Dr K Fearnley
@fearnley_k
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NHS Doctor | Animal rights activist | Long Covid Research Initiative | helping to make invisible illness VISIBLE | advocate for #ME | #LongCovid | #CleanAirBill
Leeds, England
Joined May 2021
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Pinned Tweet
Where is the evidence for droplet transmission of
#SARSCoV2
?
@DrTedros
@davidnabarro
@WHO
?
#askWHO
#WhereIsTheEvidence
Full
@DoctorsInUnite
statement here:
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A word of warning. I’ve had Long Covid for 12mths and counting. In this time, I’ve been diagnosed with neurological sleep apnoea, encephalitis, sensorineural hearing loss, tinnitus dysautomnia and POTs, and myopericarditis. I was never hospitalised. My case is mild.
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I am an NHS doctor.
I’ve studied for 10 yrs. I am 100k in debt. I carry the crash bleep.
I earn £14/hr.
My auntie is a cleaner. No study. No debt. No crash bleep.
Last week she said to me “Kelly, even I earn £15/hr”
#FullPayRestoration
#juniordoctorstrikes
We're giving junior doctors, consultants and senior NHS staff a fair and reasonable pay rise as recommended by the independent pay review bodies.
Find out more detail in our blog:
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So those say Omicron is ‘mild’. Just be mindful. This is what a mild case looks like.
#TreatLongCovid
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My 2 week mild covid infection has nearly killed me, resulted in organ damage and is still ongoing at 23 months. Don’t believe the government lies.
#LongCovid
#CovidIsNotOver
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@SaveRalphDog
@patsymo134
No previous conditions. Fit and healthy 35 yr old. Now housebound for 12 mths and illness ongoing. It is a myth that only those with pre co-morbidity will have poor outcomes. Doesn’t fit the political narrative that the pandemic is over.
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I contracted Covid whilst working as a UK front line doctor. Staff were fed a false narrative that covid was transmitted by droplet transfer. Science shows Covid is unequivocally airborne. My NHS colleagues urgently need to be provided with full airborne PPE, including FFP3 masks
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I am a doctor who contracted covid caring for covid patients at work. Failure to provide RPE left me and my colleagues knowingly exposed to deadly airborne pathogen. Previously fit and well, no co-morbidities, I am a shell of my former self. 🧵
@LaylaMoran
@AppgCoronavirus
1/10
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I qualified as a doctor at the start of the pandemic. Like thousands of others, I volunteered to start work early to help with the pandemic effort. I contracted
#Covid
is November 2020 caring for Covid positive patients in absence of RPE and airborne protections. I was .. 🧵
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Over one thousand of my NHS colleagues are dead, and many thousands more are injured. We need answers now
@BorisJohnson
#covidinquirynow
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1/ Public health messaging has failed to warn the public on:
➡️ Long term infection harms
➡️ How to protect oneself from infection
Given we’re at the start of a new wave, case numbers & rates of hospitalisation are rapidly rising, here’s a
⚠️ public health warning ⚠️
🧵
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You cannot announce 1 in 10 infections with
#SARSCoV2
lead to
#LongCovid
and that we are heading for a mass disabling event, then declare the pandemic over in the next breath.
Nonsense
@WHO
.
#SARSCoV2
continues to circulate at high levels & remains a serious risk to health. 🧵
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My personal experience of Long Covid and thoughts on the governments plan to ‘live with COVID’
Key messages: 🧵
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Long Covid clinics are not useful - they’re rehab. It’s not rehab patients need. There is ongoing pathology. Increasing evidence now of viral persistence & autoimmunity. We know the former can trigger the latter. We need to start trialing antiviral medication in Long Covid. ASAP
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If you are UK healthcare worker significantly injured by occupationally aquired
#Covid_19
, then you are invited to join our group litigation. There needs to be justice and legal accountability for those injured.
#BREATHTAKING
Ahead of tonight’s hard-hitting
#ITV
drama
#breathtaking
, nothing has changed. Despite political denial,
#CovidIsntOver
& still poses a significant threat to health. 300 dying in hospitals each week.
NHS HCWs are now taking legal action. Occupationally injured? Join us..
🧵
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Long Covid is no longer a mystery: Long Covid IS Covid. 👇🏼
Harvard researchers find circulating spike protein in the blood of long haulers, but not controls, 12 months post diagnosis. Big paper.
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1/3 In the first six weeks of Long Covid, I experienced neurological sleep apnoea. At night, I would stop breathing. My body would wake me from sleep, or the edge of sleep, to remind me to breathe.
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1/ After 10 yrs study, 100k in debt, I graduated as a doctor in spring 2020 at the start of pandemic.
I remember watching the heartbreaking scenes in Italy. A wave of infection was making its way around the world, soon to hit the UK.
