Jonathan Santoro, MD
@Drjonsantoro
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Pediatric Neurologist Specializing in Neuroimmunology and Down Syndrome Neurology, Disability Advocate, NIH-funded Researcher, Author, Educator
Los Angeles, CA
Joined April 2015
More than 16 million Americans are at risk of losing their health care because Republicans in Congress are rushing to pass a bill that would cut federal funding for Medicaid and weaken the Affordable Care Act. If the House passes this bill, it will increase costs and hurt
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Neurologists who treat rare disease frequently have to practice medicine in grey areas where advanced clinical trial data may not be available. Read more about @AANmember guidance on the use of treatments in the lack of substantial evidence: https://t.co/IvQIKlgt8d.
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AAN submits written testimony in support of increased funding for neuroscience research. https://t.co/g1NtEAONeO
#AANadvocacy
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This @AANmember program helped me grow so much as an advocate, leader, and neurologist. Don’t miss your chance to apply, deadline is next week! #AANadvocacy #AANPALF #AANleadership
📆 The deadline to apply for the Palatucci Advocacy Leadership Forum is March 18! Apply now for your chance to learn how to become an advocacy leader in your clinic, institution, or community. https://t.co/h2tMfpz6il
#AANadvocacy #AANleadership
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Our @KECKSchool_USC medical students are not just expert clinicians but researchers as well! Congratulations to Golbarg Rahimi on her recent publication on the link between #mitochondrial disease and #multiplesclerosis. Exciting work! https://t.co/KAV4AC0FxG
frontiersin.org
Although Multiple sclerosis (MS) and Leber hereditary optic neuropathy (LHON) have distinct pathophysiological mechanisms, they are both neurodegenerative co...
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More exciting news out of @ChildrensLA and @CrnicInstitute! In our recent study in #Downsyndrome regression disorder (DSRD), cerebrospinal fluid profiles show impaired blood-brain barrier. May be an entry point for a dysregulated immune system. Link:
onlinelibrary.wiley.com
Objectives This study sought to evaluate proteomic, metabolomic, and immune signatures in the cerebrospinal fluid of individuals with Down Syndrome Regression Disorder (DSRD). Methods A prospectiv...
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Exciting times at Neurology on the Hill! Our Stanford Neurology residents and alumni are diving into legislative advocacy, learning and making a difference in the field. Together, we’re shaping the future of neurology! 💪🧠 #AANadvocacy #NOH25 @AANmember
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Team #CA! #NOH25 @AANmember @FlippenII @Drjonsantoro #AANAdvocacy 🧠👏 @WNGtweets @AHDAorg @ahsheadache
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A mystery illness stole her son. Doctors in Canada couldn’t find the answer, but she wouldn’t give up
thestar.com
Mackenzie Wright joined a clinical trial that is bringing hope to Down syndrome families who have struggled with sudden, mysterious regressions.
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Great new article on the importance of neurodiagnostic testing in the work up of #downsyndrome regression disorder! Read more about our multicenter collaboration between @ChildrensLA and @UCSFHospitals, @UCSDHealth, @UToledo_Health and @StanfordMed. https://t.co/zzaKz3BF18
nature.com
Scientific Reports - Diagnostic abnormalities, disease severity and immunotherapy responsiveness in individuals with Down syndrome regression disorder
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Calling all #MOGAD patients to participate in a new research survey led by @Drjonsantoro, Prof Jackie Palace, @TheMOGProject, @JustJen_K, @wearesrna & @UCBMedia to help us better understand the burden of living with MOGAD so we can help improve the management around the world.
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CHLA’s Dr. Leigh Ramos-Platt shares insight on Elevidys, a groundbreaking gene therapy bringing hope to those with Duchenne muscular dystrophy, a rare genetic disorder. This therapy aims to slow disease progression and help protect muscles from degenerating, offering a brighter
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📣 CALLING ALL #MOGAD RESEARCHERS! We’re giving away 2-4 grants to help fund & accelerate research in MOGAD, valued up to $85,000. National & international Drs / Scientists & their Fellows are encouraged to apply! 🥼🧪👩🏻🔬🧑🏻🔬🧬👁️🧠 Link for instructions & how to apply can be found
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What a great story about my patient, Darci Owens, on her battle against @Downsyndrome regression disorder! Thank you @people for publishing the story of such an amazing human being! @ChildrensLA @USC
https://t.co/LW2qxRpc5E
people.com
Darci Owens, Alaska's first certified Special Olympics health coach, led a full life, including hosting an online cooking show. When she suffered a rare regressive disorder that left her catatonic,...
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We are delighted that the monthly London-Cambridge Down syndrome seminar series will return on Monday 21st October at 4pm BST with a talk from @Drjonsantoro ! Please share widely and join us. For full zoom details DM or contact over email. @t21rs @LonDownS @UCLIoN
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Key Point 1 from the article The Neurologist’s Guide to Drug Pricing in the United States by Drs. Kavita Nair and Jonathan Santoro from the August Autoimmune Neurology issue, available to subscribers at https://t.co/NQgD9mbymT.
@KavitaNair70 @Drjonsantoro
#Neurology #NeuroTwitter
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When Special Olympics athlete and health coach Darci became catatonic and started hallucinating, her mom learned about a new Down Syndrome Regression Disorder treatment pioneered by @Drjonsantoro at CHLA. Darci would soon be on the road back to herself.
chla.org
When athlete Darci suddenly became catatonic, her mom learned of a new Down syndrome regression disorder treatment at CHLA that is bringing her back to herself.
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The August Autoimmune Neurology issue, guest edited by Dr. Eoin Flanagan, is now available on https://t.co/mTa1fc5aX5!
@AANMember @EoinFlanagan14
#Neurology #NeuroTwitter #MedEd
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Our first-ever issue on autoimmune neurology, guest edited by Dr. Eoin Flanagan, publishes on August 1! @EoinFlanagan14 @StaceyLClardy @Div_Dubey @KavitaNair70 @Drjonsantoro @EliaSechi @ANASTASIA_ZEK @AANmember #Neurology #NeuroTwitter #MedEd
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