Autoinflammatory UK -Making the Invisible Visible
@PeriodicFeverUK
Followers
363
Following
2K
Media
23
Statuses
1K
Our Support Group: https://t.co/IlvIC8EuBA Our Facebook Page: https://t.co/VUj4HX4re8
United Kingdom
Joined August 2018
Fyi: @rheum_covid @icedcoffeecreat
@wendycostello2
@AAlliance_SAID
@PeriodicFeverUK
@RareRevolutionM
@MD_Briggs
@camraredisease
@eurordis Whole genome sequencing could save NHS millions of pounds, study suggests https://t.co/k84UDkbOMD
theguardian.com
Genomics England and NHS England findings highlight benefits of using WGS to help detect rare diseases
0
4
7
fyi @wendycostello2 @AAlliance_SAID @PeriodicFeverUK @PReSEMERGE @rheum_covid @ACRheum please retweet and share widely.
Outcomes of COVID-19 Illness in Systemic Autoinflammatory Diseases and Changes in Flares During the COVID-19 Pandemic: An International Survey #ACR21, Mon, Nov 8th, Poster Session C from 8:30AM-10:30AM EST https://t.co/lfQYVVi3bT
0
2
4
An interesting read about Dan Kastner and the gene hunt for FMF. #DanKastner @NIH @NIAIDNews @AAlliance_SAID @PeriodicFeverUK
https://t.co/n5Bugfdh0R
science.org
Daniel Kastner and colleagues have identified more than a dozen genes causing autoinflammatory diseases and helped find treatments for the conditions
0
2
3
A must read review on type I interferonopathies @NatImmunol @AAlliance_SAID @drdhanyalakshmi @RACC_UK @PeriodicFeverUK @GlobalRheum @MattersRheum
https://t.co/pmOf1Ho8PG
1
12
15
Basics of Autoinflammation by Prof Amita Aggarwal...Crystal Clear & Easy to Understand...#PRSI2021 @vignesh_pgi @IsabelleMeyts @Sanket_JIPMER @RACC_UK @AAlliance_SAID @PeriodicFeverUK @AutoinflamMonth @sjiafoundation @DrSagar_Bhattad @PanktiMehta24
1
6
17
fyi @PeriodicFeverUK
@canna_lab IL-6 blockade, meta-analysis Many studies relied on the co-administration of steroids https://t.co/EZDgpo5ps9
#ACR21
0
1
1
Proud to be an inaugural member of the new Scottish Parliament Cross Party Group for Rare, Genetic and Undiagnosed Conditions. Looking forward to representing the #rare #autoinflammatory community at our first meeting on October 26!
0
1
3
Effect of Immunosuppression on the Immunogenicity of mRNA Vaccines to SARS-CoV-2 from Annals of Internal Medicine. https://t.co/1S8EyiI7Pt
0
1
1
Calling patients and parents: We want to understand what you see as the TOP priorities for research into CNO/CRMO. Your priorities will then be used to set the agenda for our 2022 conference. Complete the survey here: https://t.co/5Lt4BeqjT9
1
6
7
2021 International Autoinflammatory Awareness Month Official Video https://t.co/iTIhtortoP via @YouTube
0
1
5
I am excited to share this @NatImmunol manuscript describing our study of a pediatric autoinflammatory, IBD-like disease that led to discovery of the ELF4 transcription factor as a key regulator of inflammation in humans and mice. Hereβs a summary. (1/n) https://t.co/YH2h1EapO0
17
72
260
Proud to have been a part of this excellent research serving our wider #autoinflammatory community and published in the Lancet
thelancet.com
People with rheumatic disease maintained therapy and followed public health advice to mitigate the risks of COVID-19. Substantial employment status changes occurred, with potential implications for...
0
2
4
[New centre opening] The English centre @LeedsHospitals is now open! Welcome on-board @sinisauksav and team! All centres in UK are now open. Find out more: https://t.co/ffMUi0aYT6
#autoinflammatory
0
4
7
"#SweetSyndrome is a rare cause of full-body rash and #pharyngitis which can progress to clinically significant #laryngitis." A Sweet Voice: Acute Febrile Neutrophilic Dermatosis of the Larynx.
journals.sagepub.com
Significance Statement Acute febrile neutrophilic dermatosis (Sweet syndrome) is a rare idiopathic condition characterized by fever and whole-body rash of tende...
0
1
0
Our latest #Review is now online: Molecular mechanisms of phenotypic variability in monogenic #autoinflammatory diseases Check it out at https://t.co/sjby6qlo17
#Rheumatology #Rheumtwitter
0
10
24
New Research: BehΓ§etβs DiseaseβDo Microbiomes and Genetics Collaborate in Pathogenesis?: BehΓ§etβs disease (BD) is a multisystem autoinflammatory condition characterized by mucosal ulceration, breakdown of immune privilege sites andβ¦ https://t.co/LLHatIgozQ
#immunology
frontiersin.org
Behcet's disease (BD is a multisystem autoiinflammatory condition characterised by mucosal ulceration, breakdown of immune privilege sites and vasculitis. A ...
0
7
15
βBut you donβt look sickβ, often said with good intentions, it often is a reminder of the all invisible challenges that come with #AiArthritis. Whatβs something invisible you have to deal with? #AiArthritisDay
1
12
17
May 20 is World Autoimmune & Autoinflammatory Arthritis Day. Join @AIArthritisDay & other patient orgs to help raise awareness about the different types of inflammatory arthritis: https://t.co/1AHoaToLOZ
#AiArthritisDay @CherylKoehn @IFAiArthritis @ASIntFed @CRASCRRheum @RheumAb
1
6
11
Today is World Autoimmune and Autoinflammatory Arthritis Day To raise awareness, we will be sharing some of our recent content on different kinds of adult and childhood #arthritis throughout the day #aiarthritisday #RheumTwitter #Rheumatology
0
29
59