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New Year, New Name, Familiar Faces - Meet WOI

New Name, Same Great Service

A natural disaster and emergency preparedness plan is even more critical when you or a loved one has #cysticfibrosis. Download our disaster preparedness checklist to learn what to update annually, supplies to have ready, and how to begin recovery.

Thank you to the teens who came together for our 15th annual Teen Advocacy Day! Together, we can spark meaningful change by highlighting the needs of people living with cystic fibrosis. #CFAdvocacy https://t.co/a4xpPo45Ac

.@reptimburchett @SenatorHagerty @marshablackburn, as a constituent and someone personally affected by #cysticfibrosis, I’m calling on Congress to prioritize the needs of the CF community. I urge you to cosponsor and pass the HELP Copays Act and the PASTEUR Act. #CFadvocacy

Thanks to senator Mitch McConnell’s staff for listening to the Cystic Fibrosis Foundation’s story and the need to pass the Pasteur Act for Antibiotic development. @LeaderMcConnell @easttncff @CF_Foundation @jollyjohnson

Thanks to Representative Tim Burchett for listening to the Cystic Fibrosis Foundation’s story and the need to pass the Pasteur Act for Antibiotic development. @RepTimBurchett @easttncff @jollyjohnson @carolineeejack

Thanks to Representative Chuck Fleischmann for listening to the Cystic Fibrosis Foundation’s story and the need to pass the Pasteur Act for Antibiotic development. @RepChuck @easttncff @jollyjohnson @carolineeejack

Thanks to Representative Andy Barr for listening to the Cystic Fibrosis Foundation’s story and the need to pass the Pasteur Act for Antibiotic development. @RepAndyBarr @easttncff @jollyjohnson @carolineeejack

BREAKING: @FoxNews confirms Florida Governor @RonDeSantis will announce his 2024 Presidential run tomorrow night, 6pm ET in a Twitter Spaces interview with @elonmusk.

In celebration of 65 Roses Day, we’re thrilled to be featured on the @Nasdaq Tower in @TimesSquareNYC! The display will be live through Sunday, June 5.

May is #cysticfibrosis awareness month. The graph on the left is the median age patients born in a specific year can expect to live. The arrow on the left is the news my parents got when I was diagnosed (~29). The arrow on the right is the news parents get today (>50)

OUR GREAT USA WANTS & NEEDS STIMULUS. WORK TOGETHER AND GET IT DONE. Thank you!

Thanks to ⁦@bnock5046⁩ for joining Abby and I today on the hill advocating for Cystic Fibrosis patients including NIH and FDA funding. Great meetings with ⁦@SenAlexander⁩ ⁦@MarshaBlackburn⁩ ⁦@DesJarlaisTN04⁩ ⁦@timburchett⁩ ⁦@RepChuck⁩ ⁦

Thank you ⁦@RepTimBurchett⁩ for meeting to discuss comprehensive coverage for those living with Cystic Fibrosis. Also thanks for considering funding for NIH and FDA to help us reach the cure for this disease. @CFFoundation @cf_tn #cfadvocacy ⁦@bnock5046⁩

Thank you ⁦@DesJarlaisTN04⁩ for meeting to discuss comprehensive coverage for those living with Cystic Fibrosis. Also thanks for considering funding for NIH and FDA to help us reach the cure for this disease. @CFFoundation @cf_tn #cfadvocacy

Thank you ⁦⁦@SenAlexander⁩ for meeting to discuss comprehensive coverage for those living with Cystic Fibrosis. Also thanks for considering funding for NIH and FDA to help us reach the cure for this disease. @CFFoundation @cf_tn #cfadvocacy ⁦@bnock5046⁩