Well done to Luke Aikenhead and his friends and family who came together in memory of his brother, Ross, for a golf tournament. They had 116 golfers in attendance and raised £6,713 and £1,300 at Luke’s charity football day. See how you can fundraise:

RT @youngepilepsy: Struggling to get hold of epilepsy medication?. We know how stressful that can be for both young people and their famili….

Get your ‘Charlie Card’ today – a tool that enables someone with epilepsy the legal right to access emergency medications: Charlie Marriage was unable to access to his medication when he needed it. He died of #SUDEP in 2021. @IPAPharmacy @ESNA_epilepsy

Could you take on the #LondonLandmarks Half Marathon 2026?. The race is on Sunday 12 April 2026 and places are limited so get in touch today to secure your spot! . Contact fundraising@sudep.org to get signed up with a min. sponsorship of £500 to raise 🏃‍♀️ 🏃‍♂️. #SUDEP #epilepsy

Did you know we have information on preventative steps and advice in first aid for seizures, for people living with epilepsy including childcare safety tips?. Find out more: #SUDEP #epilepsy #epilepsyawareness #seizures

Please note that tomorrow our support line and office will be closed for a staff training day. We will reopen Friday 18th July. #SUDEP #epilepsy

SUDEP Action are supporting the letter calling on the Health Secretary, @wesstreeting, to act for the 1 in 6 people affected by neurological conditions who still can’t get the healthcare they need. Sign the open letter to Wes Streeting today:

MuchLoved is a dedicated space where you can create an everlasting online tribute to someone lost to epilepsy. It offers a meaningful way to honour their life, share memories, and raise awareness or funds in their name: #SUDEP #epilepsy

A big thank you to Making Websites Better for inviting us to the People Behind Brands event yesterday in Colchester. We had the brilliant opportunity to meet the 2025 winner of The Apprentice, Dean Franklin. Learn more about our work: . #SUDEP #epilepsy

Pop on the Proms is back! Buy your tickets for one of Southwold’s ‘greatest nights of the year’ at North Parade, Southwold. Come along on Friday 18th July, 7pm, in memory of Sarah Darnell. For more information, please email poppismith1@gmail.com . #SUDEP #epilepsy

“In their absence, you'll find a presence—something they've left behind that will stay with you forever.”. Our support team are here on 01235 772852 or at support@sudep.org. #SUDEP #epilepsy

SUDEP Action is excited to attend the People Behind Brands 2025 event for ambitious businesses on Monday 14th July in Colchester, Essex. Tickets are still available so don’t miss out on your chance for a day of connection, inspiration and opportunity:

This week we have launched the ‘Charlie Card’ – a free tool that enables someone with epilepsy the legal right to access emergency medications in a crisis. Order or download today: . #SUDEP #epilepsy

Martin Morgan was just 37 when he passed away to SUDEP. This year marks the 10th anniversary since Martin’s death and his sister Cheryl Morgan-Walker will be honouring it with a 3 x 3 peak challenge alongside Bethan Davies Fitness: . #SUDEP #epilepsy

RT @AvrilCoelho: If you live in England and Wales and have #Epilepsy order your card for FREE today. Mine is in the post.

The family of Charlie Marriage, for the launch of the Charlie Card, were in Westminster yesterday with Jane Hanna OBE to spread awareness of the right to emergency epilepsy medication: . Thanks to @OllyGloverLD and @IPAPharmacy. #SUDEP #epilepsy

Support FAQ: How old do I have to be to get help?. We support anyone who has experienced an epilepsy-related bereavement and aged 18 years or older. Find out more at: #SUDEP #epilepsy

All Charlie Cards are completely FREE, including postage & packing. Follow the link

Today we are launching the ‘Charlie Card’ – a tool that enables someone with #epilepsy the legal right to access emergency medications in a crisis. Read more: #SUDEP #epilepsyawareness #seizures

Not every epilepsy-related death is SUDEP. We support those who have lost someone to accidents, status epilepticus and suicide. Learn more: #SUDEP #epilepsy #epilepsyawareness