
MyPurplePatch π
@Patch1Purple
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4K
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431
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England, United Kingdom
Joined August 2016
'Pleasurable Overload', the reality of #Fibromyalgia payback for having a nice time. π€π #spoonie #menwithfibro #Pomeranian #FibroLife #ChronicPain #chronicillness
https://t.co/NhsE6Fa2rU
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What's it like living with someone with chronic illness ? This week on my Substack my wife reveals all about my conditions - THE BAKERS DOZEN - Thirteen Chronic Questions https://t.co/1qRGYV7YCD
@GeneticAll_UK @ITPSupportAssoc @fmauk @FibroBloggers @fibrocanada #Global4ITP
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Do check out the video & podcast I recorded in August - Anthony Heard ITP and Fibromyalgia Chronic Disease Advocate S2 E14 https://t.co/EgIoF6omd7 via @YouTube @Fibro_byUbie @fmauk @FibroBloggers @teamfibro @fibrocanada @ThisFibroChick @OSufferer @ITPSupportAssoc #Global4ITP
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STILL TIME TO SIGN UP π’#FAC's First Peer Support - Qi Gong and Mindfulness with Lynne Hearte. π Living with fibromyalgia can feel overwhelming but connecting with others makes a difference ποΈDate: Sept 16 β°Time: 5 pm ET β‘οΈLink: https://t.co/pkNf2o3zIV
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This week my wife gives a different perspective on the impact of living with a chronic illness. From the viewpoint of those nearest and dearest to the patient - THE BAKERS DOZEN - Thirteen Chronic Questions https://t.co/1qRGYV7YCD
@ITPSupportAssoc @GeneticAll_UK @DaleRockell
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I planned a trip to #Norwich while dog sitting for parents, it got rained off. I rescheduled and couldn't believe my luck! Watch to find out more... #photography #streetphotography
#photographer @NorwichPride #norwich #norfolk @VisitNorwich @VisitNorfolk
https://t.co/Ptqoxs71wW
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Every year on the last day of February (either the 28, or 29 in leap years - the rarest day π«) the 300M people living with a rare disease come together to call for equity for our community. How can you get involved?πLearn more: https://t.co/cpgGBKhzur
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My latest article on Substack - The incredible career and lasting influence of Giorgio Armani who died aged 91 on Sept 4th. https://t.co/3lAi3v0oqd
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My Substack article this week looks at the incredible career and lasting influence of Giorgio Armani who died aged 91 on Sept 4th - RIPOSA IN PACE RE GIORGIO https://t.co/3lAi3v0WfL
@DaleRockell @cosmicfairy444
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"The main symptoms of fibromyalgia are: pain β you may feel as though youβve got pain that spreads throughout your entire body, with certain parts β such as your neck and back β feeling particularly painful." ~ VersusArthritis #PainAwareness #PainAwarenessMonth #PAM2025
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Please do check out the film I made recently about my ITP & Fibromyalgia β¦@Patch1Purpleβ© β¦@ITPSupportAssocβ© β¦@UKITPRβ© β¦@PDSA_ITPβ© β¦@FibroBloggersβ© β¦@teamfibroβ©
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Please do check out the video/podcast I made in August. It'd be great to get over 100 views for the video, we are at 95 - Anthony Heard ITP and Fibromyalgia Chronic Disease Advocate S2 E14 https://t.co/6rSfjHAn3u via @YouTube @FibroBloggers @GeneticAll_UK @fmauk @teamfibro
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#Ataxia_Spotlight Ataxia and us β Louise and Karlsβ Story ( SEPTEMBER 2021) @RareRevolutionM
https://t.co/wM2lkIB4nN International Ataxia Awareness Day September 25th #IAAD #IAAD25 #IAAD2025
#Ataxia #RareDisease
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Just added my #inlinkz link: http://https://t.co/eYs5RhmenO here: https://t.co/NWnyqOGha8 via @inlinkz
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"I thought it was just my #SjΓΆgrens acting up again, because my #knees hurt almost every day anyway, and paid not much mind to it. I went out with a friend in the evening & even went for a walk up & downhill despite the pains.": https://t.co/McE2x4Hszn
#ChronicPain #MondayBlogs
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Fibromyalgia Awareness Week is a reminder that new seasons can bring new opportunities for self-care, balance & hope #SelfStartSeptember is a time for #selfmanagement strategies that can help ease symptoms, restore balance & support mental well-being #FreshStartSeptember #FAC
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Back to #School ? Checkout our #Charity #Trustee`s #Ebay page for a new #Computer
#rucksack #Laptop #backpacks Last Few (Black) in Stock https://t.co/iLz9KAEb5u Be #Ataxia aware while on your adventures , while spreading awareness #Ataxia_Spotlight
#FREE #Squishy #Stress #Taxi
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On my Substack this week I talk to @GretaBurroughs author and ITP advocate about living with ITP & her book Heartaches and Miracles - THE BAKERS DOZEN - Thirteen Chronic Questions https://t.co/eYs5RhmenO
@GeneticAll_UK #Global4ITP @AnthonyH7
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https://t.co/0ebjsjIFVK
#Flashback 9 years ago! Autumn Seasonal Change with #Raynauds
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #BePartOfResearch
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