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MyPurplePatch πŸ’™ Profile
MyPurplePatch πŸ’™

@Patch1Purple

Followers
408
Following
4K
Media
431
Statuses
3K

England, United Kingdom
Joined August 2016
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@DaleRockell
Dale Rockell
24 days
'Pleasurable Overload', the reality of #Fibromyalgia payback for having a nice time. πŸ€”πŸ˜’ #spoonie #menwithfibro #Pomeranian #FibroLife #ChronicPain #chronicillness https://t.co/NhsE6Fa2rU
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@Patch1Purple
MyPurplePatch πŸ’™
23 days
What's it like living with someone with chronic illness ? This week on my Substack my wife reveals all about my conditions - THE BAKERS DOZEN - Thirteen Chronic Questions https://t.co/1qRGYV7YCD @GeneticAll_UK @ITPSupportAssoc @fmauk @FibroBloggers @fibrocanada #Global4ITP
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@Patch1Purple
MyPurplePatch πŸ’™
24 days
Do check out the video & podcast I recorded in August - Anthony Heard ITP and Fibromyalgia Chronic Disease Advocate S2 E14 https://t.co/EgIoF6omd7 via @YouTube @Fibro_byUbie @fmauk @FibroBloggers @teamfibro @fibrocanada @ThisFibroChick @OSufferer @ITPSupportAssoc #Global4ITP
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@fibrocanada
Fibromyalgia Association Canada
26 days
STILL TIME TO SIGN UP πŸ“’#FAC's First Peer Support - Qi Gong and Mindfulness with Lynne Hearte. πŸ’œ Living with fibromyalgia can feel overwhelming but connecting with others makes a difference πŸ—“οΈDate: Sept 16 ⏰Time: 5 pm ET ➑️Link: https://t.co/pkNf2o3zIV
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@Patch1Purple
MyPurplePatch πŸ’™
24 days
This week my wife gives a different perspective on the impact of living with a chronic illness. From the viewpoint of those nearest and dearest to the patient - THE BAKERS DOZEN - Thirteen Chronic Questions https://t.co/1qRGYV7YCD @ITPSupportAssoc @GeneticAll_UK @DaleRockell
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@DaleRockell
Dale Rockell
30 days
I planned a trip to #Norwich while dog sitting for parents, it got rained off. I rescheduled and couldn't believe my luck! Watch to find out more... #photography #streetphotography #photographer @NorwichPride #norwich #norfolk @VisitNorwich @VisitNorfolk https://t.co/Ptqoxs71wW
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@rarediseaseday
Rare Disease Day
26 days
Every year on the last day of February (either the 28, or 29 in leap years - the rarest day πŸ’«) the 300M people living with a rare disease come together to call for equity for our community. How can you get involved?πŸ‘‰Learn more: https://t.co/cpgGBKhzur
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@Patch1Purple
MyPurplePatch πŸ’™
29 days
My latest article on Substack - The incredible career and lasting influence of Giorgio Armani who died aged 91 on Sept 4th. https://t.co/3lAi3v0oqd
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@Patch1Purple
MyPurplePatch πŸ’™
29 days
My Substack article this week looks at the incredible career and lasting influence of Giorgio Armani who died aged 91 on Sept 4th - RIPOSA IN PACE RE GIORGIO https://t.co/3lAi3v0WfL @DaleRockell @cosmicfairy444
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@FibroBloggers
Fibro Bloggers
1 month
"The main symptoms of fibromyalgia are: pain – you may feel as though you’ve got pain that spreads throughout your entire body, with certain parts – such as your neck and back – feeling particularly painful." ~ VersusArthritis #PainAwareness #PainAwarenessMonth #PAM2025
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@AnthonyH7
Anthony Heard
1 month
Please do check out the film I made recently about my ITP & Fibromyalgia ⁦@Patch1Purple⁩ ⁦@ITPSupportAssoc⁩ ⁦@UKITPR⁩ ⁦@PDSA_ITP⁩ ⁦@FibroBloggers⁩ ⁦@teamfibro⁩
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@Patch1Purple
MyPurplePatch πŸ’™
1 month
Please do check out the video/podcast I made in August. It'd be great to get over 100 views for the video, we are at 95 - Anthony Heard ITP and Fibromyalgia Chronic Disease Advocate S2 E14 https://t.co/6rSfjHAn3u via @YouTube @FibroBloggers @GeneticAll_UK @fmauk @teamfibro
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
1 month
#Ataxia_Spotlight Ataxia and us – Louise and Karls’ Story ( SEPTEMBER 2021) @RareRevolutionM https://t.co/wM2lkIB4nN International Ataxia Awareness Day September 25th #IAAD #IAAD25 #IAAD2025 #Ataxia #RareDisease
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@Patch1Purple
MyPurplePatch πŸ’™
1 month
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@AChVoice
A Chronic Voice
1 month
"I thought it was just my #SjΓΆgrens acting up again, because my #knees hurt almost every day anyway, and paid not much mind to it. I went out with a friend in the evening & even went for a walk up & downhill despite the pains.": https://t.co/McE2x4Hszn #ChronicPain #MondayBlogs
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@fibrocanada
Fibromyalgia Association Canada
1 month
Fibromyalgia Awareness Week is a reminder that new seasons can bring new opportunities for self-care, balance & hope #SelfStartSeptember is a time for #selfmanagement strategies that can help ease symptoms, restore balance & support mental well-being #FreshStartSeptember #FAC
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
1 month
Back to #School ? Checkout our #Charity #Trustee`s #Ebay page for a new #Computer #rucksack #Laptop #backpacks Last Few (Black) in Stock https://t.co/iLz9KAEb5u Be #Ataxia aware while on your adventures , while spreading awareness #Ataxia_Spotlight #FREE #Squishy #Stress #Taxi
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@Ataxia_and_Me
Ataxia and Me CIO 1184030
1 month
ICYMI, this morning #Ataxia_Spotlight Ataxia can be acquired. Acquired ataxia is generally a symptom of another health issue,... #Ataxia #patients #charity #Cymru #Wales International Ataxia Awareness Day September 25th #IAAD #IAAD25 #IAAD2025
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@Patch1Purple
MyPurplePatch πŸ’™
1 month
On my Substack this week I talk to @GretaBurroughs author and ITP advocate about living with ITP & her book Heartaches and Miracles - THE BAKERS DOZEN - Thirteen Chronic Questions https://t.co/eYs5RhmenO @GeneticAll_UK #Global4ITP @AnthonyH7
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