Cure Usher
@cureusher
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Raising funds & awareness for Usher syndrome research. Secretariat for All Party Parliamentary Group. Registered charity, 1181293.
Worldwide
Joined September 2018
"We endeavour to spread awareness and raise funds for research in finding a cure for #UsherSyndrome " - a heartwarming statement from @lawrencenotrin and @JoepopProds - new Patrons of #NorthEast based charity #CureUsher
https://t.co/VDmXSt46HP ❤️
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International day of charity @cureusher We raise awareness of usher syndrome A rare genetic condition that is the leading cause of combined hearing and vision loss We strive to raise awareness and raise funds for a cure for vision loss ❤️🤍
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Looking forward to the @RetinaUK conference at the end of the month. Will update 👍🏽🩷
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After Saturday's washout, we move onto our final travel of the season as we take on @StamfordhamCC. Always a cold affair in the open fields of Grange Park with jumpers required! This week, we're delighted to raise awareness of the work of @CUREUsher. #UpTheCows
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Do you know what Usher syndrome is ? It is a rare inherited genetic condition. It’s the leading cause of combined deafness and blindness. Dual sensory loss. There are currently 3 types of Usher syndrome. Type 1, 2 and 3. Find out more at https://t.co/y9fo9yST73
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Do you know what Usher syndrome is ? It is a rare inherited genetic condition. It’s the leading cause of combined deafness and blindness. Dual sensory loss. There are currently 3 types of Usher syndrome. Type 1, 2 and 3. Find out more at https://t.co/y9fo9yST73
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@Great_Run We have a few places left for @CUREUsher if anyone would like to run it and fundraise for us at the same time 🩷
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🏃♀️🏃♀️ CAN YOU HELP 🏃♀️🏃♀️ We have limited spaces available but would love to fill them up 🙏🏼✨ All donations go directly towards research for a treatment for Usher syndrome #ushersyndrome
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So very early Monday morning the Cure Usher Ball’s DJ starts his five day walk across the Trans Pennine Trail . Then he’ll join me to wing walk high above Manchester Sunday 27th July. All to raise funds for @CUREUsher . Can you help ? https://t.co/QXOPUp90HP
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FUNDRAISING APPEAL: Help Save a Deaf Child's Sight! #RaceToSeeTheRise I’ll take on the biggest challenge of my life by trekking #Scafell Pike through the night in total darkness to reach the summit Together, we can @CUREUsher Let’s come together Let’s rise https://t.co/y28shEpx2U
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What a legend. Georgia is running a MARATHON for @cureusher for her friends beautiful children who have usher syndrome. What a difference she is making and she’s nearly reached her target. I’ve sponsored. Please do if you can. Total respect. We support you every step 🏆
🗣️ "Cole and Sadie were born profoundly deaf, and both had cochlear implants fitted at a young age to give them access to sound. In 2021, Cole (7) and Sadie (4) were diagnosed with Ushers Syndrome. This means that they will begin to lose their vision in their first decade of
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The amazing Georgia running @BrightonMarathn for @CUREUsher You’re amazing and we are cheering you on all the way. Please read and sponsor if you can. We are working toward me a cure for Cole and Sadie and so many more 🙏🏼🏆
🗣️ "Cole and Sadie were born profoundly deaf, and both had cochlear implants fitted at a young age to give them access to sound. In 2021, Cole (7) and Sadie (4) were diagnosed with Ushers Syndrome. This means that they will begin to lose their vision in their first decade of
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Who would like to support us find a cure for usher syndrome? We have limited spaces left for the Birmingham half? https://t.co/4nkmW5iBUh
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Pls help me spread word tomorrow (tue) 8pm on ITV I'll be talking you through how to check if you can boost your State Pension by possibly £10,000s. There is an urgent deadline coming after which many lose the opportunity. This is a must watch for anyone age 40 to 73.
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We had great fun today but the cause we’re supporting is a very real challenge for families. Please take a moment to learn more of @CUREUsher and support @jomilne10 and this amazing charity https://t.co/gXXpsanOlD
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WORLD • HEARING • DAY Please share your stories in the comments #worldhearingday
#ushersyndrome
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Brilliant !!! Thank you so much @LatimerHinks 🏆🩷
What a brilliant “bake off” event this morning raising funds for @CUREUsher a wonderful charity supported by an amazing number of cake, brownie, pie, scone and sausage roll makers! Who knew we had so many talented bakers in the firm. Congrats to Penny for organising #BakeOff
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Any takers for our Birmingham half ???
@cureusher we still have a few places left for our Birmingham half on the 4th may 1 anyone out there into running and fancy helping us raise some vital funds ? https://t.co/85LljN2AuS
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Last month we supported and celebrated Retinitis Pigmentosa Awareness month. Do you know what RP is? It’s a progressive condition that causes vision loss. #ushersyndrome #ushersyndromeawareness #retinitispigmentosa
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