Lily Nightingale ♿
@LilNight7
Followers
436
Following
17K
Media
153
Statuses
14K
- ME/CFS - Bachelor of Science in Psychology, Counseling, And Therapies
England
Joined May 2011
https://t.co/VDjYCbQI95 I've pressed play. It's a long read, so apologies for that, but it contains three years of my experience navigating within the NHS as an ME patient. #MECFS #NICEguidelines #pwme
therealmezone.wordpress.com
Photo by eberhard grossgasteiger on Pexels.com My journey with Myalgic Encephalomyelitis started in the summer of 2018. I was working as a cleaner at a mall, which was a surprisingly physical job, …
9
15
56
EXPOSED: the public is paying for Keir Starmer's in-laws to live virtually rent-free in London Starmer's in-laws live in his house for less than social housing rates. That is, we're saving them at least £42k a year because we pay for HIM FFS @OsoSabioUK
https://t.co/JWgPy2lWxa
thecanary.co
Keir Starmer's in-laws live in his house for less than a social housing tenant would pay. That is, we're saving them at least £42k a year
84
1K
2K
Reynolds says changes to PIP are necessary because too many young people are not in work, education or training PIP isn't related to employment. It enables many disabled people to work. Stopping disabled people getting PIP wont help them into work. It'll have the opposite effect
231
1K
4K
BREAKING: Israel is bombing civilian areas in Lebanon’s Bekaa Valley for the second night in a row. This is terrorism. Plain and simple.
895
6K
10K
Austerity has decimated our communities & pushed millions of people into poverty. It would be a catastrophic mistake to repeat this failed economic experiment. The top 1% in the UK own more than 70% of the population combined. Stop cutting our services and tax the rich instead.
535
3K
8K
Spain has introduced a wealth tax on the richest 0.5% of households. Introducing such a tax on the world's super-rich could raise £1.5 TRILLION globally to help tackle so many of the problems we face. This is an idea whose time has come! https://t.co/PQYNN4YggP
theguardian.com
The Tax Justice Network said trillions could be raised with a ‘featherlight’ tax on the 0.5% of richest households, copying a current Spanish tax
2K
2K
6K
The Household support fund is ending next month. All previous cost of living support payments have ended. Winter fuel payments are axed. Support for Disabled people, carers & other financially vulnerable people is now gone. Labour is already failing millions.
24
227
453
Well done Karen, you articulated everything beautifully. You are facing @NHSuk standard operating procedures with #VerySevereME: imminent death in hospital or at home. According to #MaeveInquest this is not a #HumanRights matter. It is. Inhuman and degrading treatment @GwynneMP
Video of Karen Gordon filmed on 15 Aug at Conquest Hospital Hastings UK. Please share with as many people as you can. Karen has very severe ME. Please sign our petition to try to save Karen. https://t.co/myZMK0Nolw Scroll down the petition page for latest update.
7
105
208
I honestly cannot believe that this is happening. Please please, let’s amplify Karen’s voice and hold the trust to account.
Video of Karen Gordon filmed on 15 Aug at Conquest Hospital Hastings UK. Please share with as many people as you can. Karen has very severe ME. Please sign our petition to try to save Karen. https://t.co/myZMK0Nolw Scroll down the petition page for latest update.
3
43
109
Labour is going back on its plans to radically reform the water regulator! 🤯 @EllieChowns told the @Guardian, Labour need to reverse Conservative cuts and give the @EnvAgency the funding it needs to protect our environment
18
283
414
💬 “The only way we could get by without really, really suffering is if we got divorced.” Due to benefits restrictions, this can be a common experience for disabled people in the UK. It shouldn't be this way 💔 https://t.co/MXJwGtUykk
metro.co.uk
'If I lost my PIP, the only way we could get by without suffering is if we split up.'
0
8
15
RD&EH and its lawyers are no doubt breathing a sigh of relief after the coroner's findings at today's #MaeveInquest. But #pwME across the UK are frustrated that the coroner had nothing to say about systemic failings, and severely ill ME patients in hospital are still no safer.
3
37
161
“Now, more than ever, we should heed Boothby-O’Neill’s words: ‘My only hope lies in biomedical research, and adequate funding for this requires the medical establishment to set aside the inaccurate idea that behavioural treatments can cure ME.’”
theguardian.com
Letters: people with myalgic encephalomyelitis and their carers are calling for a reversal of decades of underfunding
1
18
64
So very, very thrilled to see this. If you have the means at the mo, please, the crowdfunder is still open to now not only get the book to ALL MPs but have an event to draw publicity AGAINST welfare brutality and FOR welfare rights: https://t.co/ZxNKh2okpl
19
164
347
What is happening in the UK is entirely the result of allowing the Daily Mail, GB News, Nigel Farage, Tommy Robinson, Andrew Tate, and all the others to spew their bile to hundeds of thousands every single day.
2K
7K
37K
🚨IMPORTANT: Scam Alert! We have been notified by a local resident in Chelmsford that 5-6 people are claiming to be DR UK and collecting card payments/directing people to banks. These people are NOT related to DR UK - we do not do street collections!
1
95
108
So pleased to see this: every Labour MP will get a copy of @johnpringdns’s new book exposing the DWP’s harm to disabled people thanks to a crowdfunding campaign.
theguardian.com
A crowdfunded campaign will send more than 400 copies of John Pring’s The Department, which looks at the role of the DWP in the deaths of disabled people, to parliament
19
317
807