Lizzy H
@hopefullizzy
Followers
7K
Following
82K
Media
1K
Statuses
32K
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Bristol
Joined April 2013
In 3weeks I turn 29. I’ve never had a relationship. Never been on holiday with friends. Never finished my education. I have never had a day out on my own. Never been out to work. Never lived away from my family. It’s 13years since I went out on my own. I have #MECFS.
112
245
2K
RT @PhoebsBo: A short new blog post. Ten years ago today I had to leave my beautiful flat in Edinburgh because of ME. I thought I’d be bac….
0
8
0
This definitely sadly hasn’t been publicised enough. Please do pass it on to anyone who has experienced tube feeding during their ME/CFS diagnosis or is currently. #MECFS #MyalgicEncephalomyelitis #decodeME #chronicillness #meawarenesshour.
Sharing for information: BACME ME/CFS Tube Feeding Survey . British Association of Clinicians in ME/CFS (BACME) are conducting a survey about ME/CFS and tube feeding until September 30th. It aims to capture the experiences of people with ME/CFS (UK based) who have required tube.
1
11
20
RT @MEAssociation: Sharing for information: BACME ME/CFS Tube Feeding Survey . British Association of Clinicians in ME/CFS (BACME) are cond….
0
8
0
Cell-free RNA analysis reveals key biomarkers for chronic fatigue syndrome . #mecfs #myalgicencephalomyelitis #myalgice
medicalxpress.com
When cells expire, they leave behind an activity log of sorts: RNA expelled into blood plasma that reveals changes in gene expression, cellular signaling, tissue injury and other biological processes.
0
2
14
RT @ThePOTSPostman: I have seen cheaters, liars, and backstabbers win big in life. And I’ve seen the kindest, most giving people spend thei….
0
99
0
RT @ArlettePoolen: This is so incredibly awful. They keep calling it 'a complex case' but the only thing they had to do was listen and bel….
thetimes.com
Maeve Boothby O’Neill’s mother had no idea she was being accused in private of causing or fabricating the illness that would take her life aged 27
0
29
0
RT @davidtuller1: A very moving, sad and beautiful video about severe ME from my friend @AnilvanderZee. He posted it to mark the awareness….
0
46
0
RT @guustweet: I was healthy my whole life, until I wasn’t. I was moving my body through the world, until I wasn’t. I was enjoying food,….
0
45
0
RT @lyricalowl: @ABrokenBattery A chilling account & it's happening right now to another mum & daughter as we know. NHS England can jog rig….
0
1
0
RT @ABrokenBattery: Full Article - The Times. As my daughter died of ME, the state met in secret to blame me. Maeve Boothby O’Neill’s mothe….
archive.ph
archived 9 Aug 2025 23:08:06 UTC
0
77
0
RT @arisonsned: Thinking of SJ today (Sarah Jane Lewis) on #severemeday2025 .SJ died by suicide last awareness day, unable to continue livi….
0
48
0
RT @ma1ybe: Every time I cook for us, my boyfriend stands next to me cleaning up. By the time we sit down to eat, the kitchen is spotless,….
0
14K
0
RT @beardedjourno: This was the sight this morning at Ashton Court. Mass ascent number two of the Bristol Balloon Fiesta. .
0
32
0
RT @elizaclove: This was me in 2023. The first picture was in Wales on a coastal hike. The second picture is a month later after my first C….
0
371
0