Rachel Crowley
@rachsail
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sailing, (virtual) stormchasing, sealife spotting. proud member RSGYC
Dublin City, Ireland
Joined June 2015
RT @jimconey: My son Charlie was born with a severe learning disability. For 12 years we never knew what was wrong…. then we got a phone ca….
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10k treasure hunt around Dublin for @rarediseaseday; really fun day from national treasures down to murals and a cracked key. Tired goodnight to all the #rare community tonight
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Blazing-fast image creation – using just your voice. Try Grok Imagine.
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A tree eating a bench! Rare and wonderful @KingsInns @rarediseaseday voted most weird thing today
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Netsuke at Chester Beatty - wonderful tiny funny animal beings on our treasure hunt made us smile @rarediseaseday #rare
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Butter that's over 2000 years old at the National museum! Nobody wanted to try it. @rarediseaseday treasure hunt, the sun has come out! #rare
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Start of family treasure hunt of rare unique and wonderful things in Dublin for @rarediseaseday #ShowYourStripes #rare @ERDERA_org @eurordis @rare_trial
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RT @IrishEndocrine: Rare disease research conference! .Final call for abstracts 📣 .24th Feb 2025.
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RT @irdirc: 📢 Scientific and Medical Calls for Proposals - @Telethon_France 2025 📢. @Telethon_France launched its calls for proposals to….
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Here is one for the trainees @IrishEndocrine.
Calling all Rare Disease Researchers!. We invite abstract submissions of case studies and rare disease research for consideration for poster presentation at the Rare Disease Research Conference 2025. Registration and full programme details to follow!.
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RT @rare_trial: We're THRILLED to see an Irish Rare Disease researcher awarded this prestigious prize by the @AmThyroidAssn well done Dr Ca….
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RT @RareDiseasesIE: Are you a Rare Disease Researcher? Apply to join HRB - RD Catalyst Consortium @UCDMedicine.Join healthcare professional….
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Moved from in person joint @IrishEndocrine @Soc_Endo meeting to online @ern_bond network meeting - SPINNING trying to take up all the collaboration & network opportunities @ERDERA_org @rare_trial.
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Reopening journal club with a bang! @UCDClinRes @EJPRareDiseases @svuh @RCSI_Irl @RAiNAllIreland @M4RareDiseases @UCDMedicine @IrishEndocrine.
We’ve got exciting topics lined up for tomorrow! 🎉 Dr. Bridget Moran on "Stickler Syndrome: NHS Care Pathway" and Dr. Kevin Gaughan on "Synthetic Biotic for PKU, Phase 2 Trial." All welcome, join us to learn, chat and connect! Register:
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RT @ProfFMcAuliffe: Exposure to human milk in early life associates with lower preteen adiposity, irrespective of duration #WBW2024 @sophi….
pubmed.ncbi.nlm.nih.gov
Exposure to human milk in early life was associated with lower preteen adiposity, irrespective of duration. Diet quality/inflammatory potential deteriorated between early childhood and the preteen...
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RT @rare_trial: 🧵Curious about what the RDCTN Journal Club is all about? 🤔 It’s not just another meeting—it’s a chance to explore research….
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RT @TeamIreland: ⛵️| SAILING . Dickson Waddilove sit in 2nd place at the end of Day Two in Marseille 💨. With an 8th place finish in the fin….
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So important that patients get access to a treatment that will improve their lives. Still looking for transition solutions in Ireland where this is available to children but not adults @rare_trial @RareDiseasesIE @DenisNaughten @IrishEndocrine.
@UkXlh @rachsail @RAiNAllIreland hopefully will add credence to increased availability for adults in Ireland and will allow our adolescents who have benefitted so much to continue their treatment through transition #xlh.
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RT @rare_trial: Join us in urging #EUELECTIONS2024 candidates to champion the #RareDisease community in Europe! Together, we can shape a fu….
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RT @RareDiseasesIE: Excited to announce we are hiring a Research Project Manager. An excellent opportunity for a highly motivated & orga….
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