Gunnar Esiason
@G17Esiason
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Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech | Healthtech | Hockey coach 🦠🔬🏒 @BostonCollege @TuckSchool @Dartmouth 🦅🌲
New York
Joined April 2011
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Pinned Tweet
I have walked out of the hospital beaten, broken and defeated far too many times to count.
THIS walk is one I’ll never forget.
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I’ve been wearing an N95 for an hour. The top number (99%) is my oxygen saturation. The bottom is my HR after running up stairs
My CF has led to bronchiectasis, extensive airway scarring and multidrug resistant infection in my lungs.
If I can breathe with a mask on, so can you!
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We’ve been going through IVF for some time now because of the infertility that accompanies cystic fibrosis. It’s been my dream to be a father one day, and I couldn’t imagine living my dream with anyone else by my side. My beautiful bride is pregnant with our son due in December.
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It finally happened.
With tears running down my face, I got my first dose of Moderna's COVID-19 vaccine after a long, long year.
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I turned 32 today. The house was filled with the sound of dogs barking and a toddler crying and giggling. My oxygen saturation and resting heart rate are both in much better shape today than they were when I turned 18.
Together, all that makes for a pretty good day!…
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The Kaz Man has arrived!!
Kaspar Fitzwilliam Esiason, our beautiful baby boy, is here!! Both mama and baby are happy, healthy and wonderful.
Miracles DO happen!!
Merry Christmas🌲💜☃️🎄
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I finally ran a complete circuit around the Chestnut Hill Reservoir. Something I tried many times during my tenure at
@BostonCollege
but failed with each attempt. Since my lungs began a steady decline during Sophomore year, I was never strong enough. Today I did it. 7 years later
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A moment of personal pride. Hit my highest pulmonary function test — at 30y.o — since sophomore year of high school about 15 years ago.
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This Make-A-Wish recipient needs to lead the Jets out of the tunnel at every home game. The amount of energy in this video is infectious.
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Celebrated one full year free of intravenous antibiotic therapy with my girls (one behind the camera) on a coffee date in Woodstock, VT!
A far cry from the 8-12 weeks per year I used to spend attached to an IV bag.
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A big thank you to
@PardonMyTake
for using their platform to talk about cystic fibrosis for a few moments. Awareness for our rare disease in such a public place is invaluable!
I guess my dad did okay, too...
Pardon My Take 10/24 featuring
@7BOOMERESIASON
is live. DL, subscribe, unsubscribe and resubscribe —->
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Congrats, dad, on 22 years at NFL Today!! I can think of one little football fan who is excited to watch games with you on Sundays.
@7BOOMERESIASON
The new cast of 'The NFL Today' on CBS:
• James Brown
• Nate Burleson
• Bill Cowher
• JJ Watt
• Matt Ryan
Boomer Esiason and Phil Simms won't return to the pregame show after a combined 48 years, and they'll be succeeded by Matt Ryan.
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Super cool to hear my dad about this earlier this morning!
@7BOOMERESIASON
Calling it the "crowning achievement" of a decadeslong fight against cystic fibrosis,
@7BOOMERESIASON
gets emotional discussing his son Gunnar's wedding engagement.
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Delivered a eulogy today for one of my best friends.
I’m 27, she was 28... it shouldn’t have to be like this. Cystic fibrosis is a monster. We need a cure. Now.
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A moment of personal pride this week:
By Friday it will have been 2 years since the last hospital-based intervention for my cystic fibrosis. Feels like a monumental moment. I can’t remember the last time I made it 2 years… maybe elementary school?
All thanks to these two:
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Got to do something I never thought I’d be able to do again.
Last time I skied at altitude was when I was sixteen in Jackson Hole, but I suffered a massive hemoptysis at the top.
Haven’t done it until…
Yesterday I got to the top of Alta @ 10,500ft and felt amazing.
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Met my niece today! Nice things still happen in a world stricken with chaos.
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My life changed on April 9, 2018 when I took my first dose of the ‘Triple Combo’ in a phase III clinical trial. The triple combo, named for its various components, is a drug designed to treat the underlying cause of cystic fibrosis.
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It’s happening!!!!!!! Top Gun: Maverick NYC premiere. Hanging out with dad tonight.
@7BOOMERESIASON
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We had a little snow last night, and while shoveling the driveway this morning it dawned on me that doing so wouldn't have been possible only 4 years ago when I was at my sickest. I'm still amazed at how far I have come, and to think a baby will be joining us any day. It is wild.
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Thanks for sharing this,
@barstoolsports
Cystic fibrosis a nasty thing, but the euphoria people with CF feel when they get this kind of call is unrivaled.
Kevin finding out he is getting new lungs donated to him is the best thing you will see today.
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SIX YEARS OLD with cystic fibrosis and now diagnosed with COVID-19.
This is WHY you need to take social distancing seriously.
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🔥🔥🔥
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Congrats, dad!!!!