🧵
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It’s not a drama to me or thousands of others.
It’s our lives.
We were thrown under the bus.
Knowingly and repeatedly exposed.
Cannon folder.
#BREATHTAKING
#LongCovid
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Dear companies, who are encouraging staff to work when they are symptomatic or have tested positive for Covid-19, how do you intend to protect customers, especially those clinically extremely vulnerable?
@sainsburys
@Tesco
@BootsUK
🧵
1/7
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@mariavhawkins
Long Covid needs to feature in public health messaging. It is rarely talked about & the severity of Long Covid is downplayed.
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1/ Captain Daniel Chertow (MD, MPH Head, Emerging pathogens Sections, Clinical Centre, NIAID, NIH) presents results from a series of 44 autopsies showing evidence of SARS CoV-2 infection and persistence through the human body and brain.
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subject to huge viral loads.
A few days later I tested +ve. I was naive. As a fit 34 yr old I expected to recover. I experienced a flu-like illness for 2 wks. Barring a lingering fever in wk 3, I thought I had recovered.
I returned to work in day 4. Lasted 2hrs on ward round.
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A switched flipped in my body. Light headed and breathless, I just about made it home.
My condition from that point rapidly deteriorated. I became breathless as rest. I had a resting HR 130bpm increasing to 180bpm on standing. Physically, it was like being on a treadmill I
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Long Covid is a public health emergency, currently absent of treatment or cure. It affects a large proportion of our working population. The economic impact and degree of human suffering is staggering.
5/10
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… Too much trauma.
All put into a box. This box I cannot open. It’s too much.
Physically I am not well enough to open the box and deal with it. associated PEM causes further decline.
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I haven’t watched TV in 3 years.
My brain still feels infected.
Lives destroyed.
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In month 2 my brain became inflamed.
Encephalopathic, I experienced auditory hallucinations. A radio playing inside my head. News broadcast. Mood changes. Emotionally liable.
I developed sudden onset bilateral tinnitus.
Suicidal.
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Severe PEM. Bedbound for the first year. Had have a bucket next to the bed.
Second year housebound.
Lost health.
Lost independence.
….. too much to put into words.
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.. could not get off of.
I began to experience pins and needles throughout all four limbs, then violently started shaking. Everyday, for 2 months, I shook violently for 14 hrs at a time.
After 2 months, the attacks of shaking and breathless did not lessen in severity, but
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did so in frequency and duration. decreasing.
I stopped breathing at night. I would gasp for air. My body had forgotten how to breathe. Sleep apnoea.
My brain was under attack. It didn’t switch off. I experienced severe insomnia. 4 days and 3 nights without sleep.
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Employers must provide better support to workers with long covid
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1/ I don’t know which medic needs to hear this, but post-exertional malaise (
#PEM
) is NOT fatigue.
Short explanatory 🧵
#MedEd
#MedTwitter
#TeamGP
#ME
#LongCovid
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My story is not unique. 1.5 Million people in the UK are suffering.
Many have now entered their third year of illness.
Lost jobs. Lost families. Lost homes. How do
@Conservatives
plan on financially supporting & caring for those with Long Covid? 4/10
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Lost my hearing.
Cardiac chest pain.
Pericarditis.
POTS.
Hypoxic.
Insomnia.
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4/ “There were populations of viral variants found in the brain that were not detected in the respiratory tract suggesting there is seeding of the virus in the brain and ongoing replication in the brain”
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3/3 Those who should’ve cared for us, did not. This paragraph tells me nothing I did not already know, but it brings validation. My heart breaks for any one else who has been through this. …
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3 years 4 months ago, I was told, being young, fit and previously healthy, I would recover after 14 days.
A reminder that you are are one infection away from being chronically disabled.
#LongCovidAwarenesDay
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Today was my final work review meeting.
I was told the trust will not be supporting me. Redeployment is not an option.
#HeroToZero
#WhosClappingNow
?
@LaylaMoran
@DrPhilBanfield
@ProfEmer
@BMA
@carolvorders
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It is often reported that patients with
#LongCovid
experience fatigue.
The word fatigue is misleading.
Those with Long Covid are not just fatigued, their TISSUES ARE OXYGEN STARVED. Impaired blood flow and oxygenation of tissues results in impaired energy metabolism.
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Diagnoses so far include, encephalitis, central sleep apnoea, myopericarditis, bilateral sensorineural hearing loss, tinnitus, dysautomnia, POTs, PEM/PESE. 14 mths into this illness, I am still housebound. 2/10
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After dedicating the last decade of my life to becoming a doctor & placing myself into significant debt, I now face the threat of dismissal. 3/10
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It’s ‘just a cold’ until you
> have a stroke
> start hallucinating
> lose your hearing
> develop cardiac chest pain
> drop your O2 levels
> become tachycardic at rest
#SARSCoV2
#CovidIsNotOver
#LongCovid
#CleanAirNOW
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To date, £50 million has been pledged to Long Covid research. This is pocket change when track and trace cost £37 billion.
