Sumaira Flower ๐
@SumairaFlower
Followers
1K
Following
35K
Media
521
Statuses
3K
๐บ Founder of @thesumairafdn ๐ธ๐ฝ Miss Bangladesh-USA 2015 ๐ง๐ฉ views are my own
Boston, Massachusetts
Joined March 2010
A historical moment for @TheSumairaFDN, NMOSD, rare disease, patient advocacy and of course, my life ๐ฅน๐๐ฝ๐ฆ.
๐๏ธ๐ฐ We at TSF have some BIG news to shareโฆ .
3
2
14
8/7/14: DX'ed with #NMOSD. 8/7/25: In remission for ~7 years thanks to modern medicine, A+ care, luck and a lot of work. Sadly, this isnโt the reality for most living w/ #rarediseases. Let's keep doing all we can to ensure patients are able to thrive and not just survive ๐ค
0
2
8
RT @washingtonpost: Palestinian children have been killed at a rate of more than one child per hour during Israel's war in Gaza. โA wholeโฆ.
0
3K
0
Thank you Bangladesh ๐ง๐ฉ.
๐ต๐ธ ๐ง๐ฉ โTherefore, we must recognize the legitimate and inalienable right of the Palestine people to statehood.โ
0
0
1
Standing on business ๐ โฆ . Thank you to our collaborators, sponsors, Ambassadors, panelists, live audience, volunteers, and vendors for making @TheSumairaFDNโs 15th Patient Day (in 2 years) in Chicago a SUCCESS! ๐ฉท๐งก๐ . Next stop: Salt Lake City ๐๏ธ with @StaceyLClardy & co!
0
2
9
RT @BernieSanders: 130 people were killed and more than 1,000 wounded in Gaza this weekend. People are starving. Many were shot by the Isrโฆ.
0
13K
0
RT @DrNeenaJha: Seriously what do we do??. Weโve protested, boycotted, campaigned, donated, written articles, pressured our government & inโฆ.
0
12K
0
RT @neurology_live: ๐ฅ In this interview, @SumairaFlower, of @TheSumairaFDN, discussed a newly funded international trial evaluating both apโฆ.
0
5
0
Happy 4-year work-versary to my business partner, strategic advisor, best friend and partner in cause, the one and only Michael โ๏ธ together, we are unstoppable ๐ฉท
1
1
13
RT @Harvard: Without its international students, Harvard is not Harvard.
harvard.edu
We have just filed a complaint and a motion for a temporary restraining order will follow. As we pursue legal remedies, we will do everything in our power to support our students and scholars.
0
16K
0
RT @TheSumairaFDN: Today, we visited the @US_FDA & learned about how they support Phase IV trials. #NMOSD is fortunate to have 4 highly-efโฆ.
0
3
0
Was so happy to visit Prof. Deiva in Paris, one of the worldโs top pediatric neuroimmunologists & truly one of the kindest people Iโve met. He offered unexpected comfort, wisdom and care when I was grieving a family member last year. His patients are so lucky to have him.
๐ซ๐ท Aucune visite ร Paris n'est complรจte sans dรฉcouvrir l'unitรฉ de neurologie pรฉdiatrique du Prof. Kumaran Deiva au @Hopital_Bicetre, dรฉdiรฉe aux soins, ร la recherche et ร l'espoir pour les enfants atteints de maladies rares. Merci pour votre dรฉvouement envers les petits ๐ฆ
0
0
4
๐๐พ๐ธ๐ฆ๐ฅ Best wishes to my friend/brother, @aysabbagh, who is running the @bostonmarathon on Monday which will make him one of 3 Saudis to complete all 6 World Majors! ู
ุจุฑูู
0
1
5
๐ฉท๐๏ธ On April 7th, @chicago was illuminated PINK to celebrate #MOGAD Awareness Month!. Thank you @bomachicago for the opportunity to raise awareness of MOGAD. S/O to AnneMarie, TSF Ambassador of Illinois & #NMOSD patient, for organizing these magical illuminations!. #TSFMOG2025
0
0
8
RT @phil_bilodeau: I am very grateful to @PCORI for funding our clinical trial on the comparative effectiveness of immunotherapies in NMOSโฆ.
0
2
0
RT @drBWillekens: There's no such thing as coincidence. Guess who I ran into at #AAN2025 in San Diego between thousands of attendees? .@Suโฆ.
0
3
0
