EXPAND-The European Immuno-neuropsychiatric Assoc.
@theEXPANDAssoc
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EXPAND is a pan-European patient advocacy organization for those with immune-mediated, neuropsychiatric diseases and/or disorders.
Netherlands
Joined May 2021
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"...glycolipids and glycoproteins, which can stimulate autoimmunity through their molecular mimics of various components of human cells, particularly in the brain."
pmc.ncbi.nlm.nih.gov
Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) is a clinical condition characterized by a sudden and dramatic obsessive-compulsive disorder with a suggested post-infectious immune-mediated...
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"Mycoplasma pneumoniae contains some lipoproteins considered to be potent inducers of cytokines, equivalent to bacterial lipopolysaccharide and its cytoplasm containing strong immunogenic molecules, such as..."
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Mycoplasma pneumonia can trigger PANS (Pediatric Acute-onset Neuropsychiatric Syndrome), but the child/adolescent may not present with the usual physical symptoms. #MedicalRuleOuts are needed to properly diagnose and treat #PANS and #PANDAS.
#Mycoplasma is likely a main culprit behind the surge in pediatric cases of pneumonia worldwide. https://t.co/DPvdxO7ReB
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💥💥I am glad to share with you our new MSc in Psychology and Neuroscience of Mind-Body Interface! Join me, @ParianteLab, @MondelliValeria, @paola_DZN and our team to unravel how the #mind and #body interact in powerful ways that affect our health 💥💥 https://t.co/chYaxsUZBR
kcl.ac.uk
Our Psychology and Neuroscience of Mind-Body Interface MSc will enable you to gain a theoretical and practical understanding of the psychology and the neuroscience underlying brain/mind processes in...
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#PANS and #PANDAS features in @TheEconomist! @natashaloder discusses the conditions, their lack of #recognition & how they are an international problem. Access here: https://t.co/0oAl91X1sT (Although the article is behind a paywall you can access using the free month's trial)
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In this @UlyssesNeuro podcast, two Irish families bravely share their stories on what it's like as parents to children with Pans/Pandas. @NeuroimmuneFDN @ASPIREpans
@MyKidIsNotCrazy @theEXPANDAssoc @PandasPans
https://t.co/Hc9HameLt2
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Support for #PANS & #PANDAS strengthens in #Parliament as a result of the backbench debate on 12th September and the response from Parliamentary Under-Secretary of State for Health and Social Care, @mariacaulfield Find out more: https://t.co/mhpRHBpGEV
#JournoRequest #Awareness
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How is encephalitis diagnosed? Watch our latest animation for a simple breakdown on how doctors determine whether a patient has inflammation of the brain. Please RT
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"How Peripheral Infection Triggers Brain Inflammation" is now available to watch on demand! The 90 minutes webinar includes a presentation followed by a fascinating Q & A. https://t.co/Pp4J0tyyZj
#PANS #PANDAS
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"...thus it would be reasonable to consider the brain as another potential target of immune dysregulation." This is important research that demonstrates the safe and beneficial use of monthly IVIG to mitigate/resolve immune-mediated behavioural and neuropsychiatric symptoms.
Our article on the role of #immunotherapy in #downsyndrome regression disorder (DSRD) is now published in @Transl_Psych! This is the largest therapeutic study to date and huge step forward in understanding this condition! @ChildrensLA @GDSFoundation @USC
https://t.co/uolI5yhmEo
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📺 This webinar from @BenedictNeuro is aimed at medical professionals involved in the acute management of patients with viral encephalitis. It covers: 🔴 Initial management of patients 🔴 challenges of diagnostics 🔴 Update on diagnosis guidelines 👉 https://t.co/uZwCEqo1BN
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EXPAND envisions a future in which those suffering from PANS/PANDAS receive individualized, integrated and transdisciplinary treatment regardless of their age or where they live. We stand in solidarity with those advocating for insurance coverage in California. @GavinNewsom
Hey twitter Fam…can I get a little help getting my support for bill AB 907 @GavinNewsom attention? Very close to my heart. Helping the children of California get insurance coverage for PANDAS/PANS My daughter is in remission, other kids need our help. 🙏🏾
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"Suicidal ideation and communication were also found to be common in this population, and suicide attempts appear to occur at a young age. Furthermore, a subgroup of individuals reported extensive suffering including unbearable symptoms, hopelessness, and social isolation."
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"The results showed that a significant number of individuals with these disorders exhibit severe self-harming behaviors that include high frequency, violent methods, onset at a young age, and/or overlap with suicidal behaviors. ..."
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ABSTRACT "This study aimed to gain a better understanding of self-harming behavior and suicidality among individuals with Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and other immunopsychiatric disorders by surveying 240 mainly parental respondents..."
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SANE-Sweden produced an English-language version of their technical report on "Self-harm and Suicidality in Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Immunopsychiatric Disorders." The report was originally published in Swedish in 2021.
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The submission deadline has been extended for the @NIMHgov 2023 Global Mental Health Conference The Global Mental Health Conference invites all investigators wishing to report original and innovative global mental health research to submit abstracts.
We've extended the deadline to submit abstracts for the 12th Global Mental Health Research Without Borders Conference! Abstract submission continues until a critical volume is received. Register for this conference, taking place from Oct. 30-Nov. 1, 2023.
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