UK MND Research Institute
@UKMNDRI
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A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.
Joined July 2023
One of Raya Therapeutics's compounds has been selected for our EXPERTS-ALS programme. A pioneering initiative designed to fast-track promising treatments for #ALS/#MND. Read more about the story and why it is so significant below👇 https://t.co/RuvTSgKa5K
ukmndri.org
Raya Therapeutic Inc. has announced that one of its five clinical-stage compounds has been selected for inclusion in the UK MND RI's EXPERTS-ALS Platform Trial, a pioneering programme designed to...
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Registration for the 2025 Annual Stephen Hawking MND Lecture is now OPEN 📆 4 November 📍The Royal Society of Medicine, W1G 0AE OR virtual live stream Be quick, registration closes tomorrow! 👇👇👇👇
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Fantastic new blog series from @mndassociation! Life in the Lab offers a real glimpse into the fantastic work underway in #MND research. Highly recommend a read 👇
mndresearch.blog
Reading Time: < 1 minuteWelcome to our blog series: Life in the Lab! In labs all over the world, researchers are working tirelessly to improve our understanding of MND.
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New research finds that #MND/#ALS may slow molecular transport and nerve cell growth before cells begin to die. These early changes could hold clues to how the disease starts and how to treat it. https://t.co/OceaEYZl8q
ukmndri.org
A new study has found that motor neuron disease (MND), also known as amyotrophic lateral sclerosis (ALS), may slow the movement of essential molecules and reduce growth inside nerve cells, even...
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A new UK-wide study finds that people who experience a traumatic brain injury may face a higher short-term risk of developing MND. This risk appears temporary, suggesting injury may sometimes be an early consequence of undiagnosed disease. Read more👇 https://t.co/LvO6yAiJzf
ukmndri.org
A new UK-wide study has found that people who experience a traumatic brain injury may face a higher short-term risk of developing MND. However, this increased risk appears to be temporary, limited to...
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We must find an effective treatment for #ALS #MND
@UKMNDRI BBC News - Former England captain Moody reveals MND diagnosis https://t.co/DJYWRfpc09
bbc.com
Former England captain Lewis Moody says in an exclusive BBC interview he has "a reluctance to look the future in the face".
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We’re deeply sorry to hear the news that former England rugby captain Lewis Moody has been diagnosed with MND. His courage in sharing his diagnosis will raise vital awareness of MND and the urgent need for continued research. Our thoughts are with Lewis and his family. We must
bbc.co.uk
Former England captain Lewis Moody says in an exclusive BBC interview he has "a reluctance to look the future in the face".
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This is fantastic news and highlights the importance of consistently funding collaborative science in neurodegenerative diseases. We are committed to doing the same for #MND/#ALS and finding new ways to successfully treat the disease. https://t.co/BNZUSaWJFu
bbc.co.uk
One of the most devastating diseases finally has a treatment that can slow its progression and transform lives, tearful doctors tell BBC.
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Sign up now to a special symposium in memory of Euan MacDonald MBE, hosted by the Euan MacDonald Centre for #MND Research. 📍 Edinburgh 📅 8–9 October 🔬 Cutting-edge MND/ALS research 🌍 Public sessions on SpeakUnique & Euan’s Guide https://t.co/FHuKbd7aZo
euanmacdonaldcentre.org
A 1.5-day symposium showcasing current MND research, and a celebration of Euan's legacy, including Euan's Guide and SpeakUnique.
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Congratulations to @OscarWilkins16 on winning the MND Association's 'Rob Burrow Early Career Researcher (ECR) Prize' which was awarded today at @UCL at the @UKMNDRI Symposium. This is a new initiative that furthers #MND research while honouring our late patron Rob Burrow CBE.
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🔄 #ICYMI: One of Raya Therapeutic’s compounds has been selected for our @EXPERTS_ALS platform, our UK-wide initiative accelerating the development of new treatments for #ALS/#MND.🔬 Find out why this is a huge step and what could be next👇 https://t.co/RuvTSgKHVi
ukmndri.org
Raya Therapeutic Inc. has announced that one of its five clinical-stage compounds has been selected for inclusion in the UK MND RI's EXPERTS-ALS Platform Trial, a pioneering programme designed to...
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Fatigue affects nearly all people with #MND/#ALS, yet it's often overlooked. A new UK-wide study reveals how fatigue evolves, its severity, and its link to other symptoms. This can inform future research and care. 🔗Read more👇 https://t.co/uFV7X3pOSI
ukmndri.org
A new UK-wide study has found that fatigue is one of the most common and burdensome symptoms experienced by people living with motor neuron disease (MND), affecting nearly all participants in the...
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We're thrilled to see research such as this, it is vital that we find better ways to predict who will go on to develop #MND/#ALS. We can then find new ways to treat the disease and monitor them as effectively as possible. Read out news story here👇 https://t.co/c9dp422ErV
ukmndri.org
A new study has identified a blood-based biomarker panel capable of detecting ALS up to ten years before symptoms emerge, offering a significant step forward in early diagnosis and monitoring....
This is a landmark paper showing a predictive test for #ALS #MND up to 40 years before onset and able to predict age of onset. Huge implications https://t.co/a7thdYf0JR
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