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SUDEP Action Profile
SUDEP Action

@SudepAction

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Following
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Dedicated to raising awareness of epilepsy risks & tackling all #epilepsy deaths including #SUDEP Get in contact: [email protected]

Wantage, Oxfordshire
Joined December 2009
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@SudepAction
SUDEP Action
1 day
Parents & carers — our “Live well with epilepsy” guide is packed with practical tips to support your loved one confidently & safely. 📄 Download your free copy: https://t.co/B6LfAN4qNz #SUDEP #epilepsy #epilepsyawareness #seizures
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@SudepAction
SUDEP Action
1 day
Take on your own #MyWayto5K challenge and honour the memories of those lost to epilepsy while raising vital awareness and funds to help save lives. Sign up today: https://t.co/YTyG5rbdn9 #epilepsy #epilepsyawareness #SUDEP
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@SudepAction
SUDEP Action
2 days
Businesses, fundraisers, and representatives of SUDEP Action came together for #SUDEPActionDay2025. At our London event, four of the five original charity founders had the opportunity to reunite - Catherine Brookes, Sue Kelk, Sheila Pring and Jane Hanna. #SUDEP #epilepsy
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@SudepAction
SUDEP Action
2 days
🚐 Win Tia's home on wheels — built in memory of her uncle Brett. 💜 5% of all proceeds go to SUDEP Action, helping fund lifesaving epilepsy work & support grieving families. Enter today 👉 https://t.co/d1nmWK1jtH #SUDEP #epilepsy #epilepsyawareness #vanlife
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@SudepAction
SUDEP Action
2 days
The Charlie Card reminds health professionals of their legal responsibilities to provide emergency medication in a crisis. Charlie Marriage was unable to obtain access to his medication when he needed it. He subsequently died of #SUDEP in 2021. https://t.co/riEUObYPh1
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@Balt_USA_Neuro
Balt USA Neuro
29 days
Getting hung up on vessel take-offs, bifurcations or tortuosity? Carrier Delivery Catheter is intended to Lead the Way for aspiration catheters to get to the face of the clot. New data shows it does just this, in 100% of cases! Check out the article here
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@SudepAction
SUDEP Action
3 days
Thank you to everyone for getting involved in #SUDEPActionDay2025 🧡 Everyone who has taken part this year has helped #BREAKDOWNBARRIERS around important info about epilepsy risks, safety and #SUDEP. We hope to have your support again next year. #epilepsy #epilepsyawareness
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@SudepAction
SUDEP Action
3 days
Regular check-ins with EpSMon can highlight when its time to speak with your GP, it can also help identify risks that could lead to #seizures. Download today and start your safer #epilepsy journey. Search “EpSMon” on the App Store. #SUDEP #epilepsyawareness #SUDEPActionDay2025
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@SudepAction
SUDEP Action
3 days
We recently asked some of our policy champions to sum us and our work up in a word or two. Here’s our word cloud of responses. Find out more about our work: https://t.co/hhQBIJvvna #sudepactionday #SUDEP #epilepsy #epilepsyawareness
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@SudepAction
SUDEP Action
3 days
Scott Hardcastle lost his sister to #SUDEP in 2004. His band, Kissed by Vultures, wrote ‘Miss You’ in her memory — and he’s inviting families to share photos of loved ones for the song’s video, creating a collective musical memorial. 💜 Email in at scotthardcastle81@icloud.com
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@anduriltech
Anduril Industries
3 days
This is not a video game. With lethal connectivity, EagleEye enables Warfighters to command and control unmanned systems and call for fires through a heads-up, hands-free display.
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@SudepAction
SUDEP Action
3 days
Do something impactful for #SUDEPActionDay2025 and consider regular giving to support the work we do for the #epilepsy community: https://t.co/m5VZk7TAUI SUDEP Action receives no government funding so we rely on our supporters and fundraise to help us do what we do. #SUDEP
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@SudepAction
SUDEP Action
3 days
Joy de Berker’s son, Jacob, died from SUDEP aged 37 on 23 October 2021. For #SUDEPActionDay2025, Joy has shared with us “a beautiful but painfully sad song” Jacob recorded called Nobody’s Love. It was written about his own experience of a seizure: https://t.co/u8T55H6inw
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@SudepAction
SUDEP Action
3 days
Emma died of SUDEP in 2023. She was just 26. Her mother Dianne says Emma faced barriers all her life, fighting to get her #epilepsy recognised and for access to services and care. Read Emma's story: https://t.co/Kyk3dqBuUP #SUDEPActionDay2025 #SUDEP #epilepsyawareness
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@SudepAction
SUDEP Action
3 days
Do you see patients with epilepsy? Join the 2,000 clinicians who use our award-winning SUDEP and Seizure Safety Checklist. Adult Checklist: https://t.co/0JOCO5wKPQ Paediatric version: https://t.co/V6flttrovl #SUDEPActionDay2025 #SUDEP #seizures #epilepsy
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@SudepAction
SUDEP Action
3 days
For #SUDEPActionDay2025, Monica Lennon MSP has called on the Scottish Government and Parliament to strengthen efforts to improve epilepsy safety, ensure clear communication of risk and provide support for bereaved families. Read more: https://t.co/7E7BYzQFJf #SUDEP #epilepsy
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@SudepAction
SUDEP Action
3 days
Jane Hanna OBE, for #SUDEPActionDay2025, has identified the top 10 barriers the charity has fought to break down over the past three decades. These include ones we are still striving to break down. Read more: https://t.co/Vu7aXmeb0z #SUDEP #epilepsy #epilepsyawareness
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@SudepAction
SUDEP Action
3 days
Roy Grimes lost his brother to #SUDEP. He also faced his own personal health battles when his weight ballooned to 21-stone, and he couldn’t bend down to tie his own shoelaces. Roy’s book, Shoelaces, tells his story: https://t.co/ZqwcjiozKm #SUDEPActionDay2025
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@SudepAction
SUDEP Action
3 days
SUDEP is not a condition. Sudden Unexpected Death in Epilepsy is when someone with epilepsy dies and no other cause of death can be found during the post-mortem. Awareness saves lives. 💜 #SUDEP #epilepsyawareness #epilepsy #sudepactionday
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@SudepAction
SUDEP Action
3 days
Calling all Scottish MSPs – show your support for #SUDEPActionDay2025 today by wearing and sharing your pin badge pics! With help from @MonicaLennon7 we sent SUDEP Action pin badges to every Scottish MSP, all 129 of them! Remembering Jess, who died of SUDEP in 2022, aged 20 💜
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@SudepAction
SUDEP Action
3 days
Today is #SUDEPActionDay2025 We are uniting with organisations around the world to #BREAKDOWNBARRIERS surrounding information that people with #epilepsy or those bereaved by it should have access to. Tag us in your messages and photos @SUDEPAction #SUDEP #epilepsyawareness
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@SudepAction
SUDEP Action
4 days
Share our #SUDEPActionDay2025 poster! Share this tomorrow to help #BREAKDOWNBARRIERS and raise awareness of what can be done to prevent epilepsy deaths. #SUDEP #epilepsy #epilepsyawareness
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