Our number is growing, we are delighted to share our #MapOfUs & hope it’s shared far & wide if you have #UsherSyndrome pls consider adding yourself by clicking the link

It’s #deafblindawarenessweek this year we are going to talk about awareness and #TechThatMakesYouTick @MollyWattTalks can lead the way

Yesterday, with the unwavering support of @CorrectHearing & our friends at @ReSoundUK @ReSoundGlobal Wendy has #ushersyndrome told she needed cochlear implants! Wendy was getting nothing from her hearing aids! Resound smart hearing together with mini mic is the difference 👏🏼🦻🏼

Calling all living with, working with #UsherSyndrome pls add yourself/organisation to #MapOfUs potentially an amazing resource for all @CUREUsher @dbscotland @DeafblindUK @sensecharity @usher_syndroom @UsherCoalition @Usherkidsuk @UsherKids.

Do you have #UsherSyndrome? Stand up and be counted, add yourself to our map, the more we know the more we can do

Great conversation with @dbscotland how to collaborate and use our #MapOfUs #UsherSyndrome

Special thank you to my 2 new followers from India last week.

RT @RNIB: Dear @bbcstrictly, we can’t wait to watch @chrismccausland chassé his way round the Strictly Ballroom with Dianne. Representation….

I have 2 new followers from Norway, and more last week. See

We are thrilled to share the happy news of the safe arrival of our very own @MollyWattTalks and her husband Max’s baby boy Frank. I’m sure you’ll join us in congratulating them 💙👶🏼

Special thank you to my 6 new followers from UK. last week.

Our first fundraiser since Covid - Salford to Blackpool, our pedal pushers are 40 miles in and just short of their £2k target, if you can donate much appreciated

On Wednesday thanks to the unwavering support of @CorrectHearing @ReSoundUK @ReSoundGlobal the lovely @clairecoop_ can hear again, can work again, can smile again shouldn’t every hearing aid wearer with usher have access to these things? #DeafblindAwarenessWeek @MollyWattTalks.

RT @scope: 💬 "I'm blind. I'm a mum. And I'm employable". There’s one week to go until the general election. Sylvia has her say on what sh….

RT @RNIB: 🧵We're calling for this to be the last UK election where blind and partially sighted people can’t vote in secret. Join @themicha….

Communication for the deafblind varies never assume!.Of all the communication types tactile signing is for those who used sign but now too blind to continue. Rare but a beautiful way to communicate - Molly tactile signing #DeafblindAwarenessWeek ❤️

How do people with #UsherSyndrome communicate? The majority are oral but some use a form of sign language be aware deaf doesn’t necessarily mean hear nothing and blind see nothing #DeafblindAwarenessWeek.

What is #UsherSyndrome? Deafness blindness #Deafblindness. Varying levels of deafness with retinitis pigmentosa which is a progressive blindness. From deaf to deafblind is an enormous challenge #Deafblindawarenessweek.

It’s #DeafblindAwarenessWeek a week to talk #UsherSyndrome

Ever considered this? If you haven’t you should!.#Deafblind #Blind #Election #Voting2024.Think we spotted our very own @MollyWattTalks there too.

I have 2 new followers from India, and more last week. See