Lee Millard
@onein300
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1/300 is lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog. Moving over to Bluesky https://t.co/5z82GhhK69
Joined February 2015
My series of posts on the difficulties & challenges that our amazing #mnd #als researchers face. Some of these were prompted by the sad misinformation that has permeated our community over the years. But I hope my trust in science shows through (1/3) https://t.co/t9Fu0bjK8N
onein300.com
This page unites my special research posts on the subject of that “Devil detail”. You all know the sort of thing? Your immediate reaction to a subject, or proposition, is perhaps is not always the …
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The snow blindness to the root cause of gun deaths in USA looks like it continues? https://t.co/RPWa7L67NA
bbc.co.uk
Police say 10 others are injured in what they believe is a "targeted" shooting, with children among the victims.
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Thanks Ian. We need to ask @wesstreeting to overrule the JCVI here, which he could as they are an advisory committee and not an executive power. Thanks again.
I support this letter 💯and we will be writing as MPs who sit on the MND APPG in support of its ask. #Covidbooster
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Thank you Ammar & all your colleagues for supporting need for GP flexibility, within current policy with Covid boosters for #mnd community. Many GPs not aware of flexibility or not agreeing. #mnd patients please show your GP this statement if experiencing problems this autumn.
People with #ALS #MND with respiratory compromise should be offered COVID immunization by their GPs. @MNDPatients
https://t.co/5yDJ0ZoJfo
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People with #ALS #MND with respiratory compromise should be offered COVID immunization by their GPs. @MNDPatients
https://t.co/5yDJ0ZoJfo
united2endmnd.org
Covid-19 Boosters in the UK – Statement This autumn is the first since the Joint Committee on Vaccination and Immunisation (JCVI) changed its policy on who can receive Covid-19 vaccination bo…
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Huge thanks to senior UK neurologists who signed this @MNDpatients appreciate your support. We need to avoid respiratory infection so, if having trouble accessing Covid booster, your advice will be a big help https://t.co/s2BM1Fp3JW
@mndcampaigns @AmmarAlChalabi @profcjmcdermott
united2endmnd.org
Covid-19 Boosters in the UK – Statement This autumn is the first since the Joint Committee on Vaccination and Immunisation (JCVI) changed its policy on who can receive Covid-19 vaccination bo…
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Fantastic new blog series from @mndassociation! Life in the Lab offers a real glimpse into the fantastic work underway in #MND research. Highly recommend a read 👇
mndresearch.blog
Reading Time: < 1 minuteWelcome to our blog series: Life in the Lab! In labs all over the world, researchers are working tirelessly to improve our understanding of MND.
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Our Co-Director, Prof. @AmmarAlChalabi, gave a fantastic talk yesterday, hosted by @mndassoc, on #MND/#ALS genetics, why they matter and how discoveries are shaping new treatments. Thank you to everyone who joined in person & online! #MNDresearch #genetics
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There is also, importantly, a survey on the tools. If you do review the decision aids please complete the survey as the developers want to improve the tools as they go forward. https://t.co/S943fPQ0H6
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#MND #ALS genetic testing is a complex subject both technically & perhaps more importantly whether to have testing if diagnosed or have a family history. What are implications for you/your family? New tools from Sheffield & Leeds Unis might help? (1/2) https://t.co/WFIP4QWKiN
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Not surprising! Drugs in our disease world can achieve great things but they can also do terrible things. ‘First league table of antidepressant side effects - BBC News’
bbc.co.uk
Find out which to avoid if you are concerned about weight gain.
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Nazir @nazirafzal exactly! Let the police decide the safety of a game deep in a residential area in Birmingham. @Keir_Starmer @Ed_Miliband and @KemiBadenoch you should keep out of these decisions rather than politicise. It’s about safety and nothing else.
It would seem that Tel Aviv Police have forced the cancellation of tonight’s match between Maccabi Tel Aviv & their neighbours because of violent scenes When it comes to football related violence, the police - not politicians, not armchair pundits - know what’s safe & what isn’t
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Please sign and share this petition if you are a U.K. citizen. Currently #mnd #als patients are not automatically entitled to the critical COVID vaccine booster this autumn. We are highly vulnerable. https://t.co/IVFZjUAuON
petition.parliament.uk
'Protect the NHS' and 'Save Lives' by continuing to fund NHS COVID boosters for Clinically Vulnerable people, including most previously shielded as CEV, rather than limiting them to over-75s, care...
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Please sign the petition to protect our vulnerable people with a Covid booster again this year: https://t.co/PnDdDAKruE
@dsetters
petition.parliament.uk
'Protect the NHS' and 'Save Lives' by continuing to fund NHS COVID boosters for Clinically Vulnerable people, including most previously shielded as CEV, rather than limiting them to over-75s, care...
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I’m shocked that David Setters, who has motor neurone disease, is not eligible for a free Covid vaccine, unlike last year. I’ve spoken to the BBC and written to the health secretary. It costs £100 privately.
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Huge thanks for sharing this vital petition @burrow_geoff and for your ongoing support for @united2endmnd & @MNDPatients. @edslater @DarbyRimmerMND @Redsmail @MNDoddie5 @kingsmnd @UKMNDRI @neuroshef @IanByrneMP @_Chris_Coghlan @AphraBrandreth @MNDOxford @MNDA_WestYorks
Thank you - Petitions
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Lewis Moody’s MND news brought pain rushing back — it is time for action Kathy Weir, writing exclusively in the Sunday Times this weekend 👇🏻 https://t.co/CUoeYEXX8j
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Absolutely refreshing to read. Time to stop misinformation and bring clarity. Thank you @MNDoddie5
Over the last few days questions have been raised about a link between rugby and MND. Some articles published may have caused alarm, but have missed out key points regarding existing studies and data. Our article provides more clarity on the subject: https://t.co/5RNwTGK7YV
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Please support this UK government petition to reinstate automatic qualification for Covid boosters for #mnd #als and other clinically at risk patients. @UKMNDRI @mndassoc @MNDoddie5
https://t.co/kDfirjHt36
petition.parliament.uk
'Protect the NHS' and 'Save Lives' by continuing to fund NHS COVID boosters for Clinically Vulnerable people, including most previously shielded as CEV, rather than limiting them to over-75s, care...
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