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Southeastern PANS/PANDAS Association Profile
Southeastern PANS/PANDAS Association

@pandas_pans

Followers
347
Following
57
Media
513
Statuses
542

Working to provide access to healthcare for all PANS/PANDAS children and to educate providers about this condition.

Atlanta, GA
Joined May 2018
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@pandas_pans
Southeastern PANS/PANDAS Association
2 months
💙🌍 On PANS/PANDAS Awareness Day 2025, we honor the researchers & clinicians whose work has given families recognition, hope & a path to care. Your dedication drives progress toward timely diagnosis, effective treatment & a brighter future. #PANDASAwarenessDay #PANS #PANDAS
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@pandas_pans
Southeastern PANS/PANDAS Association
2 months
👕 Support PANS/PANDAS Awareness Day! When you purchase a t-shirt, you're helping kids and families get faster diagnoses, better treatment options, and access to the care they need. 💙 https://t.co/2w82iwXzum #pans #pandas #panspandas #pandasawareness #pansawareness
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@pandas_pans
Southeastern PANS/PANDAS Association
2 months
October 9 is PANS/PANDAS Awareness Day! Try out this brain teaser and post your version! Tag friends to keep the chain going. WORDS: Post pathogen personality pivots puzzle parents and perplex practitioners. #pandaspansawareness #pandaspans #panspandas #pandasawareness
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@pandas_pans
Southeastern PANS/PANDAS Association
7 months
Alert! National budget cuts hit Columbia University, threatening the work of PANS/PANDAS researcher Dr. Ugur Akcan! Keep his work alive by donating: https://t.co/vO2hbFLSDq #PANS #PANDAS #PANSPANDAS
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@pandas_pans
Southeastern PANS/PANDAS Association
7 months
👏 Congrats GA PANS/PANDAS families! Today Governor Kemp signed SB5 into law effective Jan. 2026, mandating insurance coverage for PANS/PANDAS. Many thanks to the community for all your effort and to Sen. Scoggins, our champion. Time to celebrate! 🎉 #PANS #PANDAS #GASB5
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@pandas_pans
Southeastern PANS/PANDAS Association
8 months
This 10-year study from M. Thienemann, K. Chang, J. Frankovich, et. al. defines "patient status, flares, and clinical course," says clinicians should be "vigilant" for new neuropsychiatric symptoms. https://t.co/0kovnjrDfL #PANS #PANDAS #PANSPANDAS
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@pandas_pans
Southeastern PANS/PANDAS Association
8 months
GA SB5 with mandated PANS/PANDAS insurance coverage passes! 🙌🎉🎊Now, the bill is officially on its way to the Governor's desk for his signature. See the new bill here -- PART II, Section 2-1: https://t.co/yydEE3vopW #PANS #PANDAS #PANSPANDAS #SB5
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@pandas_pans
Southeastern PANS/PANDAS Association
9 months
PANDAS Physicians Network (PPN) publishes a letter of appeal to the AAP, urging them to revise its report: include strep test, full lit review, guidance on evidence-based care. Full letter here: https://t.co/NrImDRM4ya #PANS #PANDAS #PANSPANDAS @PANDASPPN @AmerAcadPeds
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@pandas_pans
Southeastern PANS/PANDAS Association
9 months
Our Kids Can't Wait! 💙 GA families, HB124 for PANS/PANDAS insurance coverage heads to the Senate Insurance Committee THIS THURSDAY, March 20 -- soon to the Senate floor for a vote. Pls call/email NOW! Senate list: https://t.co/GKc8Q3Qkav #HB124 #PANSPANDAS #PANS #PANDAS
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@pandas_pans
Southeastern PANS/PANDAS Association
10 months
We Need YOU to Fight for SB205! Georgia families are battling #PANS/#PANDAS without insurance coverage. Email the Senate Insurance and Labor Committee or make a call to tell them why this bill is crucial. Contact link: https://t.co/571d1lU1EM 💙 #SB205 #PANSPANDAS #GAFamilies
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@pandas_pans
Southeastern PANS/PANDAS Association
10 months
Georgia has a Senate bill! #SB205 has arrived on #PANS/#PANDAS mandated insurance coverage, and we need your voices! Continue to contact the House, but please add the Senate. Your calls and emails are making a difference like never before! Senate list: https://t.co/GKc8Q3PMkX
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@pandas_pans
Southeastern PANS/PANDAS Association
10 months
Stand up for #HB124 on #PANS/#PANDAS mandated insurance coverage! Current status: Waiting to go to the Rules Committee; when we pass there, we will go to the floor. Please call or email the members on this list, including your own: https://t.co/A8pK0nd1Yf
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@pandas_pans
Southeastern PANS/PANDAS Association
10 months
We need your voice! Please complete this survey for each affected child in your family to quantify the financial impact of #PANS/#PANDAS for GA legislators who may not have experience with PANS/PANDAS. https://t.co/gr9DQOIzyL
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@pandas_pans
Southeastern PANS/PANDAS Association
10 months
To support Georgia #HB124 on #PANS/#PANDAS mandated insurance coverage by emailing GA House Representatives, please email the names on this list who are NOT highlighted, as well as your own Representative. Highlighted are bill supporters. Full list: https://t.co/A8pK0nd1Yf
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@pandas_pans
Southeastern PANS/PANDAS Association
10 months
Georgia #HB124 on #PANS/#PANDAS insurance coverage passed unanimously in the House Insurance Committee today and will move to the House Rules Committee. Please email the House Rules Committee and the Senate Insurance Committee ASAP. Addresses on FB: https://t.co/h8enigXxSX
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@pandas_pans
Southeastern PANS/PANDAS Association
10 months
Thanks to those who contacted the Georgia House Insurance Committee about #HB124 for #PANS/#PANDAS treatment coverage! For those who haven't, here's the House Insurance Committee member list: https://t.co/igAFaOcgaB. Sample letter on FB page: https://t.co/h8enigXxSX.
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@pandas_pans
Southeastern PANS/PANDAS Association
10 months
Today the GA House Insurance Subcommittee met on #HB124, sponsored by Rep. Mitchell Scoggins. This bill that will help ensure treatment coverage for those affected by #PANS/#PANDAS. Pictured are Rep. Scoggins, his granddaughter, and GA children and families affected by PANDAS.
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@pandas_pans
Southeastern PANS/PANDAS Association
10 months
Support #HB124 to pass mandatory #PANS/#PANDAS insurance coverage by calling members of the INSURANCE COMMITTEE this weekend as they meet Monday! Link to committee list: https://t.co/igAFaOcgaB #HB124
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@pandas_pans
Southeastern PANS/PANDAS Association
11 months
Georgia House Bill 124 has dropped, requiring both private insurance and state employee health benefit plans to cover treatment for #PANDAS and #PANS. Please call your state legislator in support of this bill and tell them how PANS has affected your family! #HB124
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@pandas_pans
Southeastern PANS/PANDAS Association
11 months
Georgia families! Please complete this 10-minute survey today to quantify the financial impact of #PANS and #PANDAS for GA legislators. https://t.co/CSg4MptaJ0
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