
The Sumaira Foundation
@TheSumairaFDN
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Raising awareness of rare neuroimmune disorders, building community, supporting research and advocating on behalf of patients globally.
Boston, MA
Joined November 2014
RT @MayoNeuroFellow: Congratulations to Dr. Hooshmand (Movement Disorders Fellow, Mayo Clinic residency graduate) on her publication “Appli….
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⚽️ Great to meet Tristan Blackmon, Sebastian Berhalter and Max Arfsten from the 🇺🇸 US Soccer Men’s Soccer Team @USMNT today! Good luck in your upcoming match against South Korea 🇰🇷
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RT @MSJ_Research: The definition of acute disseminated encephalomyelitis #ADEM need to be updated to be applied to attacks at any time duri….
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Want to attend a TSF Patient Day? Save the date for 2025 events below:. 🇺🇸 Seattle, WA - October 18 (Registration is open: @ShuvroRoy . 🇨🇦 Toronto - November 8. 🇮🇹 Rome - November 22 @neurotutto . 🇫🇷 Lyon - November 29 @marignierro @JuliePique
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RT @JAMANeuro: Case report: a false-negative result of the aquaporin-4–immunoglobulin G (AQP4-IgG) test due to the prozone effect in a woma….
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RT @MSJ_Research: Misapplication of the 2015 criteria for neuromyelitis optica #NMOSD is common, and alternative explanations in seronegati….
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In 2021, following a long-term infection & COVID, Terry developed multiple health issues including pericarditis, Sjögren’s disease followed by an #NMOSD diagnosis after worsening symptoms. Read how Terry has gotten her groove back despite her challenges:
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#MOGAD in the media: "Dad Has Headache That 'Would Not Go Away'—Diagnosis Shocks Young Family". Thank you @Newsweek for covering this story and raising awareness of MOGAD.
newsweek.com
Newsweek spoke to his doting wife Michelle, 33, about the rare autoimmune disease that has "has changed nearly every aspect" of their lives.
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RT @SumairaFlower: The 1-month countdown for @ECTRIMS Patient Community Day 2025 in Barcelona has begun! 🇪🇸. ECTRIMS Patient Community Day….
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💡🩷 A study in @SclerosisAnd revealed the impact of #NMOSD and #MOGAD on thinking abilities and emotional wellbeing. Read the plain-language summary here:
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RT @JAMANeuro: Meningitis may sometimes be an early sign of meningoencephalitis or parenchymal disease, with lesions not yet visible due to….
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RT @AKunchok: Real World Effectiveness and Tolerability of Novel Monoclonal Antibodies and Rituximab for NMOSD @MRe….
onlinelibrary.wiley.com
In this multicenter retrospective cohort study of 135 people with aquaporin-4 IgG+ neuromyelitis optica spectrum disorder (NMOSD), some of whom were exposed to multiple therapies, we evaluated the...
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We're coming to Seattle!. We're inviting patients & caregivers impacted by #AE, #CNSvasculitis, #MOGAD, #neurosarcoidosis, #NMOSD and #SPS to join us in Seattle on 10/18!. Join us for a day of education, community and fun . @ShuvroRoy
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RT @GreenJournal: This study investigated neurodegeneration in MOGAD, independent of relapses, by comparing clinical, cognitive, and advanc….
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🇨🇦 Excellente nouvelle pour les patients canadiens atteints de NMOSD et de gMG !.
newswire.ca
/CNW/ - Alexion Pharma Canada Corp., la division des maladies rares d'AstraZeneca, a conclu une lettre d'intention avec l'Alliance pharmaceutique pancanadienne...
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🇨🇦 Excellent news from Canadians living with #NMOSD & #MG!. Alexion, AstraZeneca Rare Disease reaches an agreement with the pan-Canadian Pharmaceutical Alliance (pCPA) for Ultomiris for the treatment of adults with NMOSD and adults gMG.
newswire.ca
/CNW/ - Alexion Pharma Canada Corp., AstraZeneca's Rare Disease group, has entered into a Letter of Intent (LOI) with the pan-Canadian Pharmaceutical Alliance...
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