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Epilepsy Society Profile
Epilepsy Society

@epilepsysociety

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Following
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Transforming lives through advocacy, research & care 💜[email protected] 01494 601 400📞Info- our website

UK
Joined November 2009
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@epilepsysociety
Epilepsy Society
2 years
On #InternationalEpilepsyDay, we celebrate law-changer, Zach! Last week we marked #ZachsLaw with Zach meeting @RishiSunak, @Keir_Starmer and taking photos at @10DowningStreet. Zach’s Law means people with epilepsy will be safer online - and trolls will be brought to justice.💜
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@epilepsysociety
Epilepsy Society
15 hours
Our video below demonstrates what may happen for someone in an atonic seizure https://t.co/dMY2961Rkl In an atonic seizure (or ‘drop attack’) a person’s muscles suddenly relax & they become floppy. If they're standing they often fall. Read more 👉
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@epilepsysociety
Epilepsy Society
2 days
Our video shows what someone may experience during a focal aware seizure (previously called simple partial seizures). https://t.co/9QLASv2mVN They're sometimes called ‘auras’ because, for some people, they develop into another type of seizure. Learn more
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@epilepsysociety
Epilepsy Society
3 days
Do you live near Chalfont St Peter? We are running a free in-person epilepsy awareness course at our centre, 1.30-5pm, Tuesday 14th October for family and friends of people with epilepsy. To apply, please email: ES.Training@epilepsysociety.org.uk
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@epilepsysociety
Epilepsy Society
3 days
Our research falls under four areas: #genomics, neuroimaging, neuropsychology & neuropathology. Learn more at our research hub https://t.co/273eLzx6Ue
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@epilepsysociety
Epilepsy Society
6 days
Negotiating the world of work might be tricky for many of us, but it can be even trickier if someone has #epilepsy. If you have epilepsy and you work, you're about to start work or you're thinking of getting back into work, read our top tips 👉 https://t.co/bUUMptNDYa
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@epilepsysociety
Epilepsy Society
8 days
If you have had no seizures for at least one year you can learn to drive a car or motorbike at 17. When you apply for your provisional licence, the @DVLAgovuk will need to know about your #epilepsy, even if you're not currently having seizures. Learn more https://t.co/ZwGCBvIIH6
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@epilepsysociety
Epilepsy Society
9 days
While at #LPC25, we had a surprise encounter with comedy legend @Aiannucci. He spoke to Cat from our comms team about Epilepsy Society’s push for stronger NHS-charity collaboration to improve epilepsy care. He even posed for a photo which made Cat’s day!
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@epilepsysociety
Epilepsy Society
9 days
Most people with #epilepsy take anti-seizure medication (ASM) to stop their seizures from happening. However, there are other treatment options for people whose seizures are not controlled by ASMs, such as VNS and diet. Learn more https://t.co/yrb5r5hvl5
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@epilepsysociety
Epilepsy Society
10 days
Genomic medicine has the potential to transform the way we care for people with #epilepsy. We believe whole genome sequencing will help us to unravel the genetic architecture underlying the different types of epilepsy. Learn more at our research hub 👉 https://t.co/SxDVSgOgT0
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@epilepsysociety
Epilepsy Society
10 days
We had a fantastic event yesterday at #LPC25. Thanks to our panellists: @danfrancis02 @ClareMoriarty @AliciaGreated @liasw @fleetstreetfox @MiriamLevin1 Rosemarie Pardingdon of @EpilepsyInst Paul Davies MP and Catryn Newton of Bute Energy. #epilepsyawareness
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@epilepsysociety
Epilepsy Society
11 days
We’ve been at #LabourConference this week, meeting MPs and sharing our work. Huge thanks to @danfrancis02 for joining our panel on how charities can support the #NHS. @Peter_Dowd @kimleadbeater @GoAndrCoop @connor_naismith
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@epilepsysociety
Epilepsy Society
11 days
🛑 Concerned about flashing images triggering seizures? Turning off autoplay for GIFs and videos is a simple step you can take to protect against potential seizure triggers and help you to stay safe online. 💜 Find out how here: https://t.co/4RhZsyINCL #epilepsyawareness
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@epilepsysociety
Epilepsy Society
12 days
We are here at B7 in the exhibition hall at the LabourParty Conference. Do come by and say hello. See ourlife-sized NHWes
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@epilepsysociety
Epilepsy Society
13 days
Epilepsy myth-buster: not all seizures involve jerking or shaking movements. Some people seem vacant, wander around or are confused during a seizure. Learn more about epileptic seizures here 👉 https://t.co/f3hy4U3X24 #epilepsy
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@epilepsysociety
Epilepsy Society
13 days
Our Epilepsy Helpline is open every Saturday morning from 9am-12.30pm – call us now to speak to one of our trained Epilepsy Helpline operators. #epilepsy #Helpline
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@epilepsysociety
Epilepsy Society
15 days
Our training courses are available to anyone looking to develop their understanding of #epilepsy for professional or personal reasons. Learn about causes of epilepsy, first aid, psychosocial issues and more. See dates, fees and book your place 👉 https://t.co/1GRP5C8OVn
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@epilepsysociety
Epilepsy Society
16 days
Epilepsy affects everyone differently. Some people may find that problems with their mood can affect their epilepsy and how it is managed. How you feel may be different and your view of #epilepsy may also change over time. We have information 👉 https://t.co/abCIV2oPSU
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@epilepsysociety
Epilepsy Society
17 days
By studying brain tissue samples we have been able to establish a potential link between SUDEP and a depression of the central respiratory system following a seizure, and a link between serotonin pathways and the risk of SUDEP. Learn more 👉 https://t.co/JAPrdlgIls
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@epilepsysociety
Epilepsy Society
17 days
Many thanks to @DentaidAndy @KatharineMacyLD @EddieCrouch @RhianSlaymaker @OllyGloverLD @ClarePelham @rankine for taking part in our Fix It For Free panel yesterday at #libdemconf. A compelling discussion with great insights from the audience. #HealthEquality #DentalCare
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@epilepsysociety
Epilepsy Society
18 days
Thank you @EdwardJDavey for getting behind our campaign asking for medical exemptions for people with epilepsy with dental injuries. #FixItForFree #Epilepsy #DentalCare #Accessibility
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