Kerry Newnham
@Squashedhedgi
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Tube-fed, bedbound, a very severe M.E veteran, injured in this battle. Unlikely to come through intact or alive. UK harmed pwME & then neglected us. LW-green
Joined December 2010
I think that the #me community needs a discussion about how we are still letting the term Chronic Fatigue syndrome anywhere Near this #mecfs.
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RT @Naomi_D_Harvey: Please sign āš¼ . The level of neglect Dill and other Very Severe ME patients are experiencing in NHS care is unconscionā¦.
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RT @ahandvanish: The model revealed that patients who were ill for <4 years had fewer disrupted networks than those who were ill for >10 yeā¦.
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RT @DrScomaME_CFS: The Triad That Traps: PEM, Orthostatic Intolerance, and Brain Fog. In ME/CFS and Long COVID, these domains drive the greā¦.
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RT @ParkinsonsUK: "I have had access to exercise groups, physiotherapy, speech therapy, a dietitian and aqua therapy.". You might already kā¦.
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RT @Squashedhedgi: @WoollerEmma @CMO_England Yes we have gone backwards. Part because of our awful charities whoāve refused to campaign, spā¦.
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RT @Squashedhedgi: @CMO_England Still waiting for the research, funding, medical services & treatment that Liam Donaldson CMO said m.e shouā¦.
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RT @WoollerEmma: @Squashedhedgi @CMO_England Those recommendations are stronger than the latest delivery plan, and it's interesting that thā¦.
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RT @ABrokenBattery: āThe inquest found in its preparation was that there is no expertise anywhere within the NHS, and this plan is not goinā¦.
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RT @gunsnrosesgirl3: Monkeys from the subfamily Callicebinae. These monkeys partner for life, the bond is so strong they are inseparable. Tā¦.
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RT @SkyNews: Starmer facing ban from Sikh events over failure to follow through with promised inquiry . š Read more
news.sky.com
The Sikh Federation wants an investigation into alleged UK involvement in the 1984 Golden Temple massacre in Amritsar. The prime minister, while in opposition, promised a Labour government would...
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RT @MarkMooch: Unsurprisingly the ME Delivery plan seems like it is not the ālets get this terrible burden for sufferers and country sortedā¦.
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RT @PaulRKeeble: It is obviously very simple and easy to show what the delivery plan should be, not least because its about giving ME/CFS pā¦.
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RT @NeuroSjogrens: Sorry, there's a lottery to get up to date clinicians in a given disease. Your disease did not win the lottery. Try agā¦.
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RT @ABrokenBattery: Sean OāNeill on Times Radio talking about the new government delivery plan for ME/CFS āIāve never seen a plan that lackā¦.
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RT @AlzResearchUK: No one should be left unseen with dementia. Sign the petition today for early, accurate diagnosis for everyone.
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RT @Dan_Wyke: Alarming neglect of another hospitalised young woman with severe #MyalgicEncephalomyelitis. Please read, sign and share. š #Mā¦.
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RT @RFH1955: Today is not a victory. The @DHSCgovuk have, through their own inactions over decades, placed #myalgicencephalomyelitis patienā¦.
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RT @LongCovidAdvoc: This excerpt from the ME Delivery Plan shows the inherent disease inequity for ME. Can you imagine saying to severe Paā¦.
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RT @mssocietyuk: Today weāre celebrating #WorldBrainDay! š§ . We met with Rory TĆ¼rkmen-Smith, the Engagement Manager at the MS Society Tissā¦.
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