Connate Support Profile
Connate Support

@ConnateSupport

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Following
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We support families that have been affected by Teratogens: something that has crossed the placenta to affect the foetus. We promote medicine safety.

Joined January 2020
Don't wanna be here? Send us removal request.
@MayorofLondon
Mayor of London, Sadiq Khan
5 years
BREAKING: After careful consideration, I’ve asked @TfL to keep the requirement to wear face coverings on public transport as a condition of travel after 19 July. Mandatory face masks will give passengers reassurance and protect both them and our heroic transport workers.
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@ChildSocInclude
Include: Young Carers
5 years
Nominations for The Children's Society Include Team's Covid Award are now being accepted from young carers who feel their school has stepped up when it was most needed. For more details get in touch or speak to your local young carers service. #youngcarers
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@ConnateSupport
Connate Support
5 years
How many people use the word #teratogen they hide it in #congenitalabnormalities not enough people own that #medicine can cross the placenta that #medication made to heal can cause #harm #medsafety #patientsafety mothers want an #informedchoice #saferpregnancy
@emmafriedmann
Emma Friedmann
5 years
@LSHTM Who delivers the lectures on #Teratogens and the risk v benefit of prescribing untested, poorly monitored pharmaceutical products in pregnancy? @ConnateSupport
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@ConnateSupport
Connate Support
5 years
Both my girls have #FVSD #FVS affected by #valproate @Branwen6 talks here about her experience as a person with #ASD she has developed many tools to help herself cope this aspect of her health is not recognised https://t.co/2aIhFY8STl @facsaware @ConnateSupport #autism #aspergers
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@ConnateSupport
Connate Support
5 years
#chronicmigraine has been a major problem affecting all parts of her life #fvsd #fvs #valproate #mentalhealth #headache causing #stress living under a blanket was how @Branwen6 coped a #clinicaltrial has made her life livable @facsaware @ConnateSupport https://t.co/9qXHidfgZq
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@ConnateSupport
Connate Support
5 years
Coping in #lockdown @branwen6 #FVSDlife shares her experience of #COVID19 as a person affected by #valproate #FVSD as a baby #facsaware #ConnateSupport
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@ConnateSupport
Connate Support
5 years
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@ConnateSupport
Connate Support
5 years
Steve's shares his experience of Sodium Valproate https://t.co/g9GgwER23L via @YouTube #SodiumValproate #LeadersHealth20 #ConnateSupport
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@ConnateSupport
Connate Support
5 years
Branwen Mann talks about her experience as a young disabled carer https://t.co/r50MDB8BrB via @YouTube did you know that a #HCP can ensure a patient can access good support by identifying roles in a family unit #ConnateSupport #LeadersHealth20v #disabledyoungcarer #youngcarer
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@ConnateSupport
Connate Support
5 years
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@ConnateSupport
Connate Support
5 years
Sharon shares her experience as a person prescribed an overdose of her medication... https://t.co/eUQNQU65VY via @YouTube #ConnateSupport #LeadersHealth20 #patientsafety #PatientCare
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@ConnateSupport
Connate Support
5 years
Sam Discussing ECHP Sam Discussing EHCP and highlighting the #doctors role in #patientsupport https://t.co/6wtrJWWzmO via @YouTube #ConnateSupport #LeadersHealth20 https://t.co/6wtrJWWzmO via @YouTube
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@ConnateSupport
Connate Support
5 years
Marie Lyon, chair of the Association for Children Damaged by Hormone Pregnancy tests shared the story of their campaign and their hopes for the future https://t.co/sJ6zx6xM58 via @YouTube #ConnateSupport #primodos #LeadersHealth20
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@ConnateSupport
Connate Support
5 years
FACSaware history for Leaders in Healthcare seminar 2020 https://t.co/1VniZtuj9x via @YouTube Emma has done an amazing job at sharing the story of so many with Fetal Valproate Spectrum Disorder #ConnateSupport #facsaware #LeadersHealth20
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@ConnateSupport
Connate Support
5 years
How do patients improve their experience of working with your healthcare professinal towards their wellbeing?
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@facsaware
F.A.C.T
5 years
Has anyone read Hansard or the responses from MPs to their affected Constituents on the topic of #Valproate & medicines regulations? Government always say restrictions of products are the responsibility of the @MHRAgovuk & government can't interfere. Can the NHS ban products?
@Jeremy_Hunt
Sir Jeremy Hunt MP
5 years
Why are potentially 25 babies still being born disabled every month because their mothers are taking Sodium Valproate even when we know the risks? The NHS should BAN it being knowingly prescribed to pregnant mothers - my letter to Matt Hancock today:
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@ConnateSupport
Connate Support
5 years
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@ConnateSupport
Connate Support
5 years
https://t.co/n0bmrBcWtR Day Ten Kathryn has #HSD hypermobility spectrum disorder Her nerves do not stimulate her muscles properly. It is a problem of the nervous system not the muscular system. #ConnateSupport #rheumatoidlogy #neurodiversity #hypermobility #arthritis #pain
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@ConnateSupport
Connate Support
5 years
Connate Support @ConnateSupport · 20m Day nine Kathryn talks about how much she loves her sister, Kathryn was affected by #sodimvalprote a #teratogen and has many #disabilities. She is also walking to raise money for #ConnateSupport https://t.co/b9sQ4setvb @facsaware
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@OACSCharity
OACS Charity
5 years
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