Sarah Rose
@evilgiraffe20
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Living in East Sussex. Pathfinders Neuromuscular Alliance Trustee Chair, ILG Community committee member. Views are my own.
East Sussex
Joined March 2009
Can we suggest @SKinnock , if you are in a listening mood, that you pass #GloriasLaw - the legal right for all to have a #CareSupporter in any health or care setting - or is it selective listening? #RightsForResidents
'The public really appreciates it when politicians listen and engage and take action' Care Minister Stephen Kinnock spoke to #BBCBreakfast after the government made major concessions over its planned benefits reforms to ensure claimants of Personal Independence Payment continue
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@rightsforresid2 @SKinnock I regularly count my blessings that my father who died last year didn't have to go into any sort of care/residential home.
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Keep up the pressure. Please write to your MP today and ask them to vote against the bill despite the concessions. They aren't enough - disabled people in the future will be punished. Find a template letter on our website: https://t.co/b3l3aJsLBT
#TakingThePIP
ilgcommunity.com
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I have just been made aware it's #healthinequalitiesweek Making it possible for people with specific care needs to continue their usual support from a loved one, carer or Personal Assistant when in hospital is an achievable #healthequality goal @JohnCampaign @rightsforresid2
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This isnโt just about job support. Itโs about disabled people losing everything. We asked over 250 disabled workers, employers, and suppliers about their Access to Work experiences. The message is clear: The system is failing. Hereโs what we found ๐
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Thank you @DanCardenMP for all you do for #GloriasLaw, the right to maintain contact, and for all who joined the debate this morning. link with recording of debate from parliament tv. @JohnCampaign @RuthieHenshall #RightsForResidents
https://t.co/PQwdOJyAMm
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The Health Secretary has today confirmed that there is no NHS budget to set up a new Assisted Dying service, which means - oh bitter irony - that therapeutic treatment services for living patients will be cut to fund death. https://t.co/PVj3zXfnxg
theguardian.com
โThere isnโt a budget for this,โ health secretary says after MPs vote to legalise procedure in England and Wales
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ยฃ39 billion for โsocial & affordable homesโ, but no mention of accessibility. Thereโs a real danger Disabled people will be locked out of this housing push entirely. We wonโt be sidelined again. Homes must be built with us, not without us. ๐
disabilitynewsservice.com
Fresh concerns have emerged about the governmentโs commitment to solving the accessible housing crisis after the chancellor announced a ยฃ39 billion investment in social and affordable homes, but igโฆ
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This was taken at the last debate held in parliament. Tomorrow, @DanCardenMP will lead another in Westminster Hall - the Right to Maintain Contact - #GloriasLaw #RightsForResidents - to watch it live at 09.30am head to https://t.co/WlIZln7JP4
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A great blog post about Revisiting access and inclusion in research methods by our project friends in @WAARC_Sheffield
https://t.co/1z9kcsS6ey
ncrm.ac.uk
As a part of the Wellcome Anti-Ableist Research Cultures (WAARC) project at the University of Sheffield, we have been exploring ways of making research more inclusive and accessible, and considering
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Whilst this is an interesting consultation - what we actually need is the legal right to a #CareSupporter - sure look at visiting but everyone should have the right to have that person who knows them best, with them, in any health or care setting, at any time - we need
I know how important visiting or accompanying loved ones in health and social care settings is. We are reviewing current regulations and have launched a call for evidence closing in 3 weeks. We want to hear from you about your experiences and views: https://t.co/j9tuojswTB
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Don't want to be discourteous but professionals in mental health settings, for instance haven't even heard of reg 9a as applying to them! And how many hospitals feel bound by it? The legal right to a care supporter (Gloria's Law) would stay with the person whatever the setting
I know how important visiting or accompanying loved ones in health and social care settings is. We are reviewing current regulations and have launched a call for evidence closing in 3 weeks. We want to hear from you about your experiences and views: https://t.co/j9tuojswTB
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On Tuesday 24th June at 9.30pm, I will lead a debate on the right to maintain contact in care settings, also known as #GloriasLaw. ๐งตHereโs what itโs about and why itโs so important โฌ๏ธ
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In support of #gloriaslaw and the right. to support in both care homes AND hospitals. #craftingforachange #caresupporters
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Call to action - there is a chance to change the law & allow PAs to support you in hospital. Please write to your MP today! Find out why this is important, get more info & get a sample letter here: https://t.co/mw0ooy9IhK Support @PathfindersNMA and us and spread the word.
ilgcommunity.com
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We need your help - please write to your MP and ask them to join the debate - need support with the letter? email rightsforresidents2@gmail.com and we will help you. #GloriasLaw #RightsForResidents
On Tuesday 24th June at 9.30pm, I will lead a debate on the right to maintain contact in care settings, also known as #GloriasLaw. ๐งตHereโs what itโs about and why itโs so important โฌ๏ธ
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We have 108 organisations supporting #GloriasLaw, the legal right to a #CareSupporter - this is not about visiting, but about having that right to have that person who knows you the best with you at all in times in health & care settings. Representing millions of people, thank
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๐๐ก๐๐ข๐ฅ๐ ๐๐ฑ๐ฎ๐ฝ๐๐ถ๐๐ฒ ๐๐ฎ๐๐ต๐ถ๐ผ๐ป ๐๐ฉ๐ Online ๐ปTODAY at 2pmโฐ and FREE! Thereโs still time to sign up ๐: https://t.co/L3i4BeUhCy
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*EXCITING NEWS* - Access Ava is now live on our website! Access Ava is a free & easy-to-use chatbot created by @AccessCharity1 It can help you get the support you need from social care services. For more video and a video guide on using the chatbot: https://t.co/OY9yorlEAm
ilgcommunity.com
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UpLift ๐๐ก๐๐ข๐ฅ๐ ๐๐ฑ๐ฎ๐ฝ๐๐ถ๐๐ฒ ๐๐ฎ๐๐ต๐ถ๐ผ๐ป ๐๐ฉ๐ ๐ Wednesday 11th June โ 14:00 - 15:00 ๐ Sign up - https://t.co/LBr8ajH7LL
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