eating disorders who died by assisted death were described by doctors as having an untreatable condition. MPs were shown this evidence â and still voted to reject every amendment that could have protected people with eating disorders.
Exactly the kind of situation described to the assisted dying bill committee: but one which Dr Simon Opher MP dismissed could arise. He urged MPs not to get âtoo hung upâ on anorexia. @BBCr4today @Emmabarnett .@JanetEastham @AgnesAyton
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Leading psychiatrists warn there isn't enough capacity in the workforce to ensure every person who requests assisted death receives a psychiatric assessment. Why not consult @rcpsych before assigning the profession a central role in assisted death panels?
đľEXC: âNot enough psychiatristsâ to staff assisted dying panels. Leadbeater claims âseveral thousand psychiatristsâ are willing to do the work, but experts disagree. @Telegraph learnt she didnât consult @rcpsych before assigning the profession a key role.
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âAnorexia acts as a Rorschach test for assisted dying campaigners⌠if helpers were to admit that the physical torment of a severe anorexic, as awful as it is, is not enough to make an assisted death justified, they might just have to rethink their whole model.â. Brilliant piece
I wrote for @unherd about two contradictory ethical ideals fuelling the campaign for Assisted Dying - and how anorexics fall down the slippery slope as a consequence
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A pharmacist and barrister has highlighted serious legal gaps in the regulation of drugs used in assisted death:. 1ď¸âŁ No legal mechanism for sale/supply of lethal drugs to doctors. 2ď¸âŁ Pharmacists could be criminally liable under the Suicide Act 1961. 3ď¸âŁ Conscience protections.
The drug sale and supply process for the Assisted Dying Bill has received very little if any parliamentary consideration. There are some serious problems with it which would need the help of lawyers and pharmacy experts to fix. @kimleadbeater . Before looking in detail at the.
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Not a single amendment backed by eating disorder experts was accepted. Despite clear evidence of the risks, a majority of MPs on the committee refused to close loopholes that put people with eating disorders in danger. They know the evidence. They chose to dismiss it.
3. Feb 25: Dozens of charities and advocates sign a joint letter explaining that the billâs definitionâdespite appearancesâcould threaten people with eating disorders. They urge the committee to support Amendments 9, 10, 11, 48 and 402. All five are voted down that week.
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In written evidence to the committee, @rcpsych stated that 58% of psychiatrists would not be willing to participate in assisted death services, including capacity assessments. A serious concern for implementation.
The decisions will no longer be made by a High Court judge but by a panel (lawyer, social worker and psychiatrist). The fact a judge chairs the overall commission has nothing to do with who makes the decision. The Bill was sold as the safest based on High Court. That's gone.
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One of the most dangerous aspects of the #AssistedDyingBill is that it allows those with incurable illnesses be deemed terminal if they refuse or canât access treatment, making death foreseeable w/in six months. Will this loophole in the 'safeguards' be addressed in committee?.
For every story of a terrible death (which should have been averted by better care) there are stories like these, from people who would be eligible for an 'assisted' death under the Bill being debated. From a constituent:
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Not a single Canadian witness was invited to testify before the committee. The notion that Canadaâs experience with assisted dying isnât relevant to the UK debate is misleading. Fortunately, some v nice Canadians have taken the time to explain why and what we should know âŹď¸.
Safeguards become 'barriers'. No one from Canada was invited to speak to our Assisted Dying bill committee. So we're speaking to experts on their disastrous MAID system, and they ALL had this to say. Now hear what the invited Australian assisted dying experts told parliament:
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A scathing indictment of the bill and the "dogâs breakfast of a process" that saw it emerge from committee with fewer safeguards than it started with:. âThe bill is not fit for purpose, its provisions a mess, and its journey through parliament an unconscionable waste of time.â.
The Times isnât pulling any punches. Whatever your views about the principle of assisted dying, this is no way to change the law on something so momentous. The dangerously flawed assisted dying legislation should be abandoned.
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đ§ľ 1/ Could assisted dying for âterminal anorexiaâ be coming to the NHS?. Our research shows how legal loopholes in other countries have allowed young people w/ eating disorders to qualify for #assisteddying. Here's why MPs should be concerned đ
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1/ After another look at the #assisteddying bill, I take this back. It doesn't even require 2 physicians. "Coordinating doctorâ is defined as any âregistered medical practitioner, who has such training, qualifications and experience as the Secretary of State may specify.â đ§ľ.
"It only takes 2 physicians, in this #ADbill, to maintain an assisted death programme for eating disorders - and a judge rubber stamping it". @ChelseaRoff has already seen court cases where young UK women are decided to be terminally ill with anorexia- & the judge relies on the
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1/ Very important data here, which received little attention in committee. Assisted dying is often framed as a âgood death.â But how safe are the drug protocols?. The international data is worrying. âŹď¸đ§ľ.
Recent data from Dr. Jessica Kaan (who gave evidence in favour) which finds substantially prolonged deaths in US & discusses distressing complications that can happen during the dying process. Did not hear this asked about in #AssistedDying Committee
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We do appear to be going around in circles. Speaking to @Telegraph, Ms Leadbeater insisted that âanorexia would not qualify a person for assistance to shorten their lives.â. But as highlighted in last weekâs evidence session, mental disorders cannot be separated from their
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âWe know from research by @OtherHalfOrg that 88% of unlawful assisted suicides in the UK are perpetrated by men against women.â. Chilling stats and a powerful piece by @Jess_Asato & Cherryl Henry-Leach of @STagainstDA_.
The Assisted Dying Bill needs more protections to prevent MPs from creating a new and legal way for domestic abuse perpetrators to abuse â and, ultimately, kill â their victims. write Labour MP @Jess4Lowestoft and @STagainstDA_'s Cherryl Henry-Leach
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The strategy with assisted dying laws always seems to be: push the bill through at any costâdeal with the consequences later. We touch on this in our latest episode of Assisted. đ˝ď¸âŹď¸ . Subscribe anywhere you get your podcasts:
Women with anorexia have been given assisted deaths. But what happened when researchers uncovered this? 'Thanks' and a promise to pause? No, more like:. 'before we ban assisted dying for eating disorders, shouldn't we kind of see how things play out a bit'
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Thank you, @Rebecca_SPaul, for the courage, heart, and clarity you brought to this debate. You cut right to the core of whatâs at stake â precious human lives, deeply loved and worth fighting for.
"what would you want to happen if this were your daughter". MP @Rebecca_SPaul deeply frustrated at the Assisted Death bill committee's rejection of all additions to safeguards so far. Asks committee to imagine an anorexic girl refusing treatment.
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Itâs been profoundly moving to witness @NazShahBfdâs leadership over the past ten weeks. Rarely do we see a leader stand firmly and unapologetically in the ground of her own lived experience of suicide, speaking for those whose voices are often absent from the halls of power.
Naz Shah: âThe assisted dying bill is not fit for purposeâ - New Statesman. âI am scaredâ Shah told me âI do not want to be the person who says, âWe knew this was coming. We failed. We failed our society.â That is not what I want.â
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