Furthermore, a large chunk of this £50M has been wasted on meaningless research which fails to address the underlying pathophysiology.
@NIHRresearch
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First let’s discuss
#LongCovid
.
Long Covid is a chronic, multi organ, physical condition, currently absent of treatment or cure.
Latest figures show 2M ppl in the UK are affected. 376K have now been unwell for >2 yrs. While some slowly improve, recovery is not guaranteed.
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Plea to stop using the word ‘brain fog’. It is a term used by those who wish to minimise covid harms. The correct medical would be ‘encephalopathy’.
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8/ Since contracting Covid, I have been significantly unwell with
#LongCovid
.
Encephalitis, bilateral hearing loss, bilateral tinnitus, myopericarditis, abnormal clotting, vasculitis, POTS and PEM.
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2/3 At the time, I suspected brainstem involvement and recognised I was severely unwell even if no one else did. We now know Covid has a predilection for the brain stem, a region where ACE2 receptors are plentiful.
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Today my article was published. I share my story to raise awareness of long covid and associated neurological sequelae, and the daily struggles we all face.
@LongCovidSOS
@DoctorsWithME
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We are unlikely to get better on our own. There is an ongoing pathological process which urgently needs to be addressed. 6/10
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Attention all those with Long Covid. Lets make our voice heard. Share your story today. Make
#Paxlovid4LongCovid
viral. 10/10
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And to all those who say ‘Mate, I’ve had it, I’ve had worse colds.’
Firstly, just because you didn’t develop
#LongCovid
in around one or two, do you not think round three will be the same.
Every time you get reinfected you play Russian roulette.
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There is no great medical mystery.
Breaking news: Long Covid IS Covid.
Autoimmunity and microclots are likely downstream processes from viral persistence.
About time we started trialling antivirals don’t you think?
@NIHRresearch
@NIH
@NIHDirector
@research_long
Holy sh*t. It has been only hours since my 1st dose of Paxlovid, but it's doing something. Strong weird metallic grapefruit taste in mouth, but tightness in my chest is GONE and I can take a full deep breath. Heart rate, which had remained up at 86 after my walk, dropped to 64.
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This message is important to everyone, but is especially pertinent to those who erroneously believe
#LongCovid
is ‘just tiredness after infection’ and it won’t happen to them because they’ve had it and ‘it was just a cold’
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Remove the driver (viral persistence) >> remove the autoimmune trigger. 🧵
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All of the following have been found in Long Covid. All are interlinked. All will be contributing to symptoms.
🦠 Viral persistence
🩸 Widespread blood inflammation and abnormal clotting
💥 Immune system dysfunction
It is likely the former is driving the latter.
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I urge you to exercise caution. Go about your business, but do all you can to avoid infection.
#COVIDisAirborne
which means it is carried in the air we breathe.
#WearAMask
😷 esp when in indoor public spaces. We all collectively wish for a return to normality but
#CovidIsNotOver
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6/ Failure of my employer to provide Respiratory protective equipment (RPE) left me and my colleagues knowingly exposed to a level-3 airborne biohazard.
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The economic & human cost of Long Covid is significant and urgently warrants increased funding. 8/10
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‘Learning to live with COVID’ would involve some actual learning.
Masks are a short term solution; the installation of air filtration systems are a long-term investment. We must now treat air quality by the same standards by which we treat water quality.
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2/ All autopsies were performed & samples collected within 24 hours of death.
“SARS CoV-2 can replicate within tissue for over 3 months after infection in some individuals, with RNA failing to clear from multiple compartments for up to 230 days.”
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5/ “The brain is an immune protected site that would allow replication and evolution of the virus.”
They are now looking for direct evidence of replication competent in the brain.
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Within the published literature there is evidence of viral debris/
#viralpersistance
, &
#autoimmunity
&
#microclots
. We know the former can trigger the latter.
@NIH
@NIHRresearch
@NIHDirector
@sajidjavid
why is
#Paxlovid4LongCovid
#antivirals
not being trialled Long Covid? 9/10
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1/ Long Covid community!! I am SO excited to share with you the launch of the
💥Long Covid Research Initiative
🧵
Today we are excited to announce the Long Covid Research Initiative - a collaboration of researchers, clinicians, and patients working to rapidly study and treat
#LongCovid
. We launch with $15M+ in funding commitments. 1/
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@bahtistuta
“If you can’t handle me at my worst, then you don’t deserve me at my best.” - Marilyn Monroe.
If the going got tough and she got going - although it may not feel like it now - she’s done you a favour by leaving. You deserve better. And will find better. Rest up.
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1/ The UK is descending into fascism. Our democratic freedoms are being threatened. Everyone living in the UK right now should be deeply concerned. Here’s why… 🧵
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It is not my intention to scaremonger. Despite our collective wish to return to normality
#CovidIsNotOver
, and it is dangerous and irresponsible of politicians and senior officials to suggest otherwise.
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Covid is a biosafety level 3 hazard. Infection with
#SARSCoV2
is known to cause brain damage and increase risk of thrombotic complications even after mild disease. It’s not the flu.
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Understand those with
#MyalgicEncephalomyelitis
&
#LongCovid
are not ‘fatigued’or ‘tired’.
They’re experiencing **tissue hypoxia** There is build up lactic acid in the limbs combing one’s hair/lifting a mug. This physiological abnormality limits what they can do.
#MedTwitter
@loscharlos
@StanfordMed
It's not fatigue, it's: "there is no oxygen in my tissues". and so when you go to use those tissues, like your heart, or your brain, those tissues start to die. that's literally long covid & ME/CFS & "fatigue" doesn't begin to cut it
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The governments strategy to ‘live with COVID’ is a strategy of denial. Scrapping of protections (free lateral flow, masks, all but ending tracing, mandatory isolation) will allow for the unmitigated spread of COVID which is both dangerous and irresponsible.
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7/ For 10hrs/day, for 5 consecutive days, I was surrounded by infectious patients.
As a junior, I spent all my time on the ward. I was exposed to HUGE viral loads.
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Microclots have been found in the blood of every long hauler tested.
Microclots block tiny blood vessels called capillaries and cause tissue hypoxia. Because blood vessels are found throughout the entire body, any organ can be affected. Here are a few common examples…
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“Once FFP3 respirators were introduced, the number of cases attributed to exposure on COVID-19 wards dropped dramatically – in fact, our model suggests that FFP3 respirators may have cut ward-based infection to zero.”
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9/ At 29 months, my trajectory is one of slow improvement.
A few weeks ago, I attended a work meeting - I requested to be redeployed.
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Long Covid IS Covid. Autoimmunity & abnormal coagulation are likely downstream processes of viral persistence; whether that be in the form of replicating virus, viral debris or synthetic vaccine spike
We urgently need to trial medications to clear intracellular viral reservoirs.
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Brain inflammation 🧠 is not uncommon. Patients hallucinate, become intolerant of light and sound, and find it difficult to regulate their emotions. Memory, concentration and cognition can, and are commonly, affected.
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Microclots don’t just block capillaries and impair blood flow to organs & tissues, they trap immunogenic material which triggers the immune system & irritates the inner lining of blood vessels.
This causes widespread inflammation of blood vessels throughout the body.
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10/ I asked that my NHS employer support me in the same way I supported them.
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3/ He says they found indirect evidence of replication competent virus in the brain.
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Reinfection with
#SARSCoV2
, regardless of a person's vaccination status, has been shown to increase the risk of all-cause mortality, hospitalisation, at least one sequelae, and sequelae in different organ systems compared to the first infection
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Yet, the human and economic burden of Long Covid alone will dwarf the sums of money they expect to save through their strategy to ‘live with COVID’. It neither makes moral nor economic sense.
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Microclots in the lungs 🫁 often cause symptoms of ongoing breathlessness.
If blood flow is compromised, limb extremities can often turn blue.🦵
Microclots in the brain 🧠 , can cause stroke like symptoms, including pins and needles in the face and transient loss of speech.
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After experiencing decades of good health,
#QueenElizabeth
was never the same after contracting covid in spring. Appointing Liz Truss to PM her hands showed tell-take of
#LongCovid
vasculitis. No doubt
#Covid
hastened her decline.Glad we’re taking about it
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Secondly, we do not yet know the long, long term harms of this virus. But they are predictable.
We know viruses which persist in the body can cause increased risk of cancer and neurodegenerative disease.
20/ Moreover, a few of us can predict the long term harms of this virus: in the near future we are likely to see a wave of neurodegenerative disease, Alzheimer’s & cancer.
Pls listen to
@drsoonshiong
speak from 2:50:
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Below: PET imaging showing ‘profound’ and ‘widespread’ neuroinflammation in the brains of two Long Covid patients experiencing neurocognitive symptoms 15mths and 24mths post acute infection.
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Great question; thanks for asking. The main reason people with medically unexplained physical symptoms (MUPS) are resistant to psychological therapy is because, they have been victims of relentless medical gaslighting./1 🧵
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