ITPSupportAssoc Profile Banner
ITP Support Assoc Profile
ITP Support Assoc

@ITPSupportAssoc

Followers
2K
Following
1K
Media
1K
Statuses
5K

UK charity supporting sufferers of the auto immune bleeding disorder Immune Thrombocytopenia. Views expressed are those of individuals & not the ITP Supp Assoc

The Platelet Mission, MK44 2EL
Joined August 2011
Don't wanna be here? Send us removal request.
@ITPSupportAssoc
ITP Support Assoc
4 years
It’s here & free to download. It’s a vital resource for anyone with any interest in ITP - The ITP Support Association - Shared decision making. #itpaware #itpawareness #global4itp #ITPStrongerTogether@rarediseaseuk⁩ ⁦@NHSEngland
0
10
21
@ITPSupportAssoc
ITP Support Assoc
22 hours
Where Did Your ITP Journey Begin? 💜 For many, the road to an ITP diagnosis is confusing and often starts with unexpected symptoms. That moment when you finally receive a name for what's happening to your body can be a powerful one. We want to hear from you. If you're
0
0
0
@ITPSupportAssoc
ITP Support Assoc
4 days
Supporting the Pupil with ITP: A Guide for Schools 💜 For most children and teens with ITP, a low platelet count has little to no impact on the classroom routine. However, a few simple accommodations can make all the difference in their safety and well-being. Schools play a
0
1
2
@ITPSupportAssoc
ITP Support Assoc
6 days
Did you know that there is no state funding for ITP research? The vital, groundbreaking work listed below happens entirely because of the generous donations and fundraising efforts of our incredible community! Your support is directly responsible for advancing our understanding
0
1
1
@ITPSupportAssoc
ITP Support Assoc
7 days
Connect with the ITP Support Association on LinkedIn🤝 We have officially launched our presence on LinkedIn, and we invite you to connect with us! Following our company page is a great way to stay updated on our vital work. Follow our company page here: ➡️
0
2
2
@ITPSupportAssoc
ITP Support Assoc
8 days
Give as You Live: Support ITP While You Shop! 💜 Did you know you can raise money for the ITP Support Association without it costing you an extra penny? It's easy with Give as you Live Online! Simply join the platform, and whenever you shop through their dashboard at any of
0
0
0
@ITPSupportAssoc
ITP Support Assoc
11 days
Meet The Team: Professor Nichola Cooper trained at Cambridge University and Barts and the London School of Medicine and Dentistry. She completed her haematology training at University College Hospital and subsequently gained research experience at Cornel Medical College, New
1
2
4
@ITPSupportAssoc
ITP Support Assoc
11 days
This is a video put together by Michelle who is part of the wonderful team looking after ITP patients in the Haematology Clinic at Hammersmith Hospital under ITPSA Trustee Prof Nichola Cooper. Thanks must also go to Deena Paul ITP CNS. #itpawareness https://t.co/OPTdFFJcrr via
0
1
1
@ITPSupportAssoc
ITP Support Assoc
13 days
ITP can unfold in different ways, and recognising its phases can offer valuable insight into the journey. It's important to highlight these key stages, from initial diagnosis through to chronic ITP. Each phase brings its own set of experiences and considerations. #PhasesOfITP
0
1
2
@ITPSupportAssoc
ITP Support Assoc
15 days
A Quick Summary of ITP from the Experts We are pleased to share a new resource: a quick summary of Immune Thrombocytopenia by our very own Chair, Professor Adrian Newland CBE. As a leading expert in Haematology, Professor Newland offers a clear and concise overview of the
0
0
0
@ITPSupportAssoc
ITP Support Assoc
18 days
We're wearing purple today to stand with the global ITP community 💜 Purple is the official colour of ITP awareness—representing strength, resilience, and support for those living with Immune Thrombocytopenia.  Whether it’s a scarf, a t-shirt, or a pair of socks, every shade
0
0
0
@ITPSupportAssoc
ITP Support Assoc
19 days
The strength of our community extends far beyond our local borders. We're proud to be part of the International ITP Alliance, a global network of ITP patient organisations working together across 31 countries. This alliance ensures that no matter where you are in the world, the
0
0
1
@ITPSupportAssoc
ITP Support Assoc
20 days
Beyond the numbers on a blood test, ITP is a lived experience. It's the unexpected fatigue, the anxiety, and the quiet resilience needed for daily life. This Global ITP Awareness Week, we want to shine a light on the human side of this condition. For many, living with ITP means
0
2
4
@ITPSupportAssoc
ITP Support Assoc
20 days
Thank you to the Team at Imperial College Healthcare NHS Trust, they did a tour of the Hammersmith Haematology Department raising awareness for ITP. Well done to Prof Nichola Cooper and her wonderful team for making this happen. The chocolates were very popular! #itpsupport
0
1
1
@ITPSupportAssoc
ITP Support Assoc
21 days
A Global Community, United for ITP 💜 Behind every resource, every support group, and every piece of information we share, there is a person—a volunteer, a caregiver, a patient, a medical professional, or a supporter. The ITP Support Association isn't just an organisation; it's
0
0
2
@ITPSupportAssoc
ITP Support Assoc
22 days
It's here! 💜 Welcome to the start of Global ITP Awareness Week! This week, the spotlight on Immune Thrombocytopenia shines brighter than ever, reaching across borders and continents. From the UK and all corners of the globe, we stand united with everyone affected by ITP.
0
3
3
@ITPSupportAssoc
ITP Support Assoc
25 days
👋 Meet Professor Adrian Newland CBE - Our Chair We are honoured to introduce Professor Adrian Newland, the Chair of the ITP Support Association. He is a Professor of Haematology and a leading expert in immune thrombocytopenia, hosting the only tertiary referral centre for ITP
0
1
1
@ITPSupportAssoc
ITP Support Assoc
27 days
A life-saving story for Global ITP Awareness Week. 💜 Meet Danielle, a mum who wouldn't have her children without the life-saving generosity of plasma donors. Diagnosed with ITP during her first pregnancy, Danielle received more than 50 infusions of immunoglobulin - a medicine
0
0
0
@ITPSupportAssoc
ITP Support Assoc
27 days
This is the recording of the Scotland ITP Support Group Meeting that took place on Tuesday 16th September 2025 with Dr. Catherine Bagot, plus Mervyn Morgan ITPSA CEO and ITPSA Board Member Rhonda Anderson. #ITPAwareness https://t.co/ShodZyLNV1
0
0
1
@ITPSupportAssoc
ITP Support Assoc
28 days
Its ITP Awareness Week in just a few more days, why not watch the recordings from our May National ITP patient convention? 2025 ITP Patient Convention Recordings Now Available The recordings from our recent ITP Patient Conference, held at Bridgewater Hall in Manchester this past
0
1
2
@ITPSupportAssoc
ITP Support Assoc
29 days
When it comes to your health, your voice matters. Shared decision-making is a powerful approach to ITP treatment, where you and your doctor work together as a team. This collaborative process ensures that your treatment plan is not just medically effective, but also aligned with
0
0
0