Rachel Crowley
@rachsail
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sailing, (virtual) stormchasing, sealife spotting. proud member RSGYC
Dublin City, Ireland
Joined June 2015
Beaumont v. Vets Tuesday 7th October 2025, KO 8pm Thornfield Rugby Pitches, UCD
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Stuart Ralston and Ciara McDonnell relaxed before presenting on trials in adults with osteogenesis imperfecta and children with achondroplasia @ASBMR - great to see Irish patient data generating such valuable insights on the international stage! #raredisease
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I had the opportunity of reviewing "Constriction" at the @dublinfringe for The Irish Times. Link to the article: https://t.co/okYv8FHw81
#DublinFringeFestival #TheatreReview #ArtsJournalism #culturejournalism #PerformanceArt #Constriction #FringeFestival #irishtimes
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If you are Ciaran K and you lost your debit card, @IrishRail Pearse have it!
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And then later to @CiaraMcCiara presenting on combination therapy for patients living with achondroplasia! Irish trial activity well-represented!
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Little THRILL hearing Ben Leder give first shoutout @ASBMR clinical highlights to Stuart Ralston reporting on TOPAZ trial in osteogenesis imperfecta - thanks to all the patients especially our Irish cohort, who took part @svuh @UCDClinRes
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Great to meet up with @Dr_DalalAli yesterday @ASBMR ! Our former Fellow is now lighting up clinical care and guidelines for people living with rare bone disease. Being a trainer opens up networks and skillsets, and you make great friends
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My son Charlie was born with a severe learning disability. For 12 years we never knew what was wrong…..then we got a phone call out of the blue…. Today I’ve written about the amazing scientific discovery that changed our life https://t.co/URegR0Cpcg
thetimes.com
The latest breaking UK, US, world, business and sport news from The Times and The Sunday Times. Go beyond today's headlines with in-depth analysis and comment.
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10k treasure hunt around Dublin for @rarediseaseday; really fun day from national treasures down to murals and a cracked key. Tired goodnight to all the #rare community tonight
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A tree eating a bench! Rare and wonderful @KingsInns @rarediseaseday voted most weird thing today
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Netsuke at Chester Beatty - wonderful tiny funny animal beings on our treasure hunt made us smile @rarediseaseday #rare
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Butter that's over 2000 years old at the National museum! Nobody wanted to try it.. @rarediseaseday treasure hunt, the sun has come out! #rare
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Start of family treasure hunt of rare unique and wonderful things in Dublin for @rarediseaseday #ShowYourStripes #rare @ERDERA_org @eurordis @rare_trial
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Rare disease research conference! Final call for abstracts 📣 24th Feb 2025
Monday will be here before you know it, and that's the deadline for abstracts for the Rare Disease Research Conference 2025! Submit your case study or rare disease research for consideration, a prize will be awarded for best poster. Final call, 24/2/25! https://t.co/xZjh3YiAAz
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📢 Scientific and Medical Calls for Proposals - @Telethon_France 2025 📢 @Telethon_France launched its calls for proposals to support international research on neuromuscular disorders and rare genetic diseases. Deadlines available here 👉 https://t.co/jX7UHAKtLe
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Here is one for the trainees @IrishEndocrine
Calling all Rare Disease Researchers! We invite abstract submissions of case studies and rare disease research for consideration for poster presentation at the Rare Disease Research Conference 2025. Registration and full programme details to follow! https://t.co/xZjh3YiAAz
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We're THRILLED to see an Irish Rare Disease researcher awarded this prestigious prize by the @AmThyroidAssn well done Dr Carla Moran! https://t.co/YAMVKrUt2U
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