Congratulations to Dr Hal Hoffman for this distinguished honor for his efforts for #autoinflammatory diseases, especially his research for Cryopyrin-associated periodic diseases (CAPS), including the discovery of the NLRP3 (formerly CIAS1) gene that causes CAPS) & new treatments.

Happy Nurses Week! Thanks to so many dedicated nurses for all that you do daily. 🧡 We honor you. Fun fact-our org has 2 RNs and a former LVN on our board of directors.

Calling for you to enter your #autoinflammatory and #immunedysregulatory unique case reports! Please enter this ACR Thieves Market. #rheum #immun #immunology #rheumatology.

RT @ACR_Journals: Still disease is a rare inflammatory disorder often triggered by infections or malignancies. Case report in ACROR explore….

Please contact your elected officials to request more support for #autoinflammatory and immunedisregulatory research. Donations to our org are mostly used to support research for these diseases. #hope4SAID #researchishope 🧡.

Many patients with autoinflammatory diseases are undiagnosed for years. Up to 40% that are identified as having #autoinflammatory symptoms have not had a genetic cause, or clear disease classification identified yet. More research is needed. Your support, and advocacy is needed.

RT @ACR_Journals: Call for case reports! Send your illustrative and informative cases in rheumatic diseases and related conditions to ACR’s….

RT @alb_giraldo: 2024 update of the EULAR/PReS recommendations for the management of familial Mediterranean fever. *Ozen S, Sağ E, Oton T,….

RT @APLAR_org: Great news! The #APLAR25 abstract submission deadline has been extended to the 18th of April 2025!. Share your research for….

RT @royalhansen: So many people suffering from diseases and conditions that we can diagnose and cure with more precision when we lock arms….

RT @JAMADerm: VEXAS syndrome, MDS-cutis, and idiopathic Sweet syndrome share common inflammatory pathways, suggesting interferon pathways a….

RT @APLAR_org: We invite APLAR Young Rheumatologists to apply for the Congress Travel Grant!. Once accepted, you will get complimentary reg….

RT @ACR_Journals: Multi-disciplinary @carrainc taskforce developed the first guidance statements for assessment and management of mental he….

RT @sjiafoundation: If you want to hear the inimitable Dr. Canna speak, then join us tomorrow. Still a few hours to register (its free!).ht….

RT @WORDDay_org: Hosting an event near you?.We’re excited to share the #WORDDay2025 World Map with you! 🌍.The map highlights activities and….

RT @genome_gov: Researchers are still trying to understand what every gene in the human genome does on all levels. NHGRI’s MorPhiC program….

Please advocate for rare disease, especially #autoinflammatory disease research with your elected officials. The NIH is the leading source for research at the clinical center for autoinflammatory disease, & this research has helped understand more for immunity that benefits all.

RT @casanova_lab: The common HAQ STING allele prevents clinical penetrance of COPA syndrome

RT @RareDiseases: If you or some you love is living with a #RareDisease, join the #LivingRareStudy and make sure your voice is heard. You c….

Call to Action: Please use this portal to contact your elected officials today (Rare Disease Day) to share how NIH research autoinflammatory, immunedisregulatory or other rare diseases. Rare disease research has been one of the least funded in the US. Also write Pres, VP, HHS.🧡.