Chad Johnson and Boomer Esiason are this year’s Ring of Honor inductees!
On September 25th at halftime vs the Rams, they will be recognized with a special induction ceremony.
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Happy Father’s Day to all the dads out there — but especially the dads with cystic fibrosis who have overcome a brutal medical diagnosis and the infertility that comes with it to become parents.
You guys are the real dudes.
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One day I'll get my own name in the headline! But until then, I appreciate the shout out!
Boomer Esiason's son opens up on cystic fibrosis: 'Demon inside me'
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First time at UBS Arena tonight. Way better than MSG… not even close.
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My very grown up baby sister got the wedding of her dreams! I am so happy for her, Matt and our whole (now much bigger) family! What a night.
#justmartied
@mattymarts17
@sydneyesiason
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MBA ✅✅
I wish I could show my 22-year-old self this photo and tell him everything would be “just fine, better than you could ever imagine!”
Grateful for the spring board two years at the
@TuckSchool
is going to give me, great friendships and a hell of a lot of memories!
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Field level at halftime! Kaspar gets a lifetime moment watching Boompa get inducted into the Bengals Ring of Honor.
@7BOOMERESIASON
@Bengals
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One year ago we did our
#IVF
embryo transfer. There is no greater bunch of technologies in the world than the one that enables this magic.
How it started: How it’s going:
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Happy 60th birthday to
@7BOOMERESIASON
!!!
A big milestone for a big guy! Good luck on the 60 mile bike ride today, and if you want to celebrate my dad’s birthday, help us reach our $100k goal for
@cysticfibrosis
scholarships and assistance grants!
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Our little man graduated the newborn stage and is now a full on infant.
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What a joke. The only reason I’m alive is because these companies are willing to risk billions to find solutions to the most complex problems imaginable.
Giant drug companies only care about one thing: raking in profits on the backs of patients. Mergers that mean more money for drug company CEOs while patients pay the price are not a solution to skyrocketing drug costs.
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Holding 30 years of cystic fibrosis research, millions in fundraising, hundreds of thousands of volunteer hours, and tens of billions of dollars of drug development funding in my hands.
It’s surreal.
#trikafta
1989: CF gene identified
2000: CFTR modulator program begins
2019:
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For the first time in close to 15 years, I went a full year without suffering from a
#cysticfibrosis
pulmonary exacerbation. Sure, chemistry has played it's role, but the answer to my problems has been erasing the victim mentality.
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CBS halftime show hilarious rn. Can’t believe there is a speaker directly behind them 🤣🤣🤣🤣
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Speak for yourself, my man. I've been living with TWO deadly pathogens imbedded in my body for >15 years. Something as small as the common cold possesses the power to spark life limiting complications for me... I wasn't hiding behind a locked door before this, and won't after.
The virus may end the late 20th century way of life.
Large physical gatherings of strangers will be viewed with concern from here on out. That means political rallies, concerts, events, restaurants, dense cities.
The only hygienic gatherings are online.
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This weekend will be three years (3!!!) since the last time I needed IV meds to treat a pulmonary exacerbation
I used to count the time between hospital visits with a Rangers game or two at MSG
This time around it’s been grad school, marriage, baby, a move…
Photo from 2019🤒
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We required every attendee to be fully vaccinated at the wedding (yes, some people did back out as a result).
It’s been two weeks since the wedding. I tested negative for COVID via PCR, and we have no positive tests to report from the big day.
No masks
No distance
Vaccine FTW✅
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My 10 year college reunion is next weekend. At the time it felt like graduating from BC would be the only milestone I'd achieve in my life. I was hospitalized a few months after graduation and set down a path towards certain demise. It was really scary!
Then my 5 year reunion…
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Closing out 2023 with Kaspar’s first day on the ice! The little man had an absolute blast.
@7BOOMERESIASON
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Today is my favorite day of year at work... I get the privilege of calling 10 cystic fibrosis patients to let them know they've each won a $10,000 college scholarship... The excitement in their voices resonates with me forever.
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It took 28 and a half years, and I went through hell and back to get there, but I finally got to play in my first “intercollegiate” club hockey game tonight. It was worth every second of it.
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It finally happened — my first serious illness since starting Trikafta about 5 and a half years ago (clinical trial).
Heavy cough, extreme mucus production, fever that wouldn’t break, hemoptysis, no sleep: textbook pneumonia and all the classic hallmarks of what my CF used to…
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The evolution of my morning routine over the past 5 years:
2017: Finish overnight feeding tube dose, shrug off bloating and start 90 minutes of inhaled treatments. Hope I don’t vomit.
2022: Get peed on by newborn, take Trikafta. Hope coffee is still hot.
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3 episodes through Tiger King. We’re 100% on Carole having fed her husband to the tigers, right?
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Welp... I finished my first MBA term. From inching towards supplemental oxygen dependency 6 years ago to learning to tackle the world’s business problems at
@TuckSchool
, my life has seen the miracle of medicine at work. I’m immensely thankful for it all.
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And a huge THANK YOU to the midwives and birthing pavilion team at
@DartmouthHitch
for managing peak pandemic here in New Hampshire, while providing top notch care for Darcy and our little baby boy.
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I’m thrilled to say that I’ll be spending a few years studying at
@dartmouth
! I am going to be pursuing an MBA at the Tuck School of Business and an MPH at The Dartmouth Institute for Health Policy and Clinical Practice.
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The Twitter hate Lee Corso gets every time GameDay airs is just pathetic. The man is synonymous with the show, it’s the best live show on TV. Nothing comes close.
As far as I’m concerned, coach can stay with it for as long as he wants.
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Thankful for our Turkey in the oven that’s about to bust out!
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One of the most common symptoms of cystic fibrosis is congenital bilateral absence of the vas deferens. Men with CF can still father children, but require IVF treatments to do so. While my part of IVF was uncomfortable, it was easy compared to Darcy’s. She is my forever hero.
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This isn’t even a fight. This is assault. At a sporting event no less. Physical altercations at sporting events (where adults cheer on other adults) have to be the dumbest thing going.
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Some reassurance for the CF community. Two people with cystic fibrosis have contracted COVID-19 in Italy. One is 27 and able to manage it at home. The other is an infant who is also doing well at home. My thoughts are with them as they recover.
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The most hilariously placed speaker in the history of football.
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Welcome to the family, Blitz!
My Dad gave me and Darcy some advice this summer. He told us that life can be beautiful when you embrace the chaos. With that being said... meet the newest member of the Esiason family - ⚡️Blitzen the Vizsla ⚡️!!!
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Prior to last night, I had been waiting my whole life to win a raffle.
Well... I finally did win... and wouldn't you know it... I won a
@7BOOMERESIASON
signed Jets helmet.
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But we’re SO happy for Matt scoring last night. I’ve never cheered so hard for the islanders in my life. If he couldn’t be there, a GWG is more than enough to fill the shoes!!!
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He’s 1 year old and already has priorities straight. Excited for “FOOTBALL” Sunday.
#WhoDey
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We’re excited to partner with
@barstoolsports
to raise money to fight back against
#cysticfibrosis
!
@cysticfibrosis
@KFCBarstool
The Barstool Classic is proud to partner with The Boomer Esiason Foundation for the Pound Ridge, N.Y. stop on August 26.
@7BOOMERESIASON
@cysticfibrosis
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A big thank you to everyone for the kind messages and tweets today (somewhat of a rarity on this website).
30 definitely feels like a cystic fibrosis milestone age... that’s for sure, but the truth is I’m grateful for every day past and future. Here’s to more good days ahead!
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Thinking the NFL draft should just be in Vegas for the rest of time
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Out here fancying myself a Rip, but my wife keeps calling me Jamie Dutton
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Kaspar has had his Rangers hat on all week thanks to the Scozzares! Looking like he’s going to be wearing it for the rest of the playoff run.
@WFANmornings
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Pretty cool to see a young man with cystic fibrosis on
@AmericanIdol
performing with
@LukeBryanOnline
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My wife's 1 rule for me when she goes into labor is that I can't "try to be funny"
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My fiancée is sending me to the grocery store but has no faith in me to do a good job.
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May is cystic fibrosis awareness month!!! I am biased but I call the overnight transformation of CF care the greatest story in modern medicine (...probably only to be surpassed by Covid vaccine development 🙄🙄)!!!
#cysticfibrosis
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FDA approves Trikafta!!!!
This is the day the cystic fibrosis community has been waiting for, for decades and decades and decades. Trikafta will change the prognosis of CF forever.
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A running list of people allocated for vaccine ahead of cystic fibrosis and rare disease patients:
✔️ 9/11 masterminds
✔️ smokers
✔️ “vaccine chasers”
This is lovely. Going real well, team!
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To all Long Island hockey fans… our wedding date was specifically chosen based on historical ending dates for the Stanley Cup over the past 20 years.
Sadly we didn’t factor in a global health emergency and a delayed NHL season when we picked the date last winter
@WFANmornings
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The Lord’s work here.
Now we need this on Long Island. You all know where… Southbound on Cross Island Parkway at exit 30E to the LIE eastbound.
Massachusetts State Police is pulling over vehicles tonight who merge last second to cut rush-hour traffic on Storrow Drive.
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Vaccinate people with cystic fibrosis!!
🙏🏻💯
COVID vaccine: Those with underlying health conditions are left behind
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Two years ago today FDA approved Trikafta and changed cystic fibrosis forever.
My life changed on April 9, 2018 when I took my first dose of the ‘Triple Combo’ in a phase III clinical trial. The triple combo, named for its various components, is a drug designed to treat the underlying cause of cystic fibrosis.